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National Guideline Alliance (UK). Mental Health Problems in People with Learning Disabilities: Prevention, Assessment and Management. London: National Institute for Health and Care Excellence (NICE); 2016 Sep. (NICE Guideline, No. 54.)
American Economic Association’s electronic bibliography
Excerpta Medica Database
Medical Literature Analysis and Retrieval System Online
National Health Service
Economic Evaluation Database
National Institute for Health and Care Excellence
in-process and other non-indexed citations from MEDLINE
Psychological Information Database
A broad preliminary search of the literature was undertaken in September 2014 to obtain an overview of the issues likely to be covered by the scope, and to help define key areas. Searches were limited to full and partial economic evaluations, and quality of life studies.
Further information about this process can be found in Developing NICE guidelines: the manual.
Each search was constructed using the groups of terms set out in Text Box 1. The selection of search terms was kept broad to maximise retrieval of evidence in a wide range of areas of interest to the Guideline Committee.
Summary of systematic search strategies: Search strategy construction.
| # | searches |
|---|---|
| 1 | exp *developmental disorder/or *intellectual impairment/or exp *mental deficiency/or exp *learning disorder/ |
| 2 | 1 use emez |
| 3 | developmental disabilities/or exp intellectual disability/or exp learning disorders/or mentally disabled persons/ |
| 4 | 3 use mesz, prem |
| 5 | exp developmental disabilities/or exp intellectual development disorder/or “intellectual development disorder (attitudes toward)”/or exp learning disabilities/ |
| 6 | 5 use psyh |
| 7 | ((intellect* adj (deficien* or difficult* or disab* or disorder* or impair* or handicap* or incapacit* or handicap* or subnorm* or sub*1 average or sub*1 average or sub*1 norm*)) or (low*2 adj2 intellect*) or (learning adj (deficien* or difficult* or disab* or disorder* or handicap* or impair* or incapacit* or handicap* or subnorm* or sub*1 average or sub*1 average or sub*1 norm*)) or (mental* adj (deficien* or disab* or handicap* or impair* or handicap* or incapacit* or retard* or subnorm* or sub*1 average or sub*1 average or sub*1 norm*))).ti,ab. |
| 8 | ((subaverage or sub*1 average or subnormal or sub*1 normal*) adj3 (child* or cognit* or intel*)).tw. |
| 9 | ((development* or neurodevelopment*) adj disab*).tw. |
| 10 | (education* adj5 subnorm*).tw. |
| 11 | (cretin* or feeble-minded* or imbecil* or moron*).tw. |
| 12 | (multipl* handicap* or sever* handicap* or handicap* child* or multiple disabilit* or developmental delay*).ti,ab. |
| 13 | *down syndrome/ |
| 14 | 13 use emez |
| 15 | angelman syndrome/or down syndrome/or fragile x syndrome/ |
| 16 | 15 use mesz, prem |
| 17 | down’s syndrome/ |
| 18 | 17 use psyh (((angelman or happy puppet) adj2 syndrom*) or (down*1 adj (disease or |
| 19 | syndrome*)) or bell martin or fragile x or gillian turner or martin bell or turner gillian or x chromosome fragility or (escalante* adj (disease or syndrome*))).ti,ab. |
| 20 | (special* adj2 (educat* or need*)).ti,ab,hw. |
| 21 | or/2,4,6–12,14,16,18–20 |
mesh descriptor: [developmental disabilities] this term only
mesh descriptor: [intellectual disability] explode all trees
mesh descriptor: [learning disorders] explode all trees
mesh descriptor: [mentally disabled persons] this term only
mesh descriptor: [angelman syndrome] this term only
mesh descriptor: [down syndrome] this term only
mesh descriptor: [fragile x syndrome] this term only
((intellect* near/1 (deficien* or difficult* or disab* or disorder* or impair* or handicap* or incapacit* or handicap* or subnorm* or “sub* average” or “sub* average” or “sub* norm*”)) or (low* near/2 intellect*) or (learning near/1 (deficien* or difficult* or disab* or disorder* or handicap* or impair* or incapacit* or handicap* or subnorm* or “sub* average” or “sub* average” or “sub* norm*”)) or (mental* near/1 (deficien* or disab* or impair* or handicap* or incapacit* or retard* or subnorm* or “sub* average” or “sub* average” or “sub* norm*”)) or ((subaverage or “sub* average” or subnormal or “sub* normal*”) near/3 (child* or cognit* or intel*)) or ((development* or neurodevelopment*) near/1 disab*) or (education* near/5 subnorm*) or cretin* or “feeble-minded*” or imbecil* or moron* or handicap* or “multiple disabilit*” or “developmental delay*” or ((angelman or “happy puppet”) near/2 syndrom*) or (down* near/1 (disease or syndrome*)) or “bell martin” or “fragile x” or “gillian turner” or “martin bell” or “turner gillian” or “x chromosome fragility” or (escalante* near/1 (disease or syndrome*)) or “cerebroatrophic hyperammonemia*” or (kanners near/1 (disorder* or syndrome*)) or handicap*):ti, ab,kw
(special* near/2 (educat* or need*)):ti,ab,kw
#1 or #2 or #3 or #4 or #5 or #6 or #7 or #8 or #9
| 1 | budget/or exp economic evaluation/or exp fee/or funding/or exp health care cost/or health economics/or exp pharmacoeconomics/or resource allocation/ |
| 2 | 1 use emez |
| 3 | exp budgets/or exp “costs and cost analysis”/or economics/or exp economics, hospital/or exp economics, medical/or economics, nursing/or economics, pharmaceutical/or exp “fees and charges”/or exp resource allocation/or value of life/ |
| 4 | 3 use mesz, prem, prem |
| 5 | exp “costs and cost analysis”/or “cost containment”/or economics/or finance/or funding/or health care economics/or pharmacoeconomics/or exp professional fees/or resource allocation/ |
| 6 | 5 use psyh |
| 7 | (cost* or economic* or pharmacoeconomic* or pharmaco economic*).ti. or (cost* adj2 (effective* or utilit* or benefit* or minimi*)).ab. or economic model*.tw. or (budget* or fee or fees or financ* or price or prices or pricing or resource* allocat* or (value adj2 (monetary or money))).ti,ab. |
| 8 | decision theory/or decision tree/or monte carlo method/or *nonbiological model/or (statistical model/and exp economic aspect/) or stochastic model/or *theoretical model/ |
| 9 | 8 use emez |
| 10 | exp decision theory/or markov chains/or exp models, economic/or *models, organizational/or *models, theoretical/or monte carlo method/ |
| 11 | 10 use mesz, prem, prem |
| 12 | exp decision theory/or exp stochastic modeling/ |
| 13 | 12 use psyh |
| 14 | ((decision adj (analy* or model* or tree*)) or economic model* or markov or monte carlo).ti,ab. |
| 15 | quality adjusted life year/or “quality of life index”/or short form 12/or short form 20/or short form 36/or short form 8/or sickness impact profile/ |
| 16 | 15 use emez |
| 17 | quality-adjusted life years/or sickness impact profile/ |
| 18 | 17 use mesz, prem, prem |
| 19 | “*quality of life”/ |
| 20 | 19 use psyh |
| 21 | (((disability or quality) adj adjusted) or (adjusted adj2 life)).ti,ab. |
| 22 | (disutili* or (utilit* adj1 (health or score* or value* or weigh*))).ti,ab. |
| 23 | (health year equivalent or hye or hyes).ti,ab. |
| 24 | (daly or qal or qald or qale or qaly or qtime* or qwb*).ti,ab. |
| 25 | discrete choice.ti,ab. |
| 26 | (euroqol* or euro qol* or eq5d* or eq 5d*).ti,ab. |
| 27 | (hui or hui1 or hui2 or hui3).ti,ab. |
| 28 | ((quality adj2 (wellbeing or well being)) or quality adjusted life or qwb or (value adj2 (money or monetary))).ti,ab. |
| 29 | (qol or hql* or hqol*or h qol* or hrqol or hr qol or hr ql or hrql).ti,ab. |
| 30 | rosser.ti,ab. |
| 31 | sickness impact profile.ti,ab. |
| 32 | (standard gamble or time trade* or tto or willingness to pay or wtp).ti,ab. |
| 33 | (sf36 or sf 36 or short form 36 or shortform 36 or sf thirtysix or sf thirty six or shortform thirtysix or shortform thirty six or short form thirtysix or short form thirty six).ti,ab. |
| 34 | (sf6 or sf 6 or short form 6 or shortform 6 or sf six or sfsix or shortform six or short form six).ti,ab. |
| 35 | (sf12 or sf 12 or short form 12 or shortform 12 or sf twelve or sftwelve or shortform twelve or short form twelve).ti,ab. |
| 36 | (sf16 or sf 16 or short form 16 or shortform 16 or sf sixteen or sfsixteen or shortform sixteen or short form sixteen).ti,ab |
| 37 | (sf20 or sf 20 or short form 20 or shortform 20 or sf twenty or sftwenty or shortform twenty or short form twenty).ti,ab. |
| 38 | or/2,4,6–7,9,11,13–14,16,18,20–37 |
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