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National Collaborating Centre for Mental Health (UK). Challenging Behaviour and Learning Disabilities: Prevention and Interventions for People with Learning Disabilities Whose Behaviour Challenges. London: National Institute for Health and Care Excellence (NICE); 2015 May. (NICE Guideline, No. 11.)
Challenging Behaviour and Learning Disabilities: Prevention and Interventions for People with Learning Disabilities Whose Behaviour Challenges.
Show detailsWith a range of practical experience relevant to behaviour that challenges in people with learning disabilities in the Guideline Development Group (GDG), members were appointed because of their understanding and expertise in healthcare for people with behaviour that challenges in people with learning disabilities and support for their families and carers, including: scientific issues; health research; the delivery and receipt of healthcare, along with the work of the healthcare industry; and the role of professional organisations and organisations for people with learning disabilities and behaviour that challenges and their families and carers.
To minimise and manage any potential conflicts of interest, and to avoid any public concern that commercial or other financial interests have affected the work of the GDG and influenced guidance, members of the GDG must declare as a matter of public record any interests held by themselves or their families which fall under specified categories (see below). These categories include any relationships they have with the healthcare industries, professional organisations and organisations for people with learning disabilities and behaviour that challenges and their families/carers.
Individuals invited to join the GDG were asked to declare their interests before being appointed. To allow the management of any potential conflicts of interest that might arise during the development of the guideline, GDG members were also asked to declare their interests at each GDG meeting throughout the guideline development process. The interests of all the members of the GDG are listed below, including interests declared prior to appointment and during the guideline development process.
Please note that the Challenging Behaviour and Learning Disabilities Guideline Development Group was recruited under NICE's 2007 declaration of interests policy.
Categories of interest to be written in third person
- Paid employment
- Personal pecuniary interest: financial payments or other benefits from either the manufacturer or the owner of the product or service under consideration in this guideline, or the industry or sector from which the product or service comes. This includes holding a directorship or other paid position; carrying out consultancy or fee paid work; having shareholdings or other beneficial interests; receiving expenses and hospitality over and above what would be reasonably expected to attend meetings and conferences.
- Personal family interest: financial payments or other benefits from the healthcare industry that were received by a member of your family.
- Non-personal pecuniary interest: financial payments or other benefits received by the GDG member's organisation or department, but where the GDG member has not personally received payment, including fellowships and other support provided by the healthcare industry. This includes a grant or fellowship or other payment to sponsor a post, or contribute to the running costs of the department; commissioning of research or other work; contracts with, or grants from, NICE.
- Personal non-pecuniary interest: these include, but are not limited to, clear opinions or public statements you have made about challenging behaviour and learning disabilities, holding office in a professional organisation or advocacy group with a direct interest in challenging behaviour and learning disabilities, other reputational risks relevant to challenging behaviour and learning disabilities.
| Declarations of interest | |
|---|---|
| Glynis Murphy (Chair) | |
| Employment | Professor of Clinical Psychology and Disability, Co-Director of the Tizard Centre, University of Kent |
| Personal pecuniary interest | Until October 2012, employed (part-time) by the NHS. Conduct consultancy for NHS police and lawyers, normally contracted for through the University of Kent Enterprise department, and paid for through my University of Kent salary. Co-editor, Journal of Applied Research in Intellectual Disability. Member, Care Quality Commission panel. Member, National Offender Management Service accreditation panel. |
| Personal family interest | None |
| Non-personal pecuniary interest | Co-director, Tizard Centre, in receipt of grants (National Institute for Health Research/charities). Tizard Centre, training for staff from Learning Disabilities. Tizard Centre research grant; treatment of sexually abusive behaviour in young people with a learning disability. |
| Personal non-pecuniary interest | Conducted own research into challenging behaviour. Chair, Sexual Offender Treatment South East Collaborative – Intellectual Disability. Immediate Past President International Association for the Scientific Study of Intellectual and Developmental Disabilities. |
| Actions taken | None |
| Steve Pilling (Facilitator) | |
| Employment | Director, NCCMH |
| Personal pecuniary interest | None |
| Personal family interest | Medical Research Council, research funding looking at psilocybin. Grant from National Alliance for Research on Schizophrenia and Depression to look at transcranial direct-current stimulation in treatment of depression. |
| Non-personal pecuniary interest | None |
| Personal non-pecuniary interest | None |
| Actions taken | None |
| David Allen | |
| Employment | Clinical Director, Positive Response Training and Consultancy and Professor, Tizard Centre, University of Kent. |
| Personal pecuniary interest | Positive Response Training and Consultancy provides training to health and social care staff and families supporting people with learning disabilities and challenging behaviour. It uses an over-arching positive behaviour support model and provides training in both proactive, preventative strategies and reactive strategies. The physical intervention training component of the latter is accredited by the British Institute of Learning Disabilities. Editor of International Journal of Positive Behavioural Support. Collaborator in randomised control trial of Training in Positive Behavioural Support (Hassiotis, 2013). Joint applicant, Reduction in Anti-psychotic Medication in People with Learning Disability and Challenging Behaviour (Kerr, Felce 2013). |
| Personal family interest | None |
| Non-personal pecuniary interest | Honorary Professor, University of Kent. |
| Personal non-pecuniary interest | Member of various working groups set up as part of Positive and Safe Programme. Member of Positive and Safe Programme Board. Member of group that recently produced competence framework for positive behaviour support. |
| Actions taken | None |
| Katherine Andrea | |
| Employment | Senior Project Manager, NCCMH |
| Personal pecuniary interest | None |
| Personal family interest | None |
| Non-personal pecuniary interest | None |
| Personal non-pecuniary interest | None |
| Actions taken | None |
| David Branford | |
| Employment | Retired |
| Personal pecuniary interest | Development of guideline on dysphagia in learning disabilities supported by Rosemont Pharmaceuticals. Opinion on lisdexamphetamine supported by Pharmacy management. Opinion on lurasidone supported by Sunovion Pharmaceuticals. |
| Personal family interest | None |
| Non-personal pecuniary interest | PhD on antipsychotic drugs in learning disabilities. Chairman of the English Pharmacy Board of the Royal Pharmaceutical Society. Elected member of the College of Mental Health Pharmacy. Editor of Frith prescribing guidelines for adults with learning disabilities (no financial interest). |
| Personal non-pecuniary interest | None |
| Actions taken | None |
| Alick Bush | |
| Employment | Lead Psychologist, St Andrews Healthcare |
| Personal pecuniary interest | Employed 0.6 whole time equivalent by St Andrews Healthcare, a charity that provides inpatient care to adults with learning disabilities and autism. Provides a clinical psychology service to patients in the hospital. |
| Personal family interest | None |
| Non-personal pecuniary interest | None |
| Personal non-pecuniary interest | Policy lead, British Psychological Society Faculty of Learning Disabilities – promoted the use of predominantly psychosocial interventions for adults who challenge services, including positive behaviour support. Until December 2014, Chair of the Learning Disabilities Professional Senate – an alliance of the professional bodies that provide support to people with learning disabilities. Representative of the Professional Senate on the Learning Disability Programme Board. On a range of sub-committees and working groups that are responsible for delivering the Transforming Care action plan following the Winterbourne View review. This includes being a member of the Expert Advisory Group on the promotion of positive behaviour support. Co-editor of ‘Challenging Behaviour: a unified approach’ (London: Royal College of Psychiatrists, British Psychological Society and Royal College of Speech and Language Therapists; March 2007). Acted as a special advisor on a Care Quality Commission inspection. |
| Actions taken | None |
| Carole Buckley | |
| Employment | General Practitioner, The Old School Surgery. |
| Personal pecuniary interest | Non-executive Director GP Care (UK) Ltd: Private provider of NHS services to patients. Chair, St Mathias holdings Ltd: Practice based pharmacy offering services to residential care homes. |
| Personal family interest | None |
| Non-personal pecuniary interest | Member, Royal College of General Practitioners intellectual disability professional network. Clinical Champion for Autism by the Royal College of General Practitioners. Joint recipient of a grant from Bristol University to implement focus groups for service users and carers in order to inform GP practice. Grant from the Academic Health Science Network South West to hold a conference in Taunton 19/11/14 for commissioners and providers of autism services. |
| Personal non-pecuniary interest | None |
| Actions taken | None |
| Vivien Cooper | |
| Employment | Carer representative/Chief Executive Officer, The Challenging Behaviour Foundation. |
| Personal pecuniary interest | None |
| Personal family interest | None |
| Non-personal pecuniary interest | None |
| Personal non-pecuniary interest | Member, Transforming Care Assurance Board (formerly Winterbourne View Joint Improvement Board). Member, Engagement Steering Group for Joint Improvement team (from June 2014 formerly Chair). Respond Steering Group for support for Winterbourne View families. Department of Health Advocacy Group. Department of Heath Medication Collaborative Group, Steering Group. Care Quality Commission Learning Disability Advisory Group. Hassiotis University College London Positive Behaviour Support Research Group. Tizard E-Pats Fellowship Steering Group. Chair, Challenging Behaviour National Strategy Group. Member, Council for Disabled Children Restrictive Physical Intervention Steering Group. Member, Department of Health Winterbourne View Capital Funding Panel. Member, Learning Disabilities Professional Senate. Member, School for Social Care Research User Carer Practitioner Reference Group. Member, Learning Disabilities Voluntary and Community Sectors Steering Group (July – November 2014). Member, Children and Young People Collaborative Steering Group. |
| Actions taken | None |
| Jo Dwyer | |
| Employment | Clinical Specialist Occupational Therapist, Lewisham Team for Adults With Learning Disabilities, Guys and St Thomas's NHS Foundation Trust |
| Personal pecuniary interest | None |
| Personal family interest | None |
| Non-personal pecuniary interest | None |
| Personal non-pecuniary interest | None |
| Actions taken | None |
| David Glynn | |
| Employment | Health Economist, NCCMH (September 2014 onwards) |
| Personal pecuniary interest | None |
| Personal family interest | None |
| Non-personal pecuniary interest | None |
| Personal non-pecuniary interest | None |
| Actions taken | None |
| Bronwyn Harrison | |
| Employment | Systematic Reviewer, NCCMH |
| Personal pecuniary interest | None |
| Personal family interest | None |
| Non-personal pecuniary interest | None |
| Personal non-pecuniary interest | None |
| Actions taken | None |
| Angela Hassiotis | |
| Employment | Professor, University College London Honorary Consultant Psychiatrist, Camden & Islington Foundation Trust |
| Personal pecuniary interest | None |
| Personal family interest | None |
| Non-personal pecuniary interest | Current National Institute for Health Research Health Technology Assessment grant on the evaluation of positive behaviour support. Honoraria received by Novartis for consultancy on treatments for Fragile X syndrome. Other research funding (National Institute for Health Research – Research for Patient Benefit). Associate Editor, Journal of Policy and Practice in Intellectual and Developmental Disabilities. Associate Editor, Journal of Applied Research in Intellectual Disabilities. Editorial Board of Advances in Mental Health Intellectual Disabilities. Treasurer, Faculty of the Psychiatry of Intellectual Disabilities. Honoraria for lectures. Conducting a study looking at music therapy and people with a learning disability. Co-applicant on a National Institute for Health Research Health Technology Assessment funded study, evaluating music therapy for children with autism. |
| Personal non-pecuniary interest | Published on challenging behaviour for some years following research carried out under own supervision. |
| Actions taken | None |
| Phil Howell | |
| Employment | Physical Intervention Accreditation Scheme Manager and positive behaviour support Consultant, British Institute of Learning Disabilities. |
| Personal pecuniary interest | None |
| Personal family interest | None |
| Non-personal pecuniary interest | None |
| Personal non-pecuniary interest | None |
| Actions taken | None |
| Simon Jones | |
| Employment | Head of Behavioural Support, Care UK |
| Personal pecuniary interest | Positive Range of Options to Avoid Crisis and use Therapy, Strategies for Crisis Intervention and Prevention (PROACT-SCIPr-UK) trainer, which is a British Institute of Learning Disabilities accredited physical intervention methodology. |
| Personal family interest | None |
| Non-personal pecuniary interest | None |
| Personal non-pecuniary interest | None |
| Actions taken | None |
| Elena Marcus | |
| Employment | Research Assistant, NCCMH (August 2014 onwards) |
| Personal pecuniary interest | None |
| Personal family interest | None |
| Non-personal pecuniary interest | None |
| Personal non-pecuniary interest | None |
| Actions taken | None |
| Ifigeneia Mavranezouli | |
| Employment | Senior Health Economist, NCCMH |
| Personal pecuniary interest | None |
| Personal family interest | None |
| Non-personal pecuniary interest | None |
| Personal non-pecuniary interest | None |
| Actions taken | None |
| Richard Mills | |
| Personal pecuniary interest | Research Director at Research Autism. AT-Autism (Autism Training Ltd) – Associate. London Borough of Redbridge – training in clinical interviewing techniques for Approved Mental Health Professionals when working with individuals with Asperger's syndrome and autism in conjunction with AT-Autism. Laskaridou Foundation Athens, Greece – Mentor/teacher programme for children with autism and challenging behaviour in conjunction with AT-Autism. Associate, the Tizard Centre, University of Kent at Canterbury – Curriculum development Social Work Training. |
| Personal family interest | None |
| Non-personal pecuniary interest | Joint recipient of a grant from Bristol University to implement focus groups for service users and carers in order to inform GP practice. Staff training Jersey Employment Trust through Research Autism. |
| Personal non-pecuniary interest | Fellow, Royal Society of Medicine. Member, International Society for Autism Research, Honorary Research Fellow at the Department of Psychology, University of Bath. Senior Research Fellow, Bond University, Queensland, Australia. Member, Northern Ireland Advisory Committee on Autism Research. |
| Actions taken | None |
| David Newton | |
| Employment | Team Manager, Adult Safeguarding Quality Assurance Team, Adult Social Care Directorate, Nottingham City Council. |
| Personal pecuniary interest | Employed by a local authority; involves liaison with local authority and local clinical commissioning group contracts and commissioning groups and quality assurance. Some incidental input into local authority core contract and service specification content. |
| Personal family interest | None |
| Non-personal pecuniary interest | None |
| Personal non-pecuniary interest | None |
| Actions taken | None |
| Steve Noone | |
| Employment | Consultant Clinical Psychologist, Northumberland, Tyne and Wear Foundation NHS Trust. |
| Personal pecuniary interest | None |
| Personal family interest | None |
| Non-personal pecuniary interest | None |
| Personal non-pecuniary interest | None |
| Actions taken | None |
| Cheryl Palmer | |
| Employment | Research Assistant, NCCMH. |
| Personal pecuniary interest | None |
| Personal family interest | None |
| Non-personal pecuniary interest | None |
| Personal non-pecuniary interest | None |
| Actions taken | None |
| Phil Perkins | |
| Employment | Senior Community Learning Disability Nurse for Children and Young People, Surrey and Borders Partnership NHS Foundation Trust. |
| Personal pecuniary interest | None |
| Personal family interest | None |
| Non-personal pecuniary interest | None |
| Personal non-pecuniary interest | None |
| Actions taken | None |
| Victoria Slonims | |
| Employment | Senior Consultant Speech and Language Therapist; Honorary Senior Lecturer, Evelina Children's Hospital, Guy's and St Thomas' NHS Foundation Trust. |
| Personal pecuniary interest | Autism Diagnostic Observation Schedule trainer. |
| Personal family interest | None |
| Non-personal pecuniary interest | None |
| Personal non-pecuniary interest | None |
| Actions taken | None |
| Clare Taylor | |
| Employment | Senior Editor, NCCMH. |
| Personal pecuniary interest | None |
| Personal family interest | None |
| Non-personal pecuniary interest | None |
| Personal non-pecuniary interest | None |
| Actions taken | None |
| Craig Whittington | |
| Employment | Associate Director Associate Director (Clinical Effectiveness)/Senior Systematic Reviewer, NCCMH (September 2014 onwards). |
| Personal pecuniary interest | Member of the scientific steering committee for a US company Doctor Evidence Llc. Doctor Evidence is,a specialty software platform and services company with clients from across the healthcare ecosystem. The role includes a share option (3 year vesting) and a meeting stipend. |
| Personal family interest | None |
| Non-personal pecuniary interest | None |
| Personal non-pecuniary interest | None |
| Actions taken | None |
| Keith Wyncoll | |
| Employment | Carer representative |
| Personal pecuniary interest | Occasional trainer, The Challenging Behaviour Foundation. Lay member, NHS England Patient and Public Voice Assurance Group – Specialised Commissioning. |
| Personal family interest | None |
| Non-personal pecuniary interest | None |
| Personal non-pecuniary interest | None |
| Actions taken | None |
- Declarations of interests by Guideline Development Group members - Challenging B...Declarations of interests by Guideline Development Group members - Challenging Behaviour and Learning Disabilities
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