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Cover of Family Caregiving for People with Cancer and Other Serious Illnesses

Family Caregiving for People with Cancer and Other Serious Illnesses

Proceedings of a Workshop

; Editors: Joe Alper, Rapporteur and Laurene Graig, Rapporteur.

Washington (DC): National Academies Press (US); .
ISBN-13: 978-0-309-69391-2ISBN-10: 0-309-69391-8

The National Academies Roundtable on Quality Care for People with Serious Illness, National Cancer Policy Forum, and Forum on Aging, Disability and Independence hosted a workshop that examined opportunities to better support family caregiving for people with cancer or other serious illnesses. This workshop built upon previous work, including the 2016 consensus report Families Caring for an Aging America. This Proceedings of a Workshop summarizes the discussions held during the workshop, which focused on: strategies to better capture, understand, and act on family caregiver input and experience; research gaps and opportunities to guide caregiving for patients with serious illnesses; potential policy and practice opportunities to advance family-centered care for serious illness; and opportunities to embed a health equity focus across family caregiving research, policy, and practice.

Contents

This activity was supported by Contract No. 200-2011-38807 (Task Order No. 75D30120F00089), Contract No. HHSN263201800029I (Task Order No. HHSN26300008), Contract No. HHSN263201800029I (Task Order No. 75N98019F00848), and Contract No. HHSP233201400020B (Task Order No. 75P00120F37104) between the National Academy of Sciences and the Centers for Disease Control and Prevention and the National Institutes of Health/National Cancer Institute, National Institutes of Health/National Institute on Aging, and National Institute on Disability, Independent Living, Rehabilitation Research, respectively, and by AARP, Administration for Community Living, American Academy of Hospice and Palliative Medicine, American Association for Cancer Research, American Cancer Society, American College of Radiology, American Geriatrics Society, American Society of Clinical Oncology, Ascension Health, Association of American Cancer Institutes, Association of Community Cancer Centers, Association of Professional Chaplains, Association of Rehabilitation Nurses, Blue Cross Blue Shield Association, Blue Cross Blue Shield of MA, Bristol Myers Squibb, California State University Shiley Haynes Institute for Palliative Care, Cambia Health Foundation, Cancer Support Community, Catholic Health Association, Cedars-Sinai Health System, Center to Advance Palliative Care, Coalition to Transform Advanced Care, Consumer Technology Association Foundation, Flatiron Health, Gerontological Society of America, The Greenwall Foundation, Hospice and Palliative Nurses Association, John A. Hartford Foundation, Kaiser Permanente, Leading Age, Merck, National Coalition for Hospice and Palliative Care, National Comprehensive Cancer Network, National Hospice and Palliative Care Organization, Independent Living, and Rehabilitation Research, National Palliative Care Research Center, National Patient Advocate Foundation, New York Academy of Medicine, Novartis Oncology, Oncology Nursing Society, Partners in Health, Patient-Centered Outcomes Research Institute, Pfizer Inc, PHI, Sanofi, SCAN Foundation, Society for Immunotherapy for Cancer, and USC Leonard D. Schaeffer Center for Health Policy & Economics. Any opinions, findings, conclusions, or recommendations expressed in this publication do not necessarily reflect the views of any organization or agency that provided support for the project.

Suggested citation:

National Academies of Sciences, Engineering, and Medicine. 2023. Family caregiving for people with cancer and other serious illnesses: Proceedings of a workshop. Washington, DC: The National Academies Press. https://doi.org/10.17226/26721.

Digital Object Identifier: https://doi.org/10.17226/26721

This publication is available from the National Academies Press, 500 Fifth Street, NW, Keck 360, Washington, DC 20001; (800) 624-6242 or (202) 334-3313; http://www.nap.edu.

Printed in the United States of America

Copyright 2023 by the National Academy of Sciences. All rights reserved.
Bookshelf ID: NBK587090PMID: 36469654DOI: 10.17226/26721

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