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Leydig cell agenesis

MedGen UID:
120576
Concept ID:
C0266432
Congenital Abnormality
Synonyms: HYPERGONADOTROPIC HYPOGONADISM, MALE, DUE TO LHCGR DEFECT; LEYDIG CELL HYPOPLASIA WITH MALE PSEUDOHERMAPHRODITISM; LEYDIG CELL HYPOPLASIA, COMPLETE; Leydig cell hypoplasia, type 1; Leydig Cell Hypoplasia/Agenesis
SNOMED CT: Leydig cell hypoplasia (56212008); Leydig cell agenesis (56212008); Gonadotropin unresponsiveness syndrome (56212008); Leydig cell dysgenesis (56212008); Gonadotrophin unresponsiveness syndrome (56212008)
 
Gene (location): LHCGR (2p16.3)
 
Monarch Initiative: MONDO:0009384
OMIM®: 238320

Definition

Leydig cell hypoplasia is an autosomal recessive disorder in which loss of function of the LHCGR gene in the male prevents normal sexual development. Two types of LCH have been defined (Toledo, 1992). Type I, a severe form caused by complete inactivation of LHCGR, is characterized by complete 46,XY male pseudohermaphroditism, low testosterone and high LH levels, total lack of responsiveness to LH/CG challenge, lack of breast development, and absent development of secondary male sex characteristics. Type II, a milder form caused by partial inactivation of the gene, displays a broader range of phenotypic expression ranging from micropenis to severe hypospadias. Females with inactivating mutations in the LHCGR gene display a mild phenotype characterized by defective follicular development and ovulation, amenorrhea, and infertility (review by Themmen and Huhtaniemi, 2000). Reviews Arnhold et al. (2009) noted that the clinical manifestations of female patients with hypogonadotropic hypogonadism due to isolated LH deficiency (HH23; 228300) are very similar to those of women with hypergonadotropic hypogonadism due to inactivating mutations of the LH receptor: all have female external genitalia, spontaneous development of normal pubic hair and breasts at puberty, and normal to late menarche followed by oligoamenorrhea and infertility. Pelvic ultrasound shows a small or normal uterus and normal or enlarged ovaries with cysts. However, women with LHB (152780) mutations can be treated with luteinizing hormone or chorionic gonadotropin (CG; 118860) replacement therapy; women with LH receptor mutations are resistant to LH, and no treatment is effective in recovering their fertility. [from OMIM]

Additional description

From MedlinePlus Genetics
Leydig cell hypoplasia is a condition that affects male sexual development. It is characterized by underdevelopment (hypoplasia) of Leydig cells in the testes. Leydig cells secrete male sex hormones (androgens) that are important for normal male sexual development before birth and during puberty.

In Leydig cell hypoplasia, affected individuals with a typical male chromosomal pattern (46,XY) may have a range of genital abnormalities. Affected males may have a small penis (micropenis), the opening of the urethra on the underside of the penis (hypospadias), or a scrotum divided into two lobes (bifid scrotum). Because of these abnormalities, the external genitalia may not look clearly male or clearly female.

In more severe cases of Leydig cell hypoplasia, people with a typical male chromosomal pattern (46,XY) have female external genitalia. They have small testes that are undescended, which means they are abnormally located in the pelvis, abdomen, or groin. People with this form of the disorder do not develop secondary sex characteristics, such as increased body hair, at puberty. Some researchers refer to this form of Leydig cell hypoplasia as type 1 and designate less severe cases as type 2.  https://medlineplus.gov/genetics/condition/leydig-cell-hypoplasia

Clinical features

From HPO
Hypergonadotropic hypogonadism
MedGen UID:
184926
Concept ID:
C0948896
Disease or Syndrome
Reduced function of the gonads (testes in males or ovaries in females) associated with excess pituitary gonadotropin secretion and resulting in delayed sexual development and growth delay.
Increased circulating gonadotropin level
MedGen UID:
400008
Concept ID:
C1862265
Finding
Overproduction of gonadotropins (FSH, LH) by the anterior pituitary gland.

Professional guidelines

PubMed

Mathers MJ, Sperling H, Rübben H, Roth S
Dtsch Arztebl Int 2009 Aug;106(33):527-32. Epub 2009 Aug 14 doi: 10.3238/arztebl.2009.0527. PMID: 19738919Free PMC Article
Latronico AC, Arnhold IJ
Pediatr Endocrinol Rev 2006 Sep;4(1):28-31. PMID: 17021580
Rajfer J, Swerdloff RS, Heber DM
Fertil Steril 1984 Nov;42(5):765-71. doi: 10.1016/s0015-0282(16)48205-1. PMID: 6436070

Recent clinical studies

Etiology

Canto P, Söderlund D, Ramón G, Nishimura E, Méndez JP
Am J Med Genet 2002 Mar 1;108(2):148-52. doi: 10.1002/ajmg.10218. PMID: 11857565

Clinical prediction guides

Canto P, Söderlund D, Ramón G, Nishimura E, Méndez JP
Am J Med Genet 2002 Mar 1;108(2):148-52. doi: 10.1002/ajmg.10218. PMID: 11857565
Genuardi M, Bardoni B, Floridia G, Chiurazzi P, Scarano G, Zollino M, Garcea N, Martini-Neri ME, Neri G
Clin Genet 1995 Jan;47(1):38-41. doi: 10.1111/j.1399-0004.1995.tb03919.x. PMID: 7774042

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