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Johnson neuroectodermal syndrome(JMS)

MedGen UID:
167092
Concept ID:
C0796002
Disease or Syndrome
Synonyms: Alopecia anosmia deafness hypogonadism syndrome; Johnson-Mcmillin syndrome
SNOMED CT: Johnson McMillin syndrome (721584005); Johnson neuroectodermal syndrome (721584005); Alopecia, anosmia, deafness, hypogonadism syndrome (721584005)
Modes of inheritance:
Autosomal dominant inheritance
MedGen UID:
141047
Concept ID:
C0443147
Intellectual Product
Source: Orphanet
A mode of inheritance that is observed for traits related to a gene encoded on one of the autosomes (i.e., the human chromosomes 1-22) in which a trait manifests in heterozygotes. In the context of medical genetics, an autosomal dominant disorder is caused when a single copy of the mutant allele is present. Males and females are affected equally, and can both transmit the disorder with a risk of 50% for each child of inheriting the mutant allele.
 
Monarch Initiative: MONDO:0007837
OMIM®: 147770
Orphanet: ORPHA2316

Definition

Johnson neuroectodermal syndrome has characteristics of alopecia, anosmia or hyposmia, conductive deafness with malformed ears and microtia and/or atresia of the external auditory canal and hypogonadotropic hypogonadism. So far, less than 30 cases have been described in the literature. Other variable features include a congenital heart defect, facial asymmetry, intellectual deficit, cleft palate, choanal stenosis and an increased tendency for dental caries. The syndrome is transmitted as an autosomal dominant trait. The combination of developmental anomalies present in patients with this syndrome is suggestive of an embryological defect in the formation of the neuroectodermal derivatives of cephalic neural crest. [from SNOMEDCT_US]

Term Hierarchy

CClinical test,  RResearch test,  OOMIM,  GGeneReviews,  VClinVar  
  • CROGVJohnson neuroectodermal syndrome
Follow this link to review classifications for Johnson neuroectodermal syndrome in Orphanet.

Recent clinical studies

Etiology

Farabi B, Akay BN, Goldust M, Wollina U, Atak MF, Rao B
Australas J Dermatol 2021 May;62(2):e178-e191. Epub 2021 Feb 16 doi: 10.1111/ajd.13535. PMID: 33591589

Diagnosis

Farabi B, Akay BN, Goldust M, Wollina U, Atak MF, Rao B
Australas J Dermatol 2021 May;62(2):e178-e191. Epub 2021 Feb 16 doi: 10.1111/ajd.13535. PMID: 33591589

Prognosis

Wolter M, Reifenberger J, Sommer C, Ruzicka T, Reifenberger G
Cancer Res 1997 Jul 1;57(13):2581-5. PMID: 9205058

Clinical prediction guides

Wolter M, Reifenberger J, Sommer C, Ruzicka T, Reifenberger G
Cancer Res 1997 Jul 1;57(13):2581-5. PMID: 9205058

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