Contributions of authors

Tamara Ondruskova (https://orcid.org/0000-0003-4904-8040) (Research Assistant, Psychology) was responsible for data collection and the write-up of the final study report.

Rachel Royston (https://orcid.org/0000-0002-9901-2284) (Clinical Trial Manager, Neurodevelopmental Disorders) conducted the day-to-day management of the trial and supported the write-up of the study report.

Michael Absoud (https://orcid.org/0000-0002-0577-1897) (Consultant, Paediatric Neurodisability) was a recruitment lead and supported the write-up for publication.

Gareth Ambler (https://orcid.org/0000-0002-5322-7327) (Associate Professor, Medical Statistics) oversaw the completion of the statistical analysis for the trial.

Chen Qu (https://orcid.org/0000-0001-8746-8105) (Research Associate, Statistical Science) conducted the statistical analyses for the trial and prepared the results for publication.

Jacqueline Barnes (https://orcid.org/0000-0001-5566-8997) (Emerita Professor of Psychology, Human Development) is an early intervention expert and supported all aspects of the process evaluation and the collection and coding of observational data.

Rachael Hunter (https://orcid.org/0000-0002-7447-8934) (Associate Professor, Health Economics) oversaw the completion of the health economics analysis.

Monica Panca (https://orcid.org/0000-0002-4031-6478) (Health Economist, Primary Care and Population Health) conducted the health economic analysis for the trial and prepared the results for publication.

Marinos Kyriakopoulos (https://orcid.org/0000-0002-4594-2646) (Consultant Psychiatrist, Child and Adolescent Psychiatry) was a patient and public involvement lead.

Kate Oulton (https://orcid.org/0000-0002-5778-3849) (Senior Research Fellow, Qualitative methodology and process evaluation) oversaw the interpretation, analysis and write-up of qualitative data for the process evaluation.

Eleni Paliokosta (https://orcid.org/0000-0003-4330-965X) (Child and Adolescent Psychiatrist, Neurodevelopmental Disorders) was one of the Principal Investigators and a recruitment lead for the North London site and contributed intellectual content to the report and other publications.

Aditya Sharma (https://orcid.org/0000-0003-4632-4521) (Clinical Academic Psychiatrist, Child and Adolescent Psychiatry) was one of the Principal Investigators and a recruitment lead for the Northeast England site and contributed intellectual content to the report and other publications.

Vicky Slonims (https://orcid.org/0000-0003-3339-2365) (Senior Speech and Language Therapist, Children’s Neuroscience) was a recruitment lead for the South London site, provided therapist supervision and supported with the development of a fidelity assessment for the process evaluation.

Una Summerson (https://orcid.org/0000-0001-5730-2147) (Head of Policy and Public Affairs, Disabled Children) co-ordinated patient and public involvement activities, facilitated PPI meetings for this study, and also read and commented on the final report.

Alastair Sutcliffe (https://orcid.org/0000-0001-8542-6155) (Consultant Paediatrician, Community Child Health) was a trialist and pathways lead and provided expertise on the running of the trial, also contributed to the funding application, trial conduct including promotion of the study. Contributed to the interpretation of findings and the report content.

Megan Thomas (https://orcid.org/0000-0002-4358-6166) (Associate Professor and Consultant, Paediatric Neurodisability) was one of the Principal Investigators and a recruitment lead for the Northwest England site and contributed intellectual content to the report and other publications.

Brindha Dhandapani (https://orcid.org/0000-0003-2032-6844) (Consultant Community Paediatrician) was a clinician at the Lewisham and Greenwich NHS Trust and recruited over 10 participants to the study. Authorship was used as an incentive to support recruitment.

Helen Leonard (https://orcid.org/0000-0003-4148-6281) (Consultant in Paediatric Neurodisability) was a clinician at the Newcastle Upon Tyne NHS Trust and recruited over 10 participants to the study. Authorship was used as an incentive to support recruitment.

Angela Hassiotis (https://orcid.org/0000-0002-9800-3909) (Professor and Honorary Consultant Psychiatrist) was the study chief investigator and was involved with all aspects and oversight of the trial. She reviewed and contributed to all iterations of the report.

Publications

Absoud M, Wake H, Ziriat M, Hassiotis A. Managing challenging behaviour in children with possible learning disability. BMJ 2019;365.

Farris O, Royston R, Absoud M, Ambler G, Barnes J, Hunter R, et al. Clinical and cost effectiveness of a parent mediated intervention to reduce challenging behaviour in pre-schoolers with moderate to severe intellectual disability (EPICC-ID) study protocol: a multi-centre, parallel-group randomised controlled trial. BMC Psychiatry 2020;20:1.

Paulauskaite L, Farris O, Spencer HM, EPICC-ID Group, Hassiotis A. My son can’t socially distance or wear a mask: how families of preschool children with severe developmental delays and challenging behavior experienced the COVID-19 pandemic. J Mental Health Res Intellect Disabil 2021;14:225–36.

Data-sharing statement

All data requests should be submitted to the corresponding author for consideration. Access to anonymised data may be granted following review.

Ethics statement

This research was conducted in accordance with the World Medical Association Declaration of Helsinki. The study was approved by the London-Camden and Kings Cross Research Ethics Committee on 19 May 2017 (reference: 17/LO/0659).

Disclaimers

This report presents independent research funded by the National Institute for Health and Care Research (NIHR). The views and opinions expressed by authors in this publication are those of the authors and do not necessarily reflect those of the NHS, the NIHR, the HTA programme or the Department of Health and Social Care. If there are verbatim quotations included in this publication the views and opinions expressed by the interviewees are those of the interviewees and do not necessarily reflect those of the authors, those of the NHS, the NIHR, the HTA programme or the Department of Health and Social Care.