Structured Abstract

Contents

• Preface
• Acknowledgments
• Technical Expert Panel
• Peer Reviewers
• Executive Summary
  • Main Points
  • Background and Purpose
  • Methods
  • Results
  • Limitations
  • Implications and Conclusions
  • References
• Chapter 1. Introduction
  • Background and Objective for Systematic Review
  • Purpose and Scope
  • The Research Questions
  • Analytic Framework
  • Report Organization
• Chapter 2. Methods
  • Review Approach
  • Search Strategy and Study Selection
  • Assessing Methodological Risk of Bias of Individual Studies
  • Data Abstraction and Data Management
  • Data Synthesis
  • Grading Strength of Evidence
• Chapter 3. Search Results
• Chapter 4. Care Interventions for Transition
  • Key Points
  • Introduction
  • Intervention Description
  • All Eligible Studies
  • Care Interventions by Disease Condition
• Chapter 5. Implementation Strategies and Communication Tools
  • Key Question (KQ) 2, Implementation Strategies
  • KQ3, Communication Tools
• Chapter 6. Barriers and Facilitators for Implementing Interventions and Tools
  • Key Points
  • Introduction
  • Intervention Characteristics
  • Outer Setting
  • Inner Setting
  • Characteristics of the Individuals
  • Process
• Chapter 7. Definitions and Measures for Transitions of Care
  • Key Point
  • Introduction
  • Definition of Effective Transition of Care
  • Measures of Effective Transitions of Care
• Chapter 8. Training and Implementation Strategies To Prepare Pediatric and Adult Medical Providers
  • Key Point
  • Introduction
  • Included Literature Set Results
  • Additional Example Trainings and Implementation Strategies From the Grey Literature
• Chapter 9. Training Available for Linguistically and Culturally Competent Care
  • Key Point
  • Introduction
  • Included Literature Set Results
• Chapter 10. Training, Implementation Strategies, and Interventions To Prepare Pediatric Patients and Families
  • Key Point
  • Introduction
  • Included Literature Set Results
• Chapter 11. Strategies To Increase Availability of Adult Providers
  • Key Point
  • Introduction
  • Included Literature Set Results
• Chapter 12. Discussion
  • Overview
  • Broader Context of Available Interventions and Strategies
  • Future Research
  • Strengths and Limitations of the Review
  • Conclusion
• References
• Abbreviations and Acronyms
• Appendixes
  • Appendix A. Methods
  • Appendix B. Excluded Studies at Full Text
  • Appendix C. Expanded Eligible Studies Bibliography
  • Appendix D. Evidence Tables and Evidence Maps for Care Interventions for Transition From Pediatric to Adult Medical Services (Chapter 4)
  • Appendix E. Evidence Tables and Evidence Maps for Implementation Strategies and Communication Tools for Care Interventions for Transition, Including Provider-Related Training (Chapter 5)
  • Appendix F. Study Sources for Barriers and Facilitators for Implementing Effective Interventions and Tools for Transition From Pediatric to Adult Medical Services
  • Appendix G. Measures Used To Evaluate the Effectiveness of Transitions of Care From Pediatric to Adult Services for Children With Special Healthcare Needs
  • Appendix H. References for Evidence Tables

Suggested citation:

Parsons HM, Abdi HI, Nelson VA, Claussen A, Wagner BL, Sadak KT, Scal PB, Wilt TJ, Butler M. Transitions of Care From Pediatric to Adult Services for Children With Special Healthcare Needs. Comparative Effectiveness Review No. 255. (Prepared by the Minnesota Evidence-based Practice Center under Contract No. 75Q80120D00008.) AHRQ Publication No. 22-EHC027. Rockville, MD: Agency for Healthcare Research and Quality; May 2022. DOI: https://doi.org/10.23970/AHRQEPCCER255. Posted final reports are located on the Effective Health Care Program search page.

This report is based on research conducted by the Minnesota Evidence-based Practice Center (EPC) under contract to the Agency for Healthcare Research and Quality (AHRQ), Rockville, MD (Contract No. 75Q80120D00008). The National Cancer Institute (NCI) of the National Institutes of Health (NIH) funded the report. The findings and conclusions in this document are those of the authors, who are responsible for its contents; the findings and conclusions do not necessarily represent the views of AHRQ or NCI/NIH. Therefore, no statement in this report should be construed as an official position of AHRQ, NCI/NIH, or the U.S. Department of Health and Human Services.

None of the investigators have any affiliations or financial involvement that conflicts with the material presented in this report.

The information in this report is intended to help healthcare decision makers—patients and clinicians, health system leaders, and policymakers, among others—make well-informed decisions and thereby improve the quality of healthcare services. This report is not intended to be a substitute for the application of clinical judgment. Anyone who makes decisions concerning the provision of clinical care should consider this report in the same way as any medical reference and in conjunction with all other pertinent information, i.e., in the context of available resources and circumstances presented by individual patients.

This report is made available to the public under the terms of a licensing agreement between the author and the Agency for Healthcare Research and Quality. Most AHRQ documents are publicly available to use for noncommercial purposes (research, clinical or patient education, quality improvement projects) in the United States, and do not need specific permission to be reprinted and used unless they contain material that is copyrighted by others. Specific written permission is needed for commercial use (reprinting for sale, incorporation into software, incorporation into for-profit training courses) or for use outside of the United States. If organizational policies require permission to adapt or use these materials, AHRQ will provide such permission in writing.

AHRQ or U.S. Department of Health and Human Services endorsement of any derivative products that may be developed from this report, such as clinical practice guidelines, other quality enhancement tools, or reimbursement or coverage policies, may not be stated or implied.

A representative from AHRQ served as a Contracting Officer’s Representative and reviewed the contract deliverables for adherence to contract requirements and quality. AHRQ did not directly participate in the literature search, determination of study eligibility criteria, data analysis or interpretation, or preparation or drafting of this report.

AHRQ appreciates appropriate acknowledgment and citation of its work. Suggested language for acknowledgment: This work was based on an evidence report, Transitions of Care From Pediatric to Adult Services for Children With Special Healthcare Needs, by the Evidence-based Practice Center Program at the Agency for Healthcare Research and Quality (AHRQ).