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46,XX ovotesticular disorder of sex development

MedGen UID:
1814438
Concept ID:
C5679613
Congenital Abnormality; Disease or Syndrome
Synonym: Ovotesticular DSD
SNOMED CT: 46,XX ovotesticular disorder of sex development (1234906009)
Modes of inheritance:
Autosomal recessive inheritance
MedGen UID:
141025
Concept ID:
C0441748
Intellectual Product
Source: Orphanet
A mode of inheritance that is observed for traits related to a gene encoded on one of the autosomes (i.e., the human chromosomes 1-22) in which a trait manifests in individuals with two pathogenic alleles, either homozygotes (two copies of the same mutant allele) or compound heterozygotes (whereby each copy of a gene has a distinct mutant allele).
Autosomal dominant inheritance
MedGen UID:
141047
Concept ID:
C0443147
Intellectual Product
Source: Orphanet
A mode of inheritance that is observed for traits related to a gene encoded on one of the autosomes (i.e., the human chromosomes 1-22) in which a trait manifests in heterozygotes. In the context of medical genetics, an autosomal dominant disorder is caused when a single copy of the mutant allele is present. Males and females are affected equally, and can both transmit the disorder with a risk of 50% for each child of inheriting the mutant allele.
 
Monarch Initiative: MONDO:0016281
Orphanet: ORPHA2138

Definition

A rare disorder of sex development (DSD) characterised by histologically confirmed testicular and ovarian tissue in an individual with a 46,XX karyotype. The cause is not elucidated for the majority of cases. A small proportion of individuals have a translocation of a Y chromosome fragment, including the SRY gene, to an X or another chromosome but most individuals (65%) are SRY negative. Some individuals may have a chromosomal mosaicism or a chimerism that results in the presence of Y chromosome containing cells in the gonad. The majority of cases arise as de novo gene variants. [from SNOMEDCT_US]

Term Hierarchy

CClinical test,  RResearch test,  OOMIM,  GGeneReviews,  VClinVar  
  • CROGV46,XX ovotesticular disorder of sex development

Professional guidelines

PubMed

Yavas Abalı Z, Guran T
Front Endocrinol (Lausanne) 2024;15:1354759. Epub 2024 May 15 doi: 10.3389/fendo.2024.1354759. PMID: 38812815Free PMC Article
Ferrari MTM, Silva ESDN, Nishi MY, Batista RL, Mendonca BB, Domenice S
Front Endocrinol (Lausanne) 2024;15:1385901. Epub 2024 Apr 24 doi: 10.3389/fendo.2024.1385901. PMID: 38721146Free PMC Article
Syryn H, Van De Vijver K, Cools M
Horm Res Paediatr 2023;96(2):180-189. Epub 2021 Sep 1 doi: 10.1159/000519323. PMID: 34469891

Recent clinical studies

Etiology

Mengen E, Kayhan G, Kocaay P, Uçaktürk SA
J Clin Res Pediatr Endocrinol 2020 Sep 2;12(3):308-314. Epub 2019 Sep 3 doi: 10.4274/jcrpe.galenos.2019.2019.0101. PMID: 31476840Free PMC Article

Clinical prediction guides

Mengen E, Kayhan G, Kocaay P, Uçaktürk SA
J Clin Res Pediatr Endocrinol 2020 Sep 2;12(3):308-314. Epub 2019 Sep 3 doi: 10.4274/jcrpe.galenos.2019.2019.0101. PMID: 31476840Free PMC Article

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