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Age-related macular degeneration: diagnosis and management. London: National Institute for Health and Care Excellence (NICE); 2018 Jan. (NICE Guideline, No. 82.)
Membership of the Age-Related Macular Degeneration Guideline Committee
The Committee will operate as an advisory Committee to NICE’s Board, developing a clinical guideline on Age-Related Macular Degeneration.
The terms of reference and standing orders for the Committee can be found in appendix D of Developing NICE guidelines: the manual.
Membership list
| Agreed Constituency | Name | Job Title, Organisation | Comment |
|---|---|---|---|
| Chair | |||
| Chair | Waqaar Shah | Royal College of General Practitioners Clinical Expert in Eye Health | |
| Core members / Members | |||
| Optometrist | Katy Barnard | Senior Optometrist and Clinical Lead for Low Vision, Moorfields Eye Hospital | |
| Ophthalmologist | Nicholas Beare | Consultant Ophthalmologist, Royal Liverpool University Hospital | From February 2016 |
| Eye Clinic Liaison Officer | Cathie Burke | Service Manager, Being There North, Action for Blind People | |
| Consultant Ophthalmologist | Usha Chakravarthy | Professor of Ophthalmology and Vision Sciences, The Belfast Health and Social Care Trust | Resigned September 2015 |
| Consultant Ophthalmologist | Alexander Foss | Consultant Ophthalmologist, Nottingham University Hospital Trust | |
| Specialist Ophthalmology Nurse | Mary Freeman | Nurse Consultant, Ophthalmology, Sheffield Teaching Hospitals NHS Foundation Trust | |
| Patient/carer | Carol McCletchie | Patient/carer member | |
| Commissioner | Ellen Rule | Executive Director of Transformation and Service Redesign, Gloucestershire Clinical Commissioning Group | |
| Optometrist | Mary-Ann Sherratt | Optometrist, University Hospitals Bristol NHS Foundation Trust | |
| Patient/carer | Elizabeth Wick | Patient and Specialist Adviser for the Care Quality Commission | |
| Patient/carer | Cathy Yelf | Carer and Macular Society Chief Executive Officer | |
| Topic expert members | |||
| Public Health expert | Jennifer Evans | Lecturer, London School of Hygiene and Tropical Medicine | |
| General Practitioner | Andy Charley | General Practitioner, Northgate Medical Practice, Canterbury | Full member until August 2016. From August 2016 co-opted expert |
Date last reviewed: 10/11/2017
Declaration of Interests
The effective management of conflicts of interests is an essential element in the development of the guidance and advice that NICE publishes. Please refer to the NICE website for the Policy on Conflicts of Interest.
| Name | Job title, organisation | Declarations of Interest, date declared | Type of interest | Decision taken |
|---|---|---|---|---|
| Nicholas Beare (Guideline Committee member) | Consultant Ophthalmologist, Royal Liverpool University Hospital | January 2016 Travel expenses to attend Association of Research in Vision and Ophthalmology (ARVO) conference Denver, USA paid by Bayer May 2015. | Non-specific personal financial interest | Declare and participate |
| Nicholas Beare (Guideline Committee member) | Consultant Ophthalmologist, Royal Liverpool University Hospital | January 2016 Paid honorarium for advisory board on retinal vein occlusion by Norvartis Sept 2014. | Non-specific personal financial interest | Declare and participate |
| Nicholas Beare (Guideline Committee member) | Consultant Ophthalmologist, Royal Liverpool University Hospital | January 2016 Paid honorarium for advisory board on diabetic macular oedema by Almera Sciences June 2014. | Non-specific personal financial interest | Declare and participate |
| Nicholas Beare (Guideline Committee member) | Consultant Ophthalmologist, Royal Liverpool University Hospital | January 2016 Attendance at advisory board on non- infectious uveitis for Santen, March 2016 | Non-specific personal financial interest | Declare and participate |
| Nicholas Beare (Guideline Committee member) | Consultant Ophthalmologist, Royal Liverpool University Hospital | May 2016 Provision of academic support to AbbVie (2016-2017) in the identification of research questions for uveitis. | Non-specific personal non-financial interest | Declare and participate |
| Nicholas Beare (Guideline Committee member) | Consultant Ophthalmologist, Royal Liverpool University Hospital | August 2016 Ophthalmology supervisor to an Ophthalmology trainee who has received an award from Bayer to study Post-Ebola uveitis in Sierra Leone. The award is from Bayer’s Global Ophthalmology Award Programme and is paid to the University of Liverpool Institute of Translational Medicine. | Non-specific, non-personal financial interest | Declare and participate |
| Cathie Burke (Guideline Committee member) | Eye Clinic Liaison Officer | June 2015 Delivery of Low Vision Training for Specsavers’ Dispensing Opticians at 6 Locations and also at their National Conference (2014/15). Remuneration received for the National Conference as this was Sunday working – all other remuneration was paid to employers, Action for Blind People. | Specific, non-personal financial interest | Declare and participate |
| Cathie Burke (Guideline Committee member) | Eye Clinic Liaison Officer | September 2015 Attendance at macular degeneration team building meal funded by Novartis. | Specific, non-personal financial interest | Declare and participate |
| Cathie Burke (Guideline Committee member) | Eye Clinic Liaison Officer | February 2016 Hosted a Macular Degeneration Awareness Day. Attended by the Macular Society and local charities. Refreshments provided by Bayer. | Specific, non-personal financial interest | Non-personal financial interest |
| Usha Chakravarthy (resigned September 2015) (Guideline Committee member) | Professor of Ophthalmology and Vision Sciences, The Belfast Health and Social Care Trust | June 2015 Employer receives grants for clinical trials from Ophthotech and Notal Vision. | Non-specific, non-personal financial interest | Declare and participate |
| Usha Chakravarthy (resigned September 2015) (Guideline Committee member) | Professor of Ophthalmology and Vision Sciences, The Belfast Health and Social Care Trust | June 2015 Received personal reimbursement for attending an advisory board meeting for Novartis on the use of Fovista in wet AMD in January 2015. | Specific, Personal financial interest | Withdraw from discussions on treatment |
| Usha Chakravarthy (resigned September 2015) (Guideline Committee member) | Professor of Ophthalmology and Vision Sciences, The Belfast Health and Social Care Trust | September 2015 Member of Northern Ireland Clinical Research Network supporting pharmaceutical trials in AMD. | Specific non-personal financial interest | Declare and participate |
| Andy Charley (co-opted expert) | General Practitioner with a specialist interest in Ophthalmology, Northgate Medical Practice, Canterbury | June 2015 RCGP curriculum Guardian for ophthalmology | Non-specific personal non-financial interest | Declare and participate |
| Andy Charley (co-opted expert) | General Practitioner with a specialist interest in Ophthalmology, Northgate Medical Practice, Canterbury | March 2016 Attendance at colleague’s retirement event where meal/refreshments were paid for by Nicox. | Non-specific personal non-financial interest | Declare and participate |
| Jennifer Evans (co-opted expert) | Lecturer, London School of Hygiene and Tropical Medicine | June 2015 Coordinating editor for Cochrane Eyes and Vision. | Non-specific personal non-financial interest | Declare and participate |
| Jennifer Evans (co-opted expert) | Lecturer, London School of Hygiene and Tropical Medicine | August 2015 Co-author on the following Cochrane reviews that are relevant to the guidelines: Photodynamic therapy for neovascular age-related macular degeneration (2007). Omega 3 fatty acids for preventing or slowing the progression of age-related macular degeneration (2015) Antioxidant vitamin and mineral supplements for preventing age-related macular degeneration (2012) Antioxidant vitamin and mineral supplements for slowing the progression of age-related macular degeneration (2012) Laser treatment of drusen to prevent progression to advanced age-related macular degeneration (2009). | Specific, personal non-financial interest | Declare and participate |
| Jennifer Evans (co-opted expert) | Lecturer, London School of Hygiene and Tropical Medicine | September 2017 Will be presenting at the Glaucoma Society, on grading evidence for clinical guidelines. No honorarium | Non-specific personal non-financial interest | Declare and participate |
| Alexander Foss (Guideline Committee member) | Consultant Ophthalmologist, Nottingham University Hospital Trust | December 2015 Chief investigator for the TANDEM trial set-up by the East Midlands Special Commissioning Group. Administrative costs are met by NHS England and the running costs are met by the local clinical commissioning groups (CCG). Research nurse funded by the CCG. The funding for this post is to cover the cost of data collection and was part of the service commissioning process. The unit makes no profit from participating in this research. | Specific, non-personal financial interest | Declare and participate |
| Alexander Foss (Guideline Committee member) | Consultant Ophthalmologist, Nottingham University Hospital Trust | January 2016 Publication of patient views on macular degeneration study | Specific, personal, non-financial interest | Declare and participate |
| Alexander Foss (Guideline Committee member) | Consultant Ophthalmologist, Nottingham University Hospital Trust | April 2016 Speaker at Royal College of GP’s (February 2016) study day on age related macular degeneration to GPs, no payment received. | Specific, personal non-financial interest | Declare and participate |
| Alexander Foss (Guideline Committee member) | Consultant Ophthalmologist, Nottingham University Hospital Trust | December 2016 Speaker on generating value in Ophthalmology, Hellish Decisions in Healthcare 2017. Travel expenses paid. | Non-specific, personal, financial interest | Declare and participate Expenses paid in line with NICE’s travel and subsistence policy |
| Mary Freeman (Guideline Committee member) | Nurse Consultant, Ophthalmology, Sheffield Teaching Hospitals NHS Foundation Trust | June 2015 Received honoraria from Novartis for chairing a medical retina education day for nurses and other healthcare professionals in 2014. | Non specific, personal financial interest | Declare and participate. |
| Mary Freeman (Guideline Committee member) | Nurse Consultant, Ophthalmology, Sheffield Teaching Hospitals NHS Foundation Trust | June 2015 Gave a lecture in May 2015 on OCT/ fluorescein angiography interpretation. Travel expenses received and registration to the College of Ophthalmologist annual congress, supported by Nicox. | Non specific, personal financial interest | Declare and participate |
| Mary Freeman (Guideline Committee member) | Nurse Consultant, Ophthalmology, Sheffield Teaching Hospitals NHS Foundation Trust | August 2015 Delivered Bayer masterclass on diabetic eye disease (honorarium donated to charity) | Non-specific non-personal financial interest | Declare and participate |
| Mary Freeman (Guideline Committee member) Nurse Consultant, Ophthalmolo gy, Sheffield Teaching Hospitals NHS Foundation Trust | Nurse Consultant, Ophthalmology, Sheffield Teaching Hospitals NHS Foundation Trust | October 2015 Delegate at a seminar sponsored by MSD | Non-specific personal non-financial interest | Declare and participate |
| Mary Freeman (Guideline Committee member) | Nurse Consultant, Ophthalmology, Sheffield Teaching Hospitals NHS Foundation Trust | April 2016 Involved in the LEAVO trial, injecting the drugs (Avastin, Eylea, Lucentis). NHIR funded, no other involvement in the trial. | Specific personal non-financial interest | Declare and participate |
| Mary Freeman (Guideline Committee member) | Nurse Consultant, Ophthalmology, Sheffield Teaching Hospitals NHS Foundation Trust | June 2016 Contribution to a publication on the identification, diagnosis and prompt treatment of diabetic macular oedema (DMO). The publication is supported by Bayer. The publication will be non-drug related and will not have any specific recommendations relating to drug choice. An honorarium was received. | Non-specific personal financial interest | Declare and participate |
| Mary Freeman (Guideline Committee member) | Nurse Consultant, Ophthalmology, Sheffield Teaching Hospitals NHS Foundation Trust | September 2017 Attended an investigator meeting in Milan sponsored by Aerie Pharmaceuticals with a view to starting a “prospective, doublemasked, randomized, multicenter, 6-month study, assessing the safety and ocular hypotensive efficacy of an Ophthalmic Solution compared to GANFORT® (bimatoprost 0.03% / timolol 0.5% Ophthalmic Solution) in subjects with elevated intraocular pressure”. | Specific personal non-financial interest | Declare and participate |
| Carol McCletchie | Patient/carer member | February 2016 Attended a Macular Degeneration Awareness Day. Refreshments provided by Bayer. | Specific personal non-financial interest | Declare and participate |
| Ellen Rule (Guideline Committee member) | Executive Director of Transformation and Service Redesign, Gloucestershire Clinical Commissioning Group | September 2015 Pharmaceutical support for CCG working. | Non-specific non-personal financial interest | Declare and participate |
| Ellen Rule (Guideline Committee member) | Executive Director of Transformation and Service Redesign, Gloucestershire Clinical Commissioning Group | October 2015 Executive sponsor of a project funded by Bayer, undertaking health economic modelling on atrial fibrillation. | Non-specific personal non-financial interest | Declare and participate |
| Waqaar Shah (Guideline Committee Chair) | Royal College of General Practitioners Clinical Expert in Eye Health | January 2015 Advisory role on eye health to the Royal College of General Practitioners (RCGP) and for the UK Vision strategy, to implement the World Health Organization (WHO) recommendation to reduce avoidable blindness worldwide by 2020. | Non specific Personal non-financial interest | Declare and participate |
| Waqaar Shah (Guideline Committee Chair) | Royal College of General Practitioners Clinical Expert in Eye Health | January 2015 Receives occasional fees for speaking at academic GP or ophthalmology conferences such as Pulse magazine conference, the Best Practice conference and the UK Vision conference. | Non-specific personal financial and nonfinancial interests | Declare and participate |
| Waqaar Shah (Guideline Committee Chair) | Royal College of General Practitioners Clinical Expert in Eye Health | January 2015 Acts as the RCGP champion in Eye Health and in this role, commissioned an educational book on Low Vision which is used in GP practices across the UK. Published in Aug/ Sept 2014. | Non-specific personal non-financial interest | Declare and participate |
| Waqaar Shah (Guideline Committee Chair) | Royal College of General Practitioners Clinical Expert in Eye Health | June 2016 Chaired 3 study days for Royal College of GP’s (2 days in February, and 1 day in June 2016),on ophthalmology, expenses paid only | Non-specific personal non-financial interest | Declare and participate |
| Waqaar Shah (Guideline Committee Chair) | Royal College of General Practitioners Clinical Expert in Eye Health | March 2016 Attendance at colleague’s retirement event where meal/refreshments were paid for by Nicox. | Non-specific personal non-financial interest | Declare and participate |
| Waqaar Shah (Guideline Committee Chair) | Royal College of General Practitioners Clinical Expert in Eye Health | April 2016 Speaker at Westminster Health Forum, on the future of pharmaceutical pricing, transparency and access to medicines (not drug specific). | Non-specific personal non-financial interest | Declare and participate |
| Waqaar Shah (Guideline Committee Chair) | Royal College of General Practitioners Clinical Expert in Eye Health | April 2016 Invited to open a new Moorfields Eye Hospital, as RCGP Clinical Expert in Ophthalmology. | Non-specific personal non-financial interest | Declare and participate |
| Waqaar Shah (Guideline Committee Chair) | Royal College of General Practitioners Clinical Expert in Eye Health | December 2016 Chaired an education session for GP’s on Ophthalmology (payment received) | Non-specific personal financial interest | Declare and participate |
| Waqaar Shah (Guideline Committee Chair) | Royal College of General Practitioners Clinical Expert in Eye | February 2017 Presented at a conference 100% OPTICAL, at a session organised by the Worshipful Company of Spectacle Makers. The topic was community optometry, and did not include AMD. No payment received. | Non-specific personal non-financial interest | Declare and participate |
| Waqaar Shah (Guideline Committee Chair) | Royal College of General Practitioners Clinical Expert in Eye | September 2017 Speaker at Westminster Health Forum Keynote Seminar October 2017. On the potential impact of new NICE guidance - glaucoma, age-related macular degeneration and cataract surgery. No honorarium paid | Specific personal non-financial interest | Declare and participate Presentation made at request of NICE and focused on recommend ations from current NICE guidance |
| Mary-Ann Sherratt (Guideline Committee member) | Optometrist, University Hospitals Bristol NHS Foundation Trust | June 2015 Vice President and Trustee for The College of Optometrists. | Non-specific personal non-financial interest | Declare and participate |
| Mary-Ann Sherratt (Guideline Committee member) | Optometrist, University Hospitals Bristol NHS Foundation Trust | June 2015 College of Optometrists representative on the Clinical Council for Eye Health commissioning. | Specific personal non-financial interest | Declare and participate |
| Mary-Ann Sherratt (Guideline Committee member) | Optometrist, University Hospitals Bristol NHS Foundation Trust | October 2015 Delegate at a seminar on Diabetic macular oedema sponsored by Bayer. | Non-specific personal non-financial interest | Declare and participate |
| Mary-Ann Sherratt (Guideline Committee member) | Optometrist, University Hospitals Bristol NHS Foundation Trust | March 2016 Attendance at colleague’s retirement event where meal/refreshments were paid for by Nicox. | Non-specific personal non-financial interest | Declare and participate |
| Mary-Ann Sherratt (Guideline Committee member) | Optometrist, University Hospitals Bristol NHS Foundation Trust | December 2016 Attended a diabetic retinopathy education event in November. The event was sponsored by Bayer. | Non-specific personal non-financial interest | Declare and participate |
| Elizabeth Wick (Guideline Committee member) | Patient and Specialist Adviser for the Care Quality Commission | December 2016 In January 2017 speaker at a RCGP event, arranged by the RNIB. The talk was to a group of GP’s about living with sight loss from a patient viewpoint. £100 payment. | Specific, personal financial interest | Declare and participate This was a presentation of a lay perspective on living with sight loss which did not endorse or promote any drugs or services and was purely educational. The presentation slides were reviewed and it was agreed that they did not constitute a conflict of interest. |
| Elizabeth Wick (Guideline Committee member) | Patient and Specialist Adviser for the Care Quality Commission | January 2017 Interview for the Mirror newspaper, about experience of living with AMD. No payment received | Specific personal non-financial interest | Declare and participate |
| Elizabeth Wick (Guideline Committee member) | Patient and Specialist Adviser for the Care Quality Commission | February 2017 Acted as an observer for national recruitment interviews of F2 Ophthalmologist’s for the Royal College of Ophthalmologists. Expenses only received | Non-specific personal non-financial interest | Declare and participate |
| Judith Hughes Observer | (PhD student, observer undertaking research) | October 2015 Small shareholding in Pfizer (from previous employment, which ended in 2007). | Specific, personal financial interest | Declare and continue to observe and undertake research with the committee. No input into discussion of evidence or in making recommendations |
Date last reviewed: 25/09/2017
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