NCBI Bookshelf. A service of the National Library of Medicine, National Institutes of Health.
Dy SM, Waldfogel JM, Sloan DH, et al. Integrating Palliative Care in Ambulatory Care of Noncancer Serious Chronic Illness [Internet]. Rockville (MD): Agency for Healthcare Research and Quality (US); 2021 Feb. (Comparative Effectiveness Review, No. 237.)
Integrating Palliative Care in Ambulatory Care of Noncancer Serious Chronic Illness [Internet].
Show detailsExcluded Websites
Table B-1Excluded Web pages
URL= Universal Resource Locator
Excluded Articles
- Baylor Health System Supportive and Palliative Care Services. H&HN: Hospitals & Health Networks. 2014;88(8):41–2. PMID: 107874000. Language: English. Entry Date: 20140821. Revision Date: 20150712. Publication Type: Journal Article. -No original data
- Integrating CAM research and practice: a focus on outcome measures -- abstracts from the 3rd annual IN-CAM Symposium November 4th & 5th, 2006, Calgary, Canada. Journal of Complementary & Integrative Medicine. 2006;3(1):1–46. PMID: 106245519. Language: English. Entry Date: 20070302. Revision Date: 20150711. Publication Type: Journal Article. -Not relevant to key questions
- Relias Media. Integrating palliative care in case management can work. Case Management Advisor. 2016;27(4):3–5. PMID: 114159764. Language: English. Entry Date: 20170518. Revision Date: 20170518. Publication Type: Article. Journal Subset: Nursing. -No original data
- SUPPORTIVE AND PALLIATIVE CARE IN PRIMARY CARE. GM: Midlife & Beyond. 2015;45(7):37-. PMID: 109619371. Language: English. Entry Date: 20150923. Revision Date: 20150923. Publication Type: Journal Article. Journal Subset: Biomedical. -No original data
- The SUMMIT ambulatory-ICU primary care model for medically and socially complex patients in an urban federally qualified health center: study design and rationale. Addiction science & clinical practice. 2018;13(1):27-. doi: 10.1186/s13722-018-0128-y. PMID: CN-01925167. -Not relevant to key questions [PMC free article: PMC6295087] [PubMed: 30547847] [CrossRef]
- Abernethy AP, McDonald CF, Frith PA, et al. Effect of palliative oxygen versus room air in relief of breathlessness in patients with refractory dyspnoea: a double-blind, randomised controlled trial. Lancet. 2010;376 North American Edition(9743):784–93. doi: 10.1016/S0140-6736(10)61115-4. PMID: 105091250. Language: English. Entry Date: 20101008. Revision Date: 20161125. Publication Type: journal article. -Not relevant to key questions [PMC free article: PMC2962424] [PubMed: 20816546] [CrossRef]
- Abu Al Hamayel N, Isenberg SR, Hannum SM, et al. Older Patients’ Perspectives on Quality of Serious Illness Care in Primary Care. Am J Hosp Palliat Care. 2018 Oct;35(10):1330–6. doi: 10.1177/1049909118771675. PMID: 29682975. -Patients do not have serious life-threatening chronic illness or conditions [PMC free article: PMC9700198] [PubMed: 29682975] [CrossRef]
- Scuffham PA, Mihala G, Ward L, McMurray A, Connor M. Evaluation of the Gold Coast Integrated Care for patients with chronic disease or high risk of hospitalisation through a non-randomised controlled clinical trial: a pilot study protocol. BMJ Open. 2017;7(6):e016776. Published 2017 Jul 2. doi:10.1136/bmjopen-2017-016776. -No original data [PMC free article: PMC5734577] [PubMed: 28674147] [CrossRef]
- Kavarthapol Jayaraman, Vinothkumar. Outcomes of stage 4 & 5 chronic kidney disease patients attending 2 different models of outpatient care. http://www
.who.int/trialsearch/Trial2 .aspx?TrialID =ACTRN12611001117909. 2011 PMID: CN-01846776. -Not relevant to key questions - Agarwal R, Shuk E, Romano D, et al. A mixed methods analysis of patients’ advance care planning values in outpatient oncology: Person-Centered Oncologic Care and Choices (P-COCC). Support Care Cancer. 2020 Mar;28(3):1109–19. doi: 10.1007/s00520-019-04910-1. PMID: 31197540. -Not relevant to key questions [PMC free article: PMC6908761] [PubMed: 31197540] [CrossRef]
- Aggarwal SK, Ghosh A, Cheng MJ, et al. Initiating pain and palliative care outpatient services for the suburban underserved in Montgomery County, Maryland: Lessons learned at the NIH Clinical Center and MobileMed. Palliative & Supportive Care. 2016;14(4):381–6. doi: 10.1017/S1478951515001030. PMID: 116921770. Language: English. Entry Date: 20170113. Revision Date: 20170316. Publication Type: journal article. Journal Subset: Biomedical. -Fewer than 10 participants [PubMed: 26373835] [CrossRef]
- Ahluwalia SC, Bekelman DB, Huynh AK, et al. Barriers and Strategies to an Iterative Model of Advance Care Planning Communication. American Journal of Hospice & Palliative Medicine. 2015;32(8):817–23. doi: 10.1177/1049909114541513. PMID: 110716484. Language: English. Entry Date: 20160123. Revision Date: 20170203. Publication Type: Article. -No full report (e.g. conference or meeting abstract) [PubMed: 24988894] [CrossRef]
- Ahluwalia SC, Chen C, Raaen L, et al. A Systematic Review in Support of the National Consensus Project Clinical Practice Guidelines for Quality Palliative Care, Fourth Edition. J Pain Symptom Manage. 2018 Dec;56(6):831–70. doi: 10.1016/j.jpainsymman.2018.09.008. PMID: 30391049. -No original data [PubMed: 30391049] [CrossRef]
- Ahluwalia SC, Fried TR. Physician factors associated with outpatient palliative care referral. Palliat Med. 2009 Oct;23(7):608–15. doi: 10.1177/0269216309106315. PMID: 19460830. -Not relevant to key questions [PMC free article: PMC2916731] [PubMed: 19460830] [CrossRef]
- Ahluwalia SC, Levin JR, Lorenz KA, et al. Missed opportunities for advance care planning communication during outpatient clinic visits. J Gen Intern Med. 2012 Apr;27(4):445–51. doi: 10.1007/s11606-011-1917-0. PMID: 22038469. -Not relevant to key questions [PMC free article: PMC3304032] [PubMed: 22038469] [CrossRef]
- Ahluwalia SC, Levin JR, Lorenz KA, et al. ‘There’s no cure for this condition’: How physicians discuss advance care planning in heart failure. Patient Education & Counseling. 2013;91(2):200–5. doi: 10.1016/j.pec.2012.12.016. PMID: 104070357. Language: English. Entry Date: 20140627. Revision Date: 20150710. Publication Type: Journal Article. -Patients not being seen in ambulatory settings [PubMed: 23369373] [CrossRef]
- Ahmed N, Hughes P, Winslow M, et al. A randomised controlled trial of an holistic needs assessment questionnaire in a supportive and palliative care service using the sheffield profile for assessment and referral for care (SPARC): a mixed methods study. Palliative medicine. 2014;28(6):567-. doi: 10.1177/0269216314532748. PMID: CN-01010267. -Not a U.S. population [CrossRef]
- Ahmed N, Hughes P, Winslow M, et al. Feasibility study of the sheffield profile for assessment and referral for care (SPARC): a holistic needs questionnaire. Palliative medicine. 2012;26(4):542-. doi: 10.1177/0269216312446391. PMID: CN-01006857. -Not a U.S. population [CrossRef]
- Ahmed NN, Farnie M, Dyer CB. The effect of geriatric and palliative medicine education on the knowledge and attitudes of internal medicine residents. J Am Geriatr Soc. 2011 Jan;59(1):143–7. doi: 10.1111/j.1532-5415.2010.03235.x. PMID: 21226684. -Other: Trainee education [PubMed: 21226684] [CrossRef]
- Ahmed NN, Farnie M, Dyer CB. The effect of geriatric and palliative medicine education on the knowledge and attitudes of internal medicine residents. Journal of the American Geriatrics Society. 2011;59(1):143–7. doi: 10.1111/j.1532-5415.2010.03235.x. PMID: 104989650. -Other: Trainee education [PubMed: 21226684] [CrossRef]
- Alderman JS, Nair B, Fox MD. Residency training in advance care planning: can it be done in the outpatient clinic? Am J Hosp Palliat Care. 2008 Jun–Jul;25(3):190–4. doi: 10.1177/1049909108315301. PMID: 18573995. -Other: Trainee education [PubMed: 18573995] [CrossRef]
- Alexander Cole C, Wilson E, Nguyen PL, et al. Scaling Implementation of the Serious Illness Care Program Through Coaching. J Pain Symptom Manage. 2020 Mar 20doi: 10.1016/j.jpainsymman.2020.03.008. PMID: 32201309. -Other: No control group [PubMed: 32201309] [CrossRef]
- Allen SL, Davis KS, Rousseau PC, et al. Advanced Care Directives: Overcoming the Obstacles. J Grad Med Educ. 2015 Mar;7(1):91–4. doi: 10.4300/jgme-d-14-00145.1. PMID: 26217430. -Other: Trainee education [PMC free article: PMC4507937] [PubMed: 26217430] [CrossRef]
- Andreoni VM, Obrecht JA, Bowden VR. Palliative care resources for the health professional. MCN Am J Matern Child Nurs. 2007 Sep–Oct;32(5):305–10. doi: 10.1097/01.NMC.0000288002.72382.9f. PMID: 17728593. -No original data [PubMed: 17728593] [CrossRef]
- Arnett K, Sudore RL, Nowels D, et al. Advance Care Planning: Understanding Clinical Routines and Experiences of Interprofessional Team Members in Diverse Health Care Settings. Am J Hosp Palliat Care. 2017 Dec;34(10):946–53. doi: 10.1177/1049909116666358. PMID: 27599724. -No full report (e.g. conference or meeting abstract) [PMC free article: PMC5851789] [PubMed: 27599724] [CrossRef]
- Aslakson RA, Schuster ALR, Lynch TJ, et al. Developing the Storyline for an Advance Care Planning Video for Surgery Patients: Patient-Centered Outcomes Research Engagement from Stakeholder Summit to State Fair. J Palliat Med. 2018 Jan;21(1):89–94. doi: 10.1089/jpm.2017.0106. PMID: 28817359. -Patients not being seen in ambulatory settings [PubMed: 28817359] [CrossRef]
- Bakitas M, Dionne-Odom JN, Pamboukian SV, et al. Engaging patients and families to create a feasible clinical trial integrating palliative and heart failure care: results of the ENABLE CHF-PC pilot clinical trial. BMC Palliative Care. 2017;16:1–13. doi: 10.1186/s12904-017-0226-8. PMID: 125016596. Language: English. Entry Date: 20170908. Revision Date: 20170913. Publication Type: Article. -Not relevant to key questions [PMC free article: PMC5580310] [PubMed: 28859648] [CrossRef]
- Bamford C, Lee R, McLellan E, et al. What enables good end of life care for people with dementia? A multi-method qualitative study with key stakeholders. BMC Geriatrics. 2018;18(1):1–15. doi: 10.1186/s12877-018-0983-0. PMID: 133388842. Language: English. Entry Date: In Process. Revision Date: 20191011. Publication Type: journal article. Journal Subset: Biomedical. -Not a U.S. population [PMC free article: PMC6280541] [PubMed: 30514221] [CrossRef]
- Barnato AE, Moore R, Moore CG, et al. Financial Incentives to Increase Advance Care Planning Among Medicaid Beneficiaries: Lessons Learned From Two Pragmatic Randomized Trials. J Pain Symptom Manage. 2017 Jul;54(1):85–95.e1. doi: 10.1016/j.jpainsymman.2017.02.016. PMID: 28450218. -Not relevant to key questions [PubMed: 28450218] [CrossRef]
- Barnett M. Providing palliative care in end-stage COPD within primary care. Journal of Community Nursing. 2006;20(3):30–4. PMID: 106441896. Language: English. Entry Date: 20060519. Revision Date: 20150820. Publication Type: Journal Article. -No original data
- Barratt SL, Morales M, Spiers T, et al. Specialist palliative care, psychology, interstitial lung disease (ILD) multidisciplinary team meeting: a novel model to address palliative care needs. BMJ Open Respir Res. 2018;5(1):e000360. doi: 10.1136/bmjresp-2018-000360. PMID: 30622718. -Not a U.S. population [PMC free article: PMC6307575] [PubMed: 30622718] [CrossRef]
- Barrio-Cantalejo IM, Molina-Ruiz A, Simón-Lorda P, et al. Advance directives and proxies’ predictions about patients’ treatment preferences. Nursing Ethics. 2009;16(1):93–109. doi: 10.1177/0969733008097995. PMID: 105630329. Language: English. Entry Date: 20090327. Revision Date: 20150818. Publication Type: Journal Article. -Not a U.S. population [PubMed: 19103694] [CrossRef]
- Baumann AJ, Wheeler DS, James M, et al. Benefit of Early Palliative Care Intervention in End-Stage Liver Disease Patients Awaiting Liver Transplantation. J Pain Symptom Manage. 2015 Dec;50(6):882–6.e2. doi: 10.1016/j.jpainsymman.2015.07.014. PMID: 26303186. -No outcomes of interest [PubMed: 26303186] [CrossRef]
- Beernaert K, Deliens L, De Vleminck A, et al. Is There a Need for Early Palliative Care in Patients With Life-Limiting Illnesses? Interview Study With Patients About Experienced Care Needs From Diagnosis Onward. Am J Hosp Palliat Care. 2016 Jun;33(5):489–97. doi: 10.1177/1049909115577352. PMID: 25852203. -Not relevant to key questions [PubMed: 25852203] [CrossRef]
- Beernaert K, Van den Block L, Van Thienen K, et al. Family physicians’ role in palliative care throughout the care continuum: stakeholder perspectives. Fam Pract. 2015 Dec;32(6):694–700. doi: 10.1093/fampra/cmv072. PMID: 26373666. -Not a U.S. population [PubMed: 26373666] [CrossRef]
- Benzar E, Hansen L, Kneitel AW, et al. Discharge planning for palliative care patients: a qualitative analysis. J Palliat Med. 2011 Jan;14(1):65–9. doi: 10.1089/jpm.2010.0335. PMID: 21244256. -Patients not being seen in ambulatory settings [PMC free article: PMC3021325] [PubMed: 21244256] [CrossRef]
- Berger GN, O’Riordan DL, Kerr K, et al. Prevalence and characteristics of outpatient palliative care services in california. Archives of Internal Medicine. 2011;171(22):2057–9. PMID: 108213238. Language: English. Entry Date: 20120323. Revision Date: 20150712. Publication Type: Journal Article. -Patients not being seen in ambulatory settings [PubMed: 21986345]
- Berns SH, Camargo M, Meier DE, et al. Goals of Care Ambulatory Resident Education: Training Residents in Advance Care Planning Conversations in the Outpatient Setting. J Palliat Med. 2017 Dec;20(12):1345–51. doi: 10.1089/jpm.2016.0273. PMID: 28661787. -Other: Trainee education [PubMed: 28661787] [CrossRef]
- Berzoff J, Swantkowski J, Cohen LM. Developing a renal supportive care team from the voices of patients, families, and palliative care staff. Palliat Support Care. 2008 Jun;6(2):133–9. doi: 10.1017/s1478951508000217. PMID: 18501048. -Not relevant to key questions [PubMed: 18501048] [CrossRef]
- Beyea A, Fischer J, Schenck A, et al. Integrating palliative care information and hospice referral in medicaid primary care. J Palliat Med. 2013 Apr;16(4):376–82. doi: 10.1089/jpm.2012.0483. PMID: 23461299. -Other: No control group [PubMed: 23461299] [CrossRef]
- Bloch N, Krantz AC, Iqbal A, et al. Group discussions about future care planning. Journal of general internal medicine. 2015;30:S534. PMID: CN-01099394. -No full report (e.g. conference or meeting abstract)
- Boersma I, Jones J, Carter J, et al. Parkinson disease patients’ perspectives on palliative care needs: What are they telling us? Neurol Clin Pract. 2016 Jun;6(3):209–19. doi: 10.1212/cpj.0000000000000233. PMID: 27347438. -Not relevant to key questions [PMC free article: PMC4909525] [PubMed: 27347438] [CrossRef]
- Bonsignore L, Bloom N, Steinhauser K, et al. Evaluating the Feasibility and Acceptability of a Telehealth Program in a Rural Palliative Care Population: TapCloud for Palliative Care. J Pain Symptom Manage. 2018 Jul;56(1):7–14. doi: 10.1016/j.jpainsymman.2018.03.013. PMID: 29551433. -Patients not being seen in ambulatory settings [PubMed: 29551433] [CrossRef]
- Bose-Brill S, Kretovics M, Ballenger T, et al. Development of a tethered personal health record framework for early end-of-life discussions. Am J Manag Care. 2016 Jun;22(6):412–8. PMID: 27355808. -Not relevant to key questions [PMC free article: PMC5219928] [PubMed: 27355808]
- Bottorff JL, Steele R, Davies B, et al. Striving for balance: palliative care patients’ experiences of making everyday choices. J Palliat Care. 1998 Spring;14(1):7–17. PMID: 9575708. -Article published prior to year 2000 [PubMed: 9575708]
- Bourke SJ, Booth Z, Doe S, et al. A service evaluation of an integrated model of palliative care of cystic fibrosis. Palliat Med. 2016 Jul;30(7):698–702. doi: 10.1177/0269216315626658. PMID: 26814212. -Not a U.S. population [PubMed: 26814212] [CrossRef]
- Bourke SJ, Doe SJ, Gascoigne AD, et al. An integrated model of provision of palliative care to patients with cystic fibrosis. Palliat Med. 2009 Sep;23(6):512–7. doi: 10.1177/0269216309106312. PMID: 19460834. -Not a U.S. population [PubMed: 19460834] [CrossRef]
- Bove DG, Jellington MO, Lavesen M, et al. Assigned nurses and a professional relationship: a qualitative study of COPD patients’ perspective on a new palliative outpatient structure named CAPTAIN. BMC Palliative Care. 2019;18(1):N.PAG-N.PAG. doi: 10.1186/s12904-019-0410-0. PMID: 135036845. Language: English. Entry Date: 20190306. Revision Date: 20190308. Publication Type: Article. Journal Subset: Biomedical. -Not a U.S. population [PMC free article: PMC6397743] [PubMed: 30825878] [CrossRef]
- Boyd CO, Vernon GM. Primary care of the older adult with end-stage Alzheimer’s disease. Nurse Practitioner. 1998;23(4):63–76. PMID: 107263243. Language: English. Entry Date: 19980601. Revision Date: 20150819. Publication Type: Journal Article. -Other: No control group
- Brännström M, Forssell A, Pettersson B. Physicians’ experiences of palliative care for heart failure patients. European Journal of Cardiovascular Nursing. 2011;10(1):64–9. doi: 10.1016/j.ejcnurse.2010.04.005. PMID: 104814963. Language: English. Entry Date: 20110406. Revision Date: 20150711. Publication Type: Journal Article. -Not a U.S. population [PubMed: 20471321] [CrossRef]
- Brazil K. Building primary care capacity in palliative care: proceedings of an interprofessional workshop…Hospice Palliative Care: at a crossroads. November 4–7, 2007, Westin Harbour Castle Hotel, Toronto, Ontario, Canada. Journal of Palliative Care. 2007;23(3):235-. PMID: 105841640. Language: English. Entry Date: 20080314. Revision Date: 20150711. Publication Type: Journal Article. -Not a U.S. population
- Briggs LA, Kirchhoff KT, Hammes BJ, et al. Patient-centered advance care planning in special patient populations: a pilot study. J Prof Nurs. 2004 Jan–Feb;20(1):47–58. doi: 10.1016/j.profnurs.2003.12.001. PMID: 15011193. -Not relevant to key questions [PubMed: 15011193] [CrossRef]
- Brizzi K, Paganoni S, Zehm A, et al. Integration of a palliative care specialist in an amyotrophic lateral sclerosis clinic: Observations from one center. Muscle Nerve. 2019 Aug;60(2):137–40. doi: 10.1002/mus.26607. PMID: 31172537. -No outcomes of interest [PubMed: 31172537] [CrossRef]
- Brody H. Shared decision making and determining decision-making capacity. Prim Care. 2005 Sep;32(3):645–58, vi. doi: 10.1016/j.pop.2005.06.004. PMID: 16140120. -No original data [PubMed: 16140120] [CrossRef]
- Brummel-Smith K, Halperin AS. Patient-Centered Care for People with Cognitive Impairment Is Possible in Primary Care. Generations. 2013 Fall2013;37(3):87–91. PMID: 104168596. Language: English. Entry Date: 20131205. Revision Date: 20150711. Publication Type: Journal Article. Journal Subset: Biomedical. -No original data
- Bull J, Kamal AH, Harker M, et al. Standardization and Scaling of a Community-Based Palliative Care Model. J Palliat Med. 2017 Nov;20(11):1237–43. doi: 10.1089/jpm.2017.0027. PMID: 28813635. -No outcomes of interest [PubMed: 28813635] [CrossRef]
- Bull J, Zafar SY, Wheeler JL, et al. Establishing a Regional, Multisite Database for Quality Improvement and Service Planning in Community-Based Palliative Care and Hospice. Journal of Palliative Medicine. 2010;13(8):1013–20. doi: 10.1089/jpm.2010.0017. PMID: 105089008. Language: English. Entry Date: 20100927. Revision Date: 20150711. Publication Type: Journal Article. -Not relevant to key questions [PubMed: 20649439] [CrossRef]
- Bull JH, Whitten E, Morris J, et al. Demonstration of a sustainable community-based model of care across the palliative care continuum. J Pain Symptom Manage. 2012 Dec;44(6):797–809. doi: 10.1016/j.jpainsymman.2011.12.278. PMID: 22771124. -No original data [PubMed: 22771124] [CrossRef]
- Bush RA, Perez A, Baum T, et al. A systematic review of the use of the electronic health record for patient identification, communication, and clinical support in palliative care. JAMIA Open. 2018 Oct 1;1(2):294–303. doi: 10.1093/jamiaopen/ooy028. PMID: 30842998. -No original data [PMC free article: PMC6398614] [PubMed: 30842998] [CrossRef]
- Byock I, Twohig JS, Merriman M, et al. Promoting excellence in end-of-life care: a report on innovative models of palliative care. J Palliat Med. 2006 Feb;9(1):137–51. doi: 10.1089/jpm.2006.9.137. PMID: 16430353. -No original data [PubMed: 16430353] [CrossRef]
- Cabanero-Martinez MJ, Ramos-Pichardo JD, Velasco-Alvarez ML, et al. Availability and perceived usefulness of guidelines and protocols for subcutaneous hydration in palliative care settings. J Clin Nurs. 2019 Aug 14doi: 10.1111/jocn.15036. PMID: 31410903. -Not relevant to key questions [PubMed: 31410903] [CrossRef]
- Calvin AO, Engebretson JC, Sardual SA. Understanding of advance care planning by family members of persons undergoing hemodialysis. West J Nurs Res. 2014 Nov;36(10):1357–73. doi: 10.1177/0193945913514637. PMID: 24326309. -Not relevant to key questions [PubMed: 24326309] [CrossRef]
- Calvin AO. Haemodialysis patients and end-of-life decisions: a theory of personal preservation. J Adv Nurs. 2004 Jun;46(5):558–66. doi: 10.1111/j.1365-2648.2004.03030.x. PMID: 15139945. -Not relevant to key questions [PubMed: 15139945] [CrossRef]
- Campion-Smith C, Austin H, Criswick S, et al. Can sharing stories change practice? A qualitative study of an interprofessional narrative-based palliative care course. J Interprof Care. 2011 Mar;25(2):105–11. doi: 10.3109/13561820.2010.515427. PMID: 21043556. -Not a U.S. population [PubMed: 21043556] [CrossRef]
- Carroll D, Lawton S. Teaching exchange. A primary care-based palliative care education project in Aberdeen: the first year. Education for Primary Care. 2006;17(5):501–5. PMID: 105910209. Language: English. Entry Date: 20080509. Revision Date: 20150711. Publication Type: Journal Article. -Not a U.S. population
- Carroll T, Weisbrod N, O’Connor A, et al. Primary Palliative Care Education: A Pilot Survey. American Journal of Hospice & Palliative Medicine. 2018;35(4):565–9. doi: 10.1177/1049909117723618. PMID: 128132162. Language: English. Entry Date: 20180312. Revision Date: 20190422. Publication Type: Article. -Not relevant to key questions [PubMed: 28782375] [CrossRef]
- Carter A, Harrison M, Kryworuchko J, et al. Essential Elements to Implmenting the Paramedics Providing Palliative Care at Home Program: An Application of the Consolidated Framework for Implmentation Research (CFIR). Scientific Abstracts. 2020. -No full report (e.g. conference or meeting abstract)
- Cave SK. PEACE: Providing End of Life Advance Care Planning for Patients Through Education and Evaluation of Preferences in the Primary Care Setting. PEACE: Providing End of Life Advance Care Planning for Patients Through Education & Evaluation of Preferences in the Primary Care Setting. 2018:1-.-No original data
- Cawley D, Waterman D, Roberts D, et al. A qualitative study exploring perceptions and experiences of patients and clinicians of palliative medicine outpatient clinics in different settings. Palliative Medicine. 2011;25(1):52–61. doi: 10.1177/0269216310375998. PMID: 104991345. Language: English. Entry Date: 20110318. Revision Date: 20150711. Publication Type: Journal Article. -Not a U.S. population [PubMed: 20719815] [CrossRef]
- Cawley D, Waterman D, Roberts D, et al. Palliative Medicine Outpatient Clinics (PMOC): do different care settings influence the patients’ experience. Palliative Medicine. 2010;24(2):208–9. PMID: 105150522. Language: English. Entry Date: 20100507. Revision Date: 20150711. Publication Type: Journal Article. -Not a U.S. population
- Celeste MSI. Knowledge and Barriers to Palliative Care Screening and Referral for Patients with Advanced Heart Failure. Knowledge & Barriers To Palliative Care Screening & Referral For Patients With Advanced Heart Failure. 2018:1-.-Other: Not a published article
- Chan D, Ward E, Lapin B, et al. Outpatient Advance Care Planning Internal Medicine Resident Curriculum: Valuing Our Patients’ Wishes. J Palliat Med. 2016 Jul;19(7):734–45. doi: 10.1089/jpm.2015.0313. PMID: 27244093. -Other: Trainee education [PubMed: 27244093] [CrossRef]
- Chan KY, Yap DYH, Yip T, et al. Palliative Care Consultation in Advanced Chronic Kidney Disease with Pain. Journal of Palliative Medicine. 2018;21(6):809–14. doi: 10.1089/jpm.2017.0505. PMID: 130072220. Language: English. Entry Date: 20180613. Revision Date: 20190603. Publication Type: Article. -Not a U.S. population [PubMed: 29596025] [CrossRef]
- Chen H, Habermann B. Ready or not: planning for health declines in couples with advanced multiple sclerosis. J Neurosci Nurs. 2013 Feb;45(1):38–43. doi: 10.1097/JNN.0b013e318275b1f9. PMID: 23291870. -Not relevant to key questions [PMC free article: PMC3539151] [PubMed: 23291870] [CrossRef]
- Chen JC, Thorsteinsdottir B, Vaughan LE, et al. End of Life, Withdrawal, and Palliative Care Utilization among Patients Receiving Maintenance Hemodialysis Therapy. Clin J Am Soc Nephrol. 2018 Aug 7;13(8):1172–9. doi: 10.2215/cjn.00590118. PMID: 30026285. -Not relevant to key questions [PMC free article: PMC6086702] [PubMed: 30026285] [CrossRef]
- Cleary AS. Integrating palliative care into primary care for patients with chronic, life-limiting conditions. Nurse Practitioner. 2016;41(3):42–9. doi: 10.1097/01.NPR.0000480588.01667.58. PMID: 113555913. Language: English. Entry Date: 20170414. Revision Date: 20170414. Publication Type: Article. -No original data [PubMed: 26886272] [CrossRef]
- Clevenger CK, Cellar J, Kovaleva M, et al. Integrated Memory Care Clinic: Design, Implementation, and Initial Results. J Am Geriatr Soc. 2018 Dec;66(12):2401–7. doi: 10.1111/jgs.15528. PMID: 30136290. -Other: No comparison group [PubMed: 30136290] [CrossRef]
- Clinical Practice Guidelines for Quality Palliative Care, 4th edition. National Coalition for Hospice and Palliative Care. https:
//nationalcoalitionhpc .us16.list-manage .com/subscribe?u =707e5c14e3dd0d0f687f12164&id =eaedc60374. Accessed on March 2020. -No original data - Community-Based Models of Care Delivery for People with Serious Illness. National Academy of Medicine; 2017. https://nam
.edu/community-based-models-of-care-delivery-for-people-with-serious-illness/. Accessed on May 2020. -No original data - Conelius J, Shea J. A Primary Palliative Care Project: The Need to Educate Primary Care Providers in Under-served Communities. Applied Nursing Research. 2019. -Not relevant to key questions [PubMed: 31706705]
- Corli O, Cozzolino A, Battaiotto L, et al. A new method of food intake quantification: application to the care of cancer patients. Journal of Pain & Symptom Management. 1992;7(1):12–7. PMID: 107494368. Language: English. Entry Date: 19921201. Revision Date: 20190915. Publication Type: journal article. -No outcomes of interest [PubMed: 1538175]
- Courtright KR, Madden V, Gabler NB, et al. A Randomized Trial of Expanding Choice Sets to Motivate Advance Directive Completion. Medical Decision Making. 2017;37(5):544–54. doi: 10.1177/0272989X16663709. PMID: 123488325. Language: English. Entry Date: 20170704. Revision Date: 20170704. Publication Type: Article. -Not relevant to key questions [PMC free article: PMC5303189] [PubMed: 27510741] [CrossRef]
- Crosby J, Yelamanchi R. Early Palliative Care in the Office. Family Doctor: A Journal of the New York State Academy of Family Physicians. 2013 Fall2013:12–4. PMID: 110537160. Language: English. Entry Date: 20151103. Revision Date: 20180424. Publication Type: Article. -No original data
- Cunningham C, Ollendorf D, Travers K. The Effectiveness and Value of Palliative Care in the Outpatient Setting. JAMA Internal Medicine. 2017;177(2):264–5. doi: 10.1001/jamainternmed.2016.8177. PMID: 121218394. Language: English. Entry Date: 20180730. Revision Date: 20181024. Publication Type: journal article. Journal Subset: Biomedical. -No original data [PubMed: 28055045] [CrossRef]
- Curtis JR, Patrick DL, Caldwell ES, et al. Why don’t patients and physicians talk about end-of-life care? Barriers to communication for patients with acquired immunodeficiency syndrome and their primary care clinicians. Arch Intern Med. 2000 Jun 12;160(11):1690–6. doi: 10.1001/archinte.160.11.1690. PMID: 10847263. -Not relevant to key questions [PubMed: 10847263] [CrossRef]
- Dahlin C, Coyne PJ, Cassel JB. The Advanced Practice Registered Nurses Palliative Care Externship: A Model for Primary Palliative Care Education. J Palliat Med. 2016 Jul;19(7):753–9. doi: 10.1089/jpm.2015.0491. PMID: 27167754. -No outcomes of interest [PubMed: 27167754] [CrossRef]
- Daly D, Matzel SC. Building a transdisciplinary approach to palliative care in an acute care setting. Omega (Westport). 2013;67(1–2):43–51. doi: 10.2190/OM.67.1-2.e. PMID: 23977778. -Patients not being seen in ambulatory settings [PubMed: 23977778] [CrossRef]
- Davison SN, Simpson C. Hope and advance care planning in patients with end stage renal disease: qualitative interview study. Bmj. 2006 Oct 28;333(7574):886. doi: 10.1136/bmj.38965.626250.55. PMID: 16990294. -Not relevant to key questions [PMC free article: PMC1626305] [PubMed: 16990294] [CrossRef]
- De Witt Jansen B, Brazil K, Passmore P, et al. ‘There’s a Catch-22’ - The complexities of pain management for people with advanced dementia nearing the end of life: A qualitative exploration of physicians’ perspectives. Palliat Med. 2017 Sep;31(8):734–42. doi: 10.1177/0269216316673549. PMID: 28659013. -Not a U.S. population [PubMed: 28659013] [CrossRef]
- Dearing K. A model for developing an outpatient palliative care clinic within an accountable care organization: University of Arizona; 2013. -Other: Not a published article
- DeCourtney CA, Jones K, Merriman MP, et al. Establishing a culturally sensitive palliative care program in rural Alaska Native American communities. Journal of Palliative Medicine. 2003;6(3):501–10. PMID: 105823600. Language: English. Entry Date: 20080307. Revision Date: 20150711. Publication Type: Journal Article. -Patients not being seen in ambulatory settings [PubMed: 14509499]
- Deep KS, Hunter A, Murphy K, et al. “It helps me see with my heart”: how video informs patients’ rationale for decisions about future care in advanced dementia. Patient Educ Couns. 2010 Nov;81(2):229–34. doi: 10.1016/j.pec.2010.02.004. PMID: 20194000. -Patients do not have serious life-threatening chronic illness or conditions [PubMed: 20194000] [CrossRef]
- Deng LX, Gleason LP, Khan AM, et al. Advance Care Planning in Adults with Congenital Heart Disease: A Patient Priority. Int J Cardiol. 2017 Mar 15;231:105–9. doi: 10.1016/j.ijcard.2016.12.185. PMID: 28096041. -Not relevant to key questions [PubMed: 28096041] [CrossRef]
- DiScala SL, Onofrio S, Miller M, et al. Integration of a Clinical Pharmacist into an Interdisciplinary Palliative Care Outpatient Clinic. Am J Hosp Palliat Care. 2017 Nov;34(9):814–9. doi: 10.1177/1049909116657324. PMID: 27418599. -Patient population is cancer-only [PubMed: 27418599] [CrossRef]
- Ditto PH, Danks JH, Smucker WD, et al. Advance directives as acts of communication: a randomized controlled trial. Arch Intern Med. 2001 Feb 12;161(3):421–30. doi: 10.1001/archinte.161.3.421. PMID: 11176768. -Patients do not have serious life-threatening chronic illness or conditions [PubMed: 11176768] [CrossRef]
- Diwan S, Hougham GW, Sachs GA. Strain experienced by caregivers of dementia patients receiving palliative care: findings from the Palliative Excellence in Alzheimer Care Efforts (PEACE) Program. J Palliat Med. 2004 Dec;7(6):797–807. doi: 10.1089/jpm.2004.7.797. PMID: 15684847. -Not relevant to key questions [PubMed: 15684847] [CrossRef]
- Downey L, Au DH, Curtis JR, et al. Life-sustaining treatment preferences: matches and mismatches between patients’ preferences and clinicians’ perceptions. J Pain Symptom Manage. 2013 Jul;46(1):9–19. doi: 10.1016/j.jpainsymman.2012.07.002. PMID: 23017611. -Not relevant to key questions [PMC free article: PMC3534846] [PubMed: 23017611] [CrossRef]
- Drks. Effectiveness evaluation of an online education model in palliative care for primary care physicians. http://www
.who.int/trialsearch/Trial2 .aspx?TrialID =DRKS00000694. 2011 PMID: CN-01841198. -Not relevant to key questions - Dudley N, Ritchie CS, Rehm RS, et al. Facilitators and Barriers to Interdisciplinary Communication between Providers in Primary Care and Palliative Care. J Palliat Med. 2019 Mar;22(3):243–9. doi: 10.1089/jpm.2018.0231. PMID: 30383468. -Not relevant to key questions [PubMed: 30383468] [CrossRef]
- Dudley N, Ritchie CS, Wallhagen MI, et al. Characteristics of Older Adults in Primary Care Who May Benefit From Primary Palliative Care in the U.S. Journal of Pain & Symptom Management. 2018;55(2):217–25. doi: 10.1016/j.jpainsymman.2017.09.002. PMID: 127385238. Language: English. Entry Date: 20180901. Revision Date: 20190802. Publication Type: journal article. Journal Subset: Biomedical. -Not relevant to key questions [PubMed: 28916294] [CrossRef]
- Dudley N, Wallhagen M, Ritchie C, et al. Facilitators of and Barriers to Interdisciplinary Communication and Collaboration in Palliative Care and Primary Care (S764). Journal of Pain & Symptom Management. 2016;51(2):442–3. doi: 10.1016/j.jpainsymman.2015.12.067. PMID: 112551203. Language: English. Entry Date: 20170105. Revision Date: 20160204. Publication Type: Article. Journal Subset: Biomedical. -Not relevant to key questions [CrossRef]
- Duffield P, Podzamsky JE. The completion of advance directives in primary care. J Fam Pract. 1996 Apr;42(4):378–84. PMID: 8627206. -Article published prior to year 2000 [PubMed: 8627206]
- Duggleby W, Pesut B, Cottrell L, et al. Development, Implementation, and Evaluation of a Curriculum to Prepare Volunteer Navigators to Support Older Persons Living With Serious Illness. Am J Hosp Palliat Care. 2018 May;35(5):780–7. doi: 10.1177/1049909117740122. PMID: 29129107. -Not relevant to key questions [PubMed: 29129107] [CrossRef]
- Duggleby W, Robinson CA, Kaasalainen S, et al. Developing Navigation Competencies to Care for Older Rural Adults with Advanced Illness. Can J Aging. 2016 Jun;35(2):206–14. doi: 10.1017/s0714980816000131. PMID: 27093177. -Not a U.S. population [PubMed: 27093177] [CrossRef]
- Dy SM, Hughes M, Weiss C, et al. Evaluation of a web-based palliative care pain management module for housestaff. J Pain Symptom Manage. 2008 Dec;36(6):596–603. doi: 10.1016/j.jpainsymman.2007.12.009. PMID: 18440767. -Other: Trainee education [PubMed: 18440767] [CrossRef]
- El-Jawahri A, Paasche-Orlow MK, Matlock D, et al. Randomized, Controlled Trial of an Advance Care Planning Video Decision Support Tool for Patients With Advanced Heart Failure. Circulation. 2016 Jul 5;134(1):52–60. doi: 10.1161/circulationaha.116.021937. PMID: 27358437. -Patients not being seen in ambulatory settings [PMC free article: PMC4933326] [PubMed: 27358437] [CrossRef]
- Elorreaga N, Allred D, Ortiz G, et al. Implementation of an advance directive focus in a Chronic Multi-Organ Rare Disease Clinic. Ann Palliat Med. 2017 Dec;6(Suppl 2):S206–s8. doi: 10.21037/apm.2017.08.06. PMID: 29156900. -Patients do not have serious life-threatening chronic illness or conditions [PMC free article: PMC6556372] [PubMed: 29156900] [CrossRef]
- El-Sourady M, Chen H, Martin SF, et al. Effects of a Primary Palliative Care Educational System for Teaching Learners at Different Levels of Training. Am J Hosp Palliat Care. 2019 Aug;36(8):675–81. doi: 10.1177/1049909119834854. PMID: 30845811. -No full report (e.g. conference or meeting abstract) [PubMed: 30845811] [CrossRef]
- Evangelista L, Lombardo D, Malik S, et al. Integrating palliative care into the outpatient heart failure disease management setting: a feasibility study? Journal of cardiac failure [abstracts of the 16th annual scientific meeting of the heart failure society of america, hfsa; 2012 sept 9–12; seattle, WA united states]. 2012;18(8 Suppl. 1):S80. PMID: CN-00852496. -No full report (e.g. conference or meeting abstract)
- Evangelista LS, Liao S, Motie M, et al. Does the type and frequency of palliative care services received by patients with advanced heart failure impact symptom burden? J Palliat Med. 2014 Jan;17(1):75–9. doi: 10.1089/jpm.2013.0231. PMID: 24304292. -Not relevant to key questions [PMC free article: PMC3887436] [PubMed: 24304292] [CrossRef]
- Evangelista LS, Liao S, Motie M, et al. On-going palliative care enhances perceived control and patient activation and reduces symptom distress in patients with symptomatic heart failure: a pilot study. Eur J Cardiovasc Nurs. 2014 Apr;13(2):116–23. doi: 10.1177/1474515114520766. PMID: 24443421. -No outcomes of interest [PMC free article: PMC4455924] [PubMed: 24443421] [CrossRef]
- Evangelista LS, Lombardo D, Malik S, et al. Examining the effects of an outpatient palliative care consultation on symptom burden, depression, and quality of life in patients with symptomatic heart failure. J Card Fail. 2012 Dec;18(12):894–9. doi: 10.1016/j.cardfail.2012.10.019. PMID: 23207076. -Not relevant to key questions [PMC free article: PMC3931304] [PubMed: 23207076] [CrossRef]
- Ewing G, Austin L, Diffin J, et al. Developing a person-centred approach to carer assessment and support. Br J Community Nurs. 2015 Dec;20(12):580–4. doi: 10.12968/bjcn.2015.20.12.580. PMID: 26636891. -Not a U.S. population [PubMed: 26636891] [CrossRef]
- Faverio P, De Giacomi F, Messinesi G, et al. Early referral to palliative care services in patients with IPF: a tool to take a step forward. BMJ Support Palliat Care. 2019 Aug 29doi: 10.1136/bmjspcare-2019-001980. PMID: 31467068. -No original data [PubMed: 31467068] [CrossRef]
- Feldman R, Berman N, Reid MC, et al. Improving symptom management in hemodialysis patients: identifying barriers and future directions. J Palliat Med. 2013 Dec;16(12):1528–33. doi: 10.1089/jpm.2013.0176. PMID: 24325593. -Not relevant to key questions [PMC free article: PMC3868261] [PubMed: 24325593] [CrossRef]
- Ferrell B. Early ambulatory palliative care visits focus on psychosocial elements such as building rapport and coping, as well as managing symptoms and enhancing illness understanding. Evidence Based Nursing. 2014;17(2):40–1. doi: 10.1136/eb-2013-101380. PMID: 104056016. Language: English. Entry Date: 20140328. Revision Date: 20150820. Publication Type: Journal Article. -No original data [PubMed: 23749728] [CrossRef]
- Ferrell BR, Twaddle ML, Melnick A, et al. National Consensus Project Clinical Practice Guidelines for Quality Palliative Care Guidelines, 4th Edition. J Palliat Med. 2018 Sep 4doi: 10.1089/jpm.2018.0431. PMID: 30179523. -No original data [PubMed: 30179523] [CrossRef]
- Finlay E, Newport K, Buss M. Reply to S.A. Bernard et al…Bernard SA, Keisler MD, Valgus JM, et al: Pharmacist-led models of outpatient palliative care. J Oncol Pract 15:507–508, 2019. Alexandria, Virginia: American Society of Clinical Oncology; 2019. p. 508-.-No original data [PubMed: 31369294]
- Finlay IG, Pratheepawanit N, Salek MS. Monitoring self-reported quality-of-life among patients attending a palliative medicine outpatient clinic. Palliative Medicine. 2003;17(1):83–4. PMID: 106868274. Language: English. Entry Date: 20030919. Revision Date: 20150711. Publication Type: Journal Article. -Patient population is cancer-only [PubMed: 12597472]
- Fischer GS, Tulsky JA, Rose MR, et al. Patient knowledge and physician predictions of treatment preferences after discussion of advance directives. J Gen Intern Med. 1998 Jul;13(7):447–54. doi: 10.1046/j.1525-1497.1998.00133.x. PMID: 9686710. -Article published prior to year 2000 [PMC free article: PMC1496983] [PubMed: 9686710] [CrossRef]
- Fischer SM, Cervantes L, Fink RM, et al. Apoyo con Carino: a pilot randomized controlled trial of a patient navigator intervention to improve palliative care outcomes for Latinos with serious illness. J Pain Symptom Manage. 2015 Apr;49(4):657–65. doi: 10.1016/j.jpainsymman.2014.08.011. PMID: 25240788. -Patients not being seen in ambulatory settings [PMC free article: PMC4705861] [PubMed: 25240788] [CrossRef]
- Forbat L, Robinson R, Bilton-Simek R, et al. Distance education methods are useful for delivering education to palliative caregivers: A single-arm trial of an education package (PalliativE Caregivers Education Package). Palliat Med. 2018 Feb;32(2):581–8. doi: 10.1177/0269216317712849. PMID: 28604233. -Not a U.S. population [PubMed: 28604233] [CrossRef]
- Freytag J, Street RL, Jr., Barnes DE, et al. Empowering Older Adults to Discuss Advance Care Planning During Clinical Visits: The PREPARE Randomized Trial. J Am Geriatr Soc. 2020 Mar 10doi: 10.1111/jgs.16405. PMID: 32157684. -No outcomes of interest [PMC free article: PMC7787080] [PubMed: 32157684] [CrossRef]
- Fried TR, Redding CA, Martino S, et al. Increasing engagement in advance care planning using a behaviour change model: study protocol for the STAMP randomised controlled trials. BMJ Open. 2018 Aug 10;8(8):e025340. doi: 10.1136/bmjopen-2018-025340. PMID: 30099405. -No original data [PMC free article: PMC6089328] [PubMed: 30099405] [CrossRef]
- Fried TR, Zenoni M, Iannone L, et al. Engagement in Advance Care Planning and Surrogates’ Knowledge of Patients’ Treatment Goals. J Am Geriatr Soc. 2017 Aug;65(8):1712–8. doi: 10.1111/jgs.14858. PMID: 28317097. -Not relevant to key questions [PMC free article: PMC5555783] [PubMed: 28317097] [CrossRef]
- Gandesbery B, Dobbie K, Gorodeski EZ. Outpatient Palliative Cardiology Service Embedded Within a Heart Failure Clinic: Experiences With an Emerging Model of Care. Am J Hosp Palliat Care. 2018 Apr;35(4):635–9. doi: 10.1177/1049909117729478. PMID: 28875731. -No outcomes of interest [PubMed: 28875731] [CrossRef]
- Garner KK, Dubbert P, Lensing S, et al. Concordance Between Veterans’ Self-Report and Documentation of Surrogate Decision Makers: Implications for Quality Measurement. Journal of Pain & Symptom Management. 2017;53(1):1–4. doi: 10.1016/j.jpainsymman.2016.10.356. PMID: 120406593. Corporate Author: AAHPM Research Committee Writing Group. Language: English. Entry Date: 20180121. Revision Date: 20180524. Publication Type: journal article. -Not relevant to key questions [PubMed: 27876636] [CrossRef]
- Gazelle G, Buxbaum R, Daniels E. The development of a palliative care program for managed care patients: a case example. Journal of the American Geriatrics Society. 2001;49(9):1241–8. doi: 10.1046/j.1532-5415.2001.49243.x. PMID: 106906238. Language: English. Entry Date: 20020308. Revision Date: 20150711. Publication Type: Journal Article. -No original data [PubMed: 11559386] [CrossRef]
- Ghesquiere A, Gardner DS, McAfee C, et al. Development of a Community-Based Palliative Care Screening Tool for Underserved Older Adults With Chronic Illnesses. American Journal of Hospice & Palliative Medicine. 2018;35(7):929–37. doi: 10.1177/1049909117749467. PMID: 129932132. Language: English. Entry Date: 20180607. Revision Date: 20180607. Publication Type: Article. -Patients not being seen in ambulatory settings [PMC free article: PMC5980690] [PubMed: 29298494] [CrossRef]
- Giannitrapani KF, Walling AM, Garcia A, et al. Pilot of the Life-Sustaining Treatment Decisions Initiative Among Veterans With Serious Illness. Am J Hosp Palliat Care. 2020 May 8:1049909120923595. doi: 10.1177/1049909120923595. PMID: 32383388. -Other: No control group [PubMed: 32383388] [CrossRef]
- Gibson S, Bordofsky M, Hirsch J, et al. Community Palliative Care: One Community’s Experience Providing Outpatient Palliative Care. Journal of Hospice & Palliative Nursing. 2012;14(7):491–9. PMID: 108102393. Language: English. Entry Date: 20121019. Revision Date: 20150819. Publication Type: Journal Article. -Not relevant to key questions
- Givens JL, Sudore RL, Marshall GA, et al. Advance Care Planning in Community-Dwelling Patients With Dementia. Journal of Pain & Symptom Management. 2018;55(4):1105–12. doi: 10.1016/j.jpainsymman.2017.12.473. PMID: 128452447. Language: English. Entry Date: 20180911. Revision Date: 20190802. Publication Type: journal article. Journal Subset: Biomedical. -No full report (e.g. conference or meeting abstract) [PMC free article: PMC5866907] [PubMed: 29247754] [CrossRef]
- Golla H, Galushko M, Pfaff H, et al. Multiple sclerosis and palliative care - perceptions of severely affected multiple sclerosis patients and their health professionals: a qualitative study. BMC Palliative Care. 2014;13(1):1–23. doi: 10.1186/1472-684X-13-11. PMID: 103949573. Language: English. Entry Date: 20140522. Revision Date: 20150710. Publication Type: Journal Article. -Not relevant to key questions [PMC free article: PMC3995147] [PubMed: 24641905] [CrossRef]
- Gómez-Batiste X, Martínez-Muñoz M, Blay C, et al. Prevalence and characteristics of patients with advanced chronic conditions in need of palliative care in the general population: A cross-sectional study. Palliative Medicine. 2014;28(4):302–11. doi: 10.1177/0269216313518266. PMID: 104050949. Language: English. Entry Date: 20140320. Revision Date: 20150710. Publication Type: Journal Article. -Not a U.S. population [PubMed: 24403380] [CrossRef]
- Gómez-Batiste X, Martínez-Muñoz M, Blay C, et al. Utility of the NECPAL CCOMS-ICO© tool and the Surprise Question as screening tools for early palliative care and to predict mortality in patients with advanced chronic conditions: A cohort study. Palliative Medicine. 2017;31(8):754–63. doi: 10.1177/0269216316676647. PMID: 124589124. Language: English. Entry Date: 20170816. Revision Date: 20170816. Publication Type: Article. -Not a U.S. population [PubMed: 27815556] [CrossRef]
- Gorman RD. Integrating Palliative Care into Primary Care. Nursing Clinics of North America. 2016;51(3):367–79. doi: 10.1016/j.cnur.2016.05.002. PMID: 118019271. Language: English. Entry Date: 20180411. Revision Date: 20191101. Publication Type: Article. -Not relevant to key questions [PubMed: 27497014] [CrossRef]
- Goyal P, Gorodeski EZ, Flint KM, et al. Perspectives on Implementing a Multidomain Approach to Caring for Older Adults With Heart Failure. J Am Geriatr Soc. 2019 Oct 18doi: 10.1111/jgs.16183. PMID: 31625160. -Not relevant to key questions [PMC free article: PMC7206568] [PubMed: 31625160] [CrossRef]
- Gramsky C, Josephson S, Langford M, et al. Outpatient management of chronic heart failure. Critical Care Nursing Clinics of North America. 2003;15(4):501–9. PMID: 106715273. Language: English. Entry Date: 20040326. Revision Date: 20150711. Publication Type: Journal Article. -No original data [PubMed: 14717396]
- Grasso V. From the Executive Vice-President. Family Doctor: A Journal of the New York State Academy of Family Physicians. 2013 Fall2013:4-. PMID: 110537157. Language: English. Entry Date: 20151103. Revision Date: 20180424. Publication Type: Article. -No original data
- Green JA, Ephraim PL, Hill-Briggs FF, et al. Putting patients at the center of kidney care transitions: PREPARE NOW, a cluster randomized controlled trial. Contemporary clinical trials. 2018;73:98–110. doi: 10.1016/j.cct.2018.09.004. PMID: CN-01644930. -No original data [PMC free article: PMC6679594] [PubMed: 30218818] [CrossRef]
- Green MJ, Van Scoy LJ, Foy AJ, et al. A Randomized Controlled Trial of Strategies to Improve Family Members’ Preparedness for Surrogate Decision-Making. Am J Hosp Palliat Care. 2018 Jun;35(6):866–74. doi: 10.1177/1049909117744554. PMID: 29186982. -Patients not being seen in ambulatory settings [PMC free article: PMC5943708] [PubMed: 29186982] [CrossRef]
- Grimaldo DA, Wiener-Kronish JP, Jurson T, et al. A randomized, controlled trial of advanced care planning discussions during preoperative evaluations. Anesthesiology. 2001 Jul;95(1):43–50; discussion 5A. doi: 10.1097/00000542-200107000-00012. PMID: 11465582. -Not relevant to key questions [PubMed: 11465582] [CrossRef]
- Hall A, Rowland C, Grande G. How Should End-of-Life Advance Care Planning Discussions Be Implemented According to Patients and Informal Carers? A Qualitative Review of Reviews. J Pain Symptom Manage. 2019 Aug;58(2):311–35. doi: 10.1016/j.jpainsymman.2019.04.013. PMID: 31004772. -Not a U.S. population [PubMed: 31004772] [CrossRef]
- Hall P, Marshall D, Weaver L, et al. A method to enhance student teams in palliative care: piloting the McMaster-Ottawa Team Observed Structured Clinical Encounter. J Palliat Med. 2011 Jun;14(6):744–50. doi: 10.1089/jpm.2010.0295. PMID: 21524192. -Other: Medical students [PubMed: 21524192] [CrossRef]
- Hamano J, Oishi A, Kizawa Y. Prevalence and Characteristics of Patients Being at Risk of Deteriorating and Dying in Primary Care. J Pain Symptom Manage. 2019 Feb;57(2):266–72.e1. doi: 10.1016/j.jpainsymman.2018.11.006. PMID: 30447382. -Not a U.S. population [PubMed: 30447382] [CrossRef]
- Hardy B, King N, Firth J. Applying the Pictor technique to research interviews with people affected by advanced disease. Nurse Res. 2012;20(1):6–10. doi: 10.7748/nr2012.09.20.1.6.c9302. PMID: 23061268. -Not relevant to key questions [PubMed: 23061268] [CrossRef]
- Hare D, Jerome-D’Emilia B. Using Advance Care Planning to Inform and Improve Practice. Journal for Nurse Practitioners. 2019;15(3):e61–e3. doi: 10.1016/j.nurpra.2018.09.020. PMID: 135012461. Language: English. Entry Date: 20190305. Revision Date: 20190305. Publication Type: Article. Journal Subset: Blind Peer Reviewed. -Not relevant to key questions [CrossRef]
- Hart JL, Gabler N, Cooney E, et al. The absence of associations of demographic characteristics with advance directive completion among seriously ill outpatients. American journal of respiratory and critical care medicine. 2017;195. PMID: CN-01408923. -No full report (e.g. conference or meeting abstract)
- Heiman H, Bates DW, Fairchild D, et al. Improving completion of advance directives in the primary care setting: a randomized controlled trial. Am J Med. 2004 Sep 1;117(5):318–24. doi: 10.1016/j.amjmed.2004.03.027. PMID: 15336581. -Not relevant to key questions [PubMed: 15336581] [CrossRef]
- Hendriks JM, Vrijhoef HJ, Crijns HJ, et al. The effect of a nurse-led integrated chronic care approach on quality of life in patients with atrial fibrillation. Europace. 2014;16(4):491–9. doi: 10.1093/europace/eut286. PMID: CN-00988982. -Not a U.S. population [PubMed: 24058179] [CrossRef]
- Hjelmfors L, Stromberg A, Friedrichsen M, et al. Communicating prognosis and end-of-life care to heart failure patients: a survey of heart failure nurses’ perspectives. Eur J Cardiovasc Nurs. 2014 Apr;13(2):152–61. doi: 10.1177/1474515114521746. PMID: 24480779. -Not a U.S. population [PubMed: 24480779] [CrossRef]
- Holland DE, Vanderboom CE, Dose AM, et al. Nurse-Led Patient-Centered Advance Care Planning in Primary Care: A Pilot Study. Journal of Hospice & Palliative Nursing. 2017;19(4):368–75. doi: 10.1097/NJH.0000000000000358. PMID: 124208863. Language: English. Entry Date: 20170728. Revision Date: 20190212. Publication Type: Article. -No full report (e.g. conference or meeting abstract) [CrossRef]
- Holland N. Integrating Palliative Care Screening into Primary Care. Integrating Palliative Care Screening Into Primary Care. 2018:1-.-Other: Not a published article
- Hossler C, Levi BH, Simmons Z, et al. Advance care planning for patients with ALS: feasibility of an interactive computer program. Amyotroph Lateral Scler. 2011 May;12(3):172–7. doi: 10.3109/17482968.2010.509865. PMID: 20812887. -Other: No control group [PubMed: 20812887] [CrossRef]
- Howard M, Langevin J, Bernard C, et al. Primary care clinicians’ confidence, willingness participation and perceptions of roles in advance care planning discussions with patients: a multi-site survey. Fam Pract. 2019 Sep 19doi: 10.1093/fampra/cmz050. PMID: 31536615. -Not a U.S. population [PubMed: 31536615] [CrossRef]
- Howell D. Comprehensive palliative home care: a need for integrated models of primary and specialist care? Int J Palliat Nurs. 2007 Feb;13(2):54–5. doi: 10.12968/ijpn.2007.13.2.23069. PMID: 17363862. -No original data [PubMed: 17363862] [CrossRef]
- HPNA Position Statement Advance Care Planning. Hospice and Palliative Nurses Association; 2017. https:
//advancingexpertcare .org/position-statements. Accessed on March 2020. -No original data - Isrctn. A feasibility study of Sheffield Profile for Assessment and Referral for Care (SPARC): a holistic needs assessment questionnaire. http://www
.who.int/trialsearch/Trial2 .aspx?TrialID =ISRCTN25758268. 2011 PMID: CN-01815197. -Not relevant to key questions - Isrctn. OptCare: optimising palliative care for older people in the community. http://www
.who.int/trialsearch/Trial2 .aspx?TrialID =ISRCTN03393115. 2013 PMID: CN-01817757. -Not relevant to key questions - Isrctn. Optimising palliative care for older people in community settings. http://www
.who.int/trialsearch/Trial2 .aspx?TrialID =ISRCTN45837097. 2014 PMID: CN-01871367. -Not relevant to key questions - Isrctn. PARTNERS2: a cluster randomised control trial of a model of collaborative care for people with a diagnosis of bipolar, schizophrenia or other psychoses. http://www
.who.int/trialsearch/Trial2 .aspx?TrialID =ISRCTN95702682. 2017 PMID: CN-01888001. -No full report (e.g. conference or meeting abstract) - Ivany E, While A. Understanding the palliative care needs of heart failure patients. Br J Community Nurs. 2013 Sep;18(9):441–5. doi: 10.12968/bjcn.2013.18.9.441. PMID: 24005488. -Not a U.S. population [PubMed: 24005488] [CrossRef]
- Jackson MJ, Mecklenburg J, Feshzion A. Palliative Care at the Doorstep: A Community-Based Model. Journal of Hospice & Palliative Nursing. 2017;19(3):282–6. doi: 10.1097/NJH.0000000000000344. PMID: 123155583. Language: English. Entry Date: 20170527. Revision Date: 20190212. Publication Type: Article. -Patients not being seen in ambulatory settings [CrossRef]
- Jackson VA, Jacobsen J, Greer JA, et al. The Cultivation of Prognostic Awareness Through the Provision of Early Palliative Care in the Ambulatory Setting: A Communication Guide. Journal of Palliative Medicine. 2013;16(8):894–900. doi: 10.1089/jpm.2012.0547. PMID: 104199052. Language: English. Entry Date: 20130730. Revision Date: 20150711. Publication Type: Journal Article. -Case series or case reports [PubMed: 23786425] [CrossRef]
- Jackson VA, Jacobsen J, Greer JA, et al. The cultivation of prognostic awareness through the provision of early palliative care in the ambulatory setting: a communication guide. J Palliat Med. 2013 Aug;16(8):894–900. doi: 10.1089/jpm.2012.0547. PMID: 23786425. -No original data [PubMed: 23786425] [CrossRef]
- Janssen DJA, Spruit MA, Uszko-Lencer NH, et al. Symptoms, Comorbidities, and Health Care in Advanced Chronic Obstructive Pulmonary Disease or Chronic Heart Failure. Journal of Palliative Medicine. 2011;14(6):735–43. doi: 10.1089/jpm.2010.0479. PMID: 104801831. Language: English. Entry Date: 20110706. Revision Date: 20150711. Publication Type: Journal Article. -Not relevant to key questions [PubMed: 21510771] [CrossRef]
- Javier AD, Figueroa R, Siew ED, et al. Reliability and Utility of the Surprise Question in CKD Stages 4 to 5. Am J Kidney Dis. 2017 Jul;70(1):93–101. doi: 10.1053/j.ajkd.2016.11.025. PMID: 28215946. -Not relevant to key questions [PMC free article: PMC5771496] [PubMed: 28215946] [CrossRef]
- Jennings LA, Turner M, Keebler C, et al. The Effect of a Comprehensive Dementia Care Management Program on End-of-Life Care. J Am Geriatr Soc. 2019 Mar;67(3):443–8. doi: 10.1111/jgs.15769. PMID: 30675898. -Not relevant to key questions [PMC free article: PMC9859712] [PubMed: 30675898] [CrossRef]
- Jerant AF, Azari RS, Nesbitt TS, et al. The TLC model of palliative care in the elderly: preliminary application in the assisted living setting. Ann Fam Med. 2004 Jan–Feb;2(1):54–60. PMID: 15053284. -Patients not being seen in ambulatory settings [PMC free article: PMC1466621] [PubMed: 15053284]
- Johnston SC, Pfeifer MP, McNutt R. The discussion about advance directives. Patient and physician opinions regarding when and how it should be conducted. End of Life Study Group. Arch Intern Med. 1995 May 22;155(10):1025–30. doi: 10.1001/archinte.155.10.1025. PMID: 7748044. -Article published prior to year 2000 [PubMed: 7748044] [CrossRef]
- Jones TD. Discovering the Barriers to Addressing Advance Care Planning in the Primary Care Setting. Discovering the Barriers to Addressing Advance Care Planning in the Primary Care Setting. 2017:1-.-Other: Not a published article
- Jung K, Sudat SEK, Kwon N, et al. Predicting need for advanced illness or palliative care in a primary care population using electronic health record data. J Biomed Inform. 2019 Apr;92:103115. doi: 10.1016/j.jbi.2019.103115. PMID: 30753951. -No outcomes of interest [PMC free article: PMC6512802] [PubMed: 30753951] [CrossRef]
- Kahana B, Dan A, Kahana E, et al. The personal and social context of planning for end-of-life care. J Am Geriatr Soc. 2004 Jul;52(7):1163–7. doi: 10.1111/j.1532-5415.2004.52316.x. PMID: 15209656. -Not relevant to key questions [PubMed: 15209656] [CrossRef]
- Kamo N, Williams BL, Smith DL, et al. Improving the Electronic Capture of Advance Care Directives in a Healthcare Delivery System. Journal of the American Geriatrics Society. 2017;65(5):973–9. doi: 10.1111/jgs.14695. PMID: 123088475. Language: English. Entry Date: 20170523. Revision Date: 20180904. Publication Type: Article. -Not relevant to key questions [PubMed: 28182261] [CrossRef]
- Karlen N, Cruz B, Leigh AE. Resident-Led Palliative Care Education Project. J Palliat Med. 2016 Apr;19(4):428–36. doi: 10.1089/jpm.2015.0246. PMID: 26859443. -Other: Trainee education [PubMed: 26859443] [CrossRef]
- Karus D, Raveis VH, Marconi K, et al. Service needs of patients with advanced HIV disease: a comparison of client and staff reports at three palliative care projects. AIDS Patient Care STDS. 2004 Mar;18(3):145–58. doi: 10.1089/108729104322994838. PMID: 15104875. -Not relevant to key questions [PubMed: 15104875] [CrossRef]
- Katz IJ, Pirabhahar S, Williamson P, et al. iConnect CKD - virtual medical consulting: a web-based chronic kidney disease, hypertension and diabetes integrated care program. Nephrology (carlton, vic.). 2018;23(7):646–52. doi: 10.1111/nep.13070. PMID: CN-01617741. -Not a U.S. population [PubMed: 28474361] [CrossRef]
- Kavalieratos D, Mitchell EM, Carey TS, et al. “Not the ‘grim reaper service’”: an assessment of provider knowledge, attitudes, and perceptions regarding palliative care referral barriers in heart failure. J Am Heart Assoc. 2014 Jan 2;3(1):e000544. doi: 10.1161/jaha.113.000544. PMID: 24385453. -Not relevant to key questions [PMC free article: PMC3959712] [PubMed: 24385453] [CrossRef]
- Khan N, Massare J, Hussain NA, et al. The effectiveness of a quality improvement project for advance care planning among older adults. Journal of the american geriatrics society. 2018;66:S123-. doi: 10.1111/jgs.15376. PMID: CN-01606989. -No full report (e.g. conference or meeting abstract) [CrossRef]
- Khandelwal CM, Prentice A, Fisher J, et al. TREATING DEMENTIA WITH SHARED GROUP VISITS. Family Practice Management. 2015;22(3):16–21. PMID: 103799387. Language: English. Entry Date: 20150513. Revision Date: 20150710. Publication Type: Journal Article. -Not relevant to key questions [PubMed: 25978505]
- Kimbell B, Murray SA, Byrne H, et al. Palliative care for people with advanced liver disease: A feasibility trial of a supportive care liver nurse specialist. Palliat Med. 2018 May;32(5):919–29. doi: 10.1177/0269216318760441. PMID: 29516776. -Not relevant to key questions [PMC free article: PMC5946657] [PubMed: 29516776] [CrossRef]
- Kimmel AL, Wang J, Scott RK, et al. FAmily CEntered (FACE) advance care planning: Study design and methods for a patient-centered communication and decision-making intervention for patients with HIV/AIDS and their surrogate decision-makers. Contemp Clin Trials. 2015 Jul;43:172–8. doi: 10.1016/j.cct.2015.06.003. PMID: 26044463. -No full report (e.g. conference or meeting abstract) [PMC free article: PMC4940182] [PubMed: 26044463] [CrossRef]
- Kirchhoff KT, Hammes BJ, Kehl KA, et al. Effect of a disease-specific planning intervention on surrogate understanding of patient goals for future medical treatment. J Am Geriatr Soc. 2010 Jul;58(7):1233–40. doi: 10.1111/j.1532-5415.2010.02760.x. PMID: 20649686. -No outcomes of interest [PMC free article: PMC2964863] [PubMed: 20649686] [CrossRef]
- Kluger BM, Persenaire MJ, Holden SK, et al. Implementation issues relevant to outpatient neurology palliative care. Ann Palliat Med. 2018 Jul;7(3):339–48. doi: 10.21037/apm.2017.10.06. PMID: 29307208. -No outcomes of interest [PubMed: 29307208] [CrossRef]
- Kochhar S. Discussing end-of-life care with COPD patients. Independent Nurse. 2015:17–20. PMID: 109812937. Language: English. Entry Date: 20150828. Revision Date: 20180117. Publication Type: Journal Article. -Not relevant to key questions
- Koss C. Encounters With Health-Care Providers and Advance Directive Completion by Older Adults. Journal of Palliative Care. 2018;33(3):178–81. doi: 10.1177/0825859718769099. PMID: 130213581. Language: English. Entry Date: 20181128. Revision Date: 20181128. Publication Type: journal article. Journal Subset: Biomedical. -Not relevant to key questions [PubMed: 29651900] [CrossRef]
- Kurella Tamura M, Goldstein MK, Perez-Stable EJ. Preferences for dialysis withdrawal and engagement in advance care planning within a diverse sample of dialysis patients. Nephrol Dial Transplant. 2010 Jan;25(1):237–42. doi: 10.1093/ndt/gfp430. PMID: 19734137. -Not relevant to key questions [PMC free article: PMC2910327] [PubMed: 19734137] [CrossRef]
- Lakasing E. Palliative care in primary care. GM: Midlife & Beyond. 2012;42(11):60–4. PMID: 108078541. Language: English. Entry Date: 20130118. Revision Date: 20150712. Publication Type: Journal Article. Journal Subset: Biomedical. -No original data
- Lally KM, Ducharme CM, Roach RL, et al. Interprofessional training: Geriatrics and palliative care principles for primary care teams in an ACO. Gerontol Geriatr Educ. 2019 Jan–Mar;40(1):121–31. doi: 10.1080/02701960.2018.1459595. PMID: 29630470. -No outcomes of interest [PubMed: 29630470] [CrossRef]
- Lam DY, Scherer JS, Brown M, et al. A Conceptual Framework of Palliative Care across the Continuum of Advanced Kidney Disease. Clin J Am Soc Nephrol. 2019 Apr 5;14(4):635–41. doi: 10.2215/cjn.09330818. PMID: 30728167. -No original data [PMC free article: PMC6450347] [PubMed: 30728167] [CrossRef]
- Landers A, Wiseman R, Pitama S, et al. Severe COPD and the transition to a palliative approach. Breathe (Sheff). 2017 Dec;13(4):310–6. doi: 10.1183/20734735.013917. PMID: 29209424. -Not a U.S. population [PMC free article: PMC5709800] [PubMed: 29209424] [CrossRef]
- Landry FJ, Kroenke K, Lucas C, et al. Increasing the use of advance directives in medical outpatients. J Gen Intern Med. 1997 Jul;12(7):412–5. doi: 10.1046/j.1525-1497.1997.00072.x. PMID: 9229279. -Article published prior to year 2000 [PMC free article: PMC1497131] [PubMed: 9229279] [CrossRef]
- Lavesen M, Marsa KB, Bove DG. A new way of organising palliative care for patients with severe chronic obstructive pulmonary disease. Int J Palliat Nurs. 2018 Feb 2;24(2):64–8. doi: 10.12968/ijpn.2018.24.2.64. PMID: 29469649. -Not a U.S. population [PubMed: 29469649] [CrossRef]
- Lee L, Hillier LM, Locklin J, et al. Advanced Care Planning for Persons With Dementia in Primary Care: Attitudes and Barriers Among Health-Care Professionals. J Palliat Care. 2018 Nov 22:825859718812463. doi: 10.1177/0825859718812463. PMID: 30465471. -Not relevant to key questions [PubMed: 30465471] [CrossRef]
- Lem AA, Schwartz M. African American Heart Failure Patients’ Perspective on Palliative Care in the Outpatient Setting. Journal of Hospice & Palliative Nursing. 2014;16(8):536–42. doi: 10.1097/NJH.0000000000000103. PMID: 107840245. Language: English. Entry Date: 20141205. Revision Date: 20150712. Publication Type: Journal Article. -Not relevant to key questions [CrossRef]
- Leung KM, Blatt C, Ravid S, et al. A PILOT STUDY OF ADVANCE CARE PLANNING IN THE OUTPATIENT CARDIOLOGY SETTING: PRELIMINARY FEASIBILITY AND STUDY DESIGN. Journal of the American College of Cardiology (JACC). 2019;73(9):3011-. doi: 10.1016/S0735-1097(19)33617-4. PMID: 135347126. Language: English. Entry Date: In Process. Revision Date: 20190326. Publication Type: Article. Supplement Title: 2019 Supplement 1. Journal Subset: Biomedical. -No full report (e.g. conference or meeting abstract) [CrossRef]
- Levy C, Bemski J, Kutner JS. Are hospices establishing pre-hospice/palliative care programs? Journal of Palliative Medicine. 2008;11(3):413–4. PMID: 105761675. Language: English. Entry Date: 20080711. Revision Date: 20150711. Publication Type: Journal Article. -No original data [PubMed: 18363479]
- Lillie KM, Dirks LG, Curtis JR, et al. Culturally Adapting an Advance Care Planning Communication Intervention With American Indian and Alaska Native People in Primary Care. Journal of Transcultural Nursing. 2019. -No outcomes of interest [PMC free article: PMC6938564] [PubMed: 31258037]
- Lopez-Candales AL, Carron C, Schwartz J. Need for hospice and palliative care services in patients with end-stage heart failure treated with intermittent infusion of inotropes. Clin Cardiol. 2004 Jan;27(1):23–8. doi: 10.1002/clc.4960270107. PMID: 14743852. -Not relevant to key questions [PMC free article: PMC6654657] [PubMed: 14743852] [CrossRef]
- Lowe J, Fischer J, Dolor R, et al. Creation and Utilization of Electronic Health Record Algorithm and Practice Alert to Identify Patients Eligible for Advance Care Planning Discussion with Primary Care Clinics for the Meta-LARC ACP Study (S789). -No full report (e.g. conference or meeting abstract)
- Lum HD, Barnes DE, Katen MT, et al. Improving a Full Range of Advance Care Planning Behavior Change and Action Domains: The PREPARE Randomized Trial. J Pain Symptom Manage. 2018 Oct;56(4):575–81.e7. doi: 10.1016/j.jpainsymman.2018.06.007. PMID: 29940209. -Patients do not have serious life-threatening chronic illness or conditions [PMC free article: PMC6138565] [PubMed: 29940209] [CrossRef]
- Lum HD, Jones J, Matlock DD, et al. Advance Care Planning Meets Group Medical Visits: The Feasibility of Promoting Conversations. Ann Fam Med. 2016 Mar;14(2):125–32. doi: 10.1370/afm.1906. PMID: 26951587. -Patients do not have serious life-threatening chronic illness or conditions [PMC free article: PMC4781515] [PubMed: 26951587] [CrossRef]
- Luu N-P, Nigrin C, Peairs K, et al. Increasing Advance Care Planning Completion at an Academic Internal Medicine Outpatient Clinic. Journal of Pain & Symptom Management. 2017;54(3):383–6. doi: 10.1016/j.jpainsymman.2017.05.006. PMID: 125217120. Language: English. Entry Date: 20180529. Revision Date: 20181009. Publication Type: journal article. Journal Subset: Biomedical. -Patients do not have serious life-threatening chronic illness or conditions [PubMed: 28797865] [CrossRef]
- Lyon ME, Squires L, D’Angelo LJ, et al. FAmily-CEntered (FACE) Advance Care Planning Among African-American and Non-African-American Adults Living With HIV in Washington, DC: a Randomized Controlled Trial to Increase Documentation and Health Equity. Journal of pain and symptom management. 2019;57(3):607–16. doi: 10.1016/j.jpainsymman.2018.11.014. PMID: CN-01789831. -Patients do not have serious life-threatening chronic illness or conditions [PMC free article: PMC6382515] [PubMed: 30472318] [CrossRef]
- MacDonald N, MacDonald N. Palliative care and primary care. Journal of Pain & Symptom Management. 2002;23(1):58–9. PMID: 106920598. Language: English. Entry Date: 20020503. Revision Date: 20190920. Publication Type: journal article. -No original data [PubMed: 11811155]
- Massmann JA, Revier SS, Ponto J. Implementing the Serious Illness Care Program in Primary Care. J Hosp Palliat Nurs. 2019 Aug;21(4):291–9. doi: 10.1097/njh.0000000000000531. PMID: 30893288. -Not relevant to key questions [PubMed: 30893288] [CrossRef]
- Mendoza-De La Garza M, Thyssen K, Lowe K, et al. You’ve got mail: using technology to promote advance care planning. Journal of the american geriatrics society. 2018;66:S118–S9. doi: 10.1111/jgs.15376. PMID: CN-01606964. -No full report (e.g. conference or meeting abstract) [CrossRef]
- Mentz RJ, O’Connor CM, Granger BB, et al. Palliative care and hospital readmissions in patients with advanced heart failure: Insights from the PAL-HF trial. Am Heart J. 2018 Oct;204:202–4. doi: 10.1016/j.ahj.2018.07.010. PMID: 30100051. -No original data [PMC free article: PMC6657804] [PubMed: 30100051] [CrossRef]
- Metzger, M., Song, M. K., Ward, S., et al. A randomized controlled pilot trial to improve advance care planning for LVAD patients and their surrogates. Heart Lung. 2016. 45:186–92. doi: 10.1016/j.hrtlng.2016.01.005. PMID: 26948697. -Other: Concordance between patient and caregiver [PMC free article: PMC5748890] [PubMed: 26948697] [CrossRef]
- Miller H, Tan J, Zwar N, et al. Patient experiences of nurse-facilitated advance care planning in a general practice setting: a qualitative study. BMC Palliative Care. 2019;18(1):N.PAG-N.PAG. doi: 10.1186/s12904-019-0411-z. PMID: 135107435. Language: English. Entry Date: 20190309. Revision Date: 20191101. Publication Type: Article. Journal Subset: Biomedical. -Not a U.S. population [PMC free article: PMC6404299] [PubMed: 30841925] [CrossRef]
- Mitchell SL, Shaffer ML, Cohen S, et al. An Advance Care Planning Video Decision Support Tool for Nursing Home Residents With Advanced Dementia: A Cluster Randomized Clinical Trial. JAMA Internal Medicine. 2018;178(7):961–9. doi: 10.1001/jamainternmed.2018.1506. PMID: 130539552. Language: English. Entry Date: 20190426. Revision Date: 20190809. Publication Type: journal article. Journal Subset: Biomedical. -Patients not being seen in ambulatory settings [PMC free article: PMC6033645] [PubMed: 29868778] [CrossRef]
- Morris DA, Johnson KS, Ammarell N, et al. What is your understanding of your illness? A communication tool to explore patients’ perspectives of living with advanced illness. J Gen Intern Med. 2012 Nov;27(11):1460–6. doi: 10.1007/s11606-012-2109-2. PMID: 22638605. -Not relevant to key questions [PMC free article: PMC3475827] [PubMed: 22638605] [CrossRef]
- Murray SA, Mitchell GK, Burge F, et al. It’s time to develop primary care services for the dying. Journal of Palliative Care. 2006 2006 Summer;22(2):115–6. PMID: 106326748. Language: English. Entry Date: 20060901. Revision Date: 20150820. Publication Type: Journal Article. Journal Subset: Biomedical. -Not a U.S. population [PubMed: 17265665]
- Murray SA, Mitchell S, Boyd K, et al. Palliative care: training the primary care workforce is more important than rebranding. Bmj. 2019 Jun 13;365:l4119. doi: 10.1136/bmj.l4119. PMID: 31196840. -No original data [PubMed: 31196840] [CrossRef]
- Nair D, El-Sourady M, Bonnet K, et al. Barriers and Facilitators to Discussing Goals of Care among Nephrology Trainees: A Qualitative Analysis and Novel Educational Intervention. J Palliat Med. 2020 Feb 11doi: 10.1089/jpm.2019.0570. PMID: 32045328. -Not relevant to key questions [PMC free article: PMC7404821] [PubMed: 32045328] [CrossRef]
- Nassikas NJ, Baird GL, Duffy CM. Improving Advance Care Planning in a Resident Primary Care Clinic. Am J Hosp Palliat Care. 2019 Sep 2:1049909119872757. doi: 10.1177/1049909119872757. PMID: 31476887. -Patients do not have serious life-threatening chronic illness or conditions [PubMed: 31476887] [CrossRef]
- Nct. Advance Care Planning: a Way to Improve End-of-life Care Life Care. https:
//clinicaltrials .gov/show/NCT01944813. 2013 PMID: CN-01490150. -No original data - Nct. Advancing Symptom Alleviation With Palliative Treatment. https:
//clinicaltrials .gov/show/NCT02713347. 2016 PMID: CN-01556678. -No original data - Nct. An Effectiveness-Implementation Trial of SPIRIT in ESRD. -No original data
- Nct. Clinical Monitoring to Facilitate Continuous Care for Substance Abusing Clients. https:
//clinicaltrials .gov/show/NCT01831999. 2013 PMID: CN-01578169. -Not relevant to key questions - Nct. Communication During Hospitalization About Resuscitation Trial. https:
//clinicaltrials .gov/show/NCT02984124. 2016 PMID: CN-01560427. -No original data - Nct. Comparison of Immunity Following IPV Versus fIPV: a Community Based Randomized Controlled Trial in Pakistan. https:
//clinicaltrials .gov/show/NCT03286803. 2017 PMID: CN-01564178. -Not relevant to key questions - Nct. Determining Depression Treatment Preferences of Low-Income Latinos in Primary Care Settings. https:
//clinicaltrials .gov/show/NCT00260169. 2005 PMID: CN-01512660. -No original data - Nct. Educational Video to Improve Nursing Home Care in End-stage Dementia. https:
//clinicaltrials .gov/show/NCT01774799. 2013 PMID: CN-01540050. -Not relevant to key questions - Nct. FANMI: community Cohort Care for HIV-Infected Adolescent Girls in Haiti. https:
//clinicaltrials .gov/show/NCT03286504. 2017 PMID: CN-01564167. -Not a U.S. population - Nct. Improving Quality of Care - Managing Atrial Fibrillation Through Care Teams and Health Information Technology. https:
//clinicaltrials .gov/show/NCT02734875. 2016 PMID: CN-01557254. -No original data - Nct. Improving Symptoms and Quality of Life in Chronic Heart Failure: pilot Study. https:
//clinicaltrials .gov/show/NCT01581008. 2011 PMID: CN-01531672. -No original data - Nct. Introducing the Palliative Care Comprehensive Tool in Family Medicine. https:
//clinicaltrials .gov/show/NCT03267706. 2017 PMID: CN-01496222. -No original data - Nct. Living Well Project for Persons With AIDS. https:
//clinicaltrials .gov/show/NCT01848483. 2013 PMID: CN-01542036. -No original data - Nct. More Than a Movement Disorder: applying Palliative Care to Parkinson’s Disease. https:
//clinicaltrials .gov/show/NCT03076671. 2017 PMID: CN-01562519. -No original data - Nct. Palliative Care Coaching for Families With Rare Advanced Lung Diseases. https:
//clinicaltrials .gov/show/NCT03813667. 2019 PMID: CN-01918918. -No original data - Nct. Palliative Care Communication With Alaska Native and American Indian People. https:
//clinicaltrials .gov/show/NCT03256110. 2017 PMID: CN-01495908. -No original data - Nct. Pilot Evaluation of Hospice Decision Support Tools. https:
//clinicaltrials .gov/show/NCT03794700. 2019 PMID: CN-01795734. -No original data - Nct. Sharing and Talking About my Preferences. https:
//clinicaltrials .gov/show/NCT03103828. 2017 PMID: CN-01563179. -No original data - Nct. The DIVERT-CARE (Collaboration Action Research & Evaluation) Trial. https:
//clinicaltrials .gov/show/NCT03012256. 2017 PMID: CN-01561071. -Not relevant to key questions - Nct. UC Health Planning Study. https:
//clinicaltrials .gov/show/NCT04012749. 2019 PMID: CN-01953144. -No original data - Nct. Using Videos to Facilitate Advance Care Planning for Patients With Heart Failure. -No original data
- Neuman K, Wade L. Advance directives: the experience of health care professionals across the continuum of care. Soc Work Health Care. 1999;28(3):39–54. doi: 10.1300/J010v28n03_03. PMID: 10457980. -Not relevant to key questions [PubMed: 10457980] [CrossRef]
- Neumann, P, Ganiats, T.G., Russell, et al. Cost-Effectiveness in Health and Medicine, 2nd edition. Oxford University Press. 2017-Other: Article not available for review
- Noble S, Hargreaves P. Hospice day care. European Journal of Palliative Care. 2002;9(4):153–5. PMID: 106855871. Language: English. Entry Date: 20030808. Revision Date: 20150820. Publication Type: Journal Article. -Not a U.S. population
- Noppe D, Veen HI, Mooren K. COPD patients in need of palliative care: Identification after hospitalization through the surprise question. Chron Respir Dis. 2019 Jan–Dec;16:1479972318796219. doi: 10.1177/1479972318796219. PMID: 30221994. -Not a U.S. population [PMC free article: PMC6301856] [PubMed: 30221994] [CrossRef]
- Ntr. Bringing palliative care for dementia patients into agreement with their wishes and needs: development and evaluation of Decidem. http://www
.who.int/trialsearch/Trial2 .aspx?TrialID=NTR5773. 2016 PMID: CN-01881286. -Not relevant to key questions - Ntr. Do communication training and patient education improve the conversation about treatment restrictions? http://www
.who.int/trialsearch/Trial2 .aspx?TrialID=NTR7188. 2018 PMID: CN-01897060. -Not relevant to key questions - O’Hare AM, Szarka J, McFarland LV, et al. Provider Perspectives on Advance Care Planning for Patients with Kidney Disease: Whose Job Is It Anyway? Clin J Am Soc Nephrol. 2016 May 6;11(5):855–66. doi: 10.2215/cjn.11351015. PMID: 27084877. -No original data [PMC free article: PMC4858488] [PubMed: 27084877] [CrossRef]
- Ornstein K, Hernandez CR, DeCherrie LV, et al. The Mount Sinai (New York) Visiting Doctors Program: Meeting the Needs of the Urban Homebound Population. Care Management Journals. 2011 Winter2011;12(4):159–63. doi: 10.1891/1521-0987.12.4.159. PMID: 104605686. Language: English. Entry Date: 20120109. Revision Date: 20150820. Publication Type: Journal Article. Journal Subset: Nursing. -Other: Home visits [PubMed: 23214235] [CrossRef]
- Paes P. A pilot study to assess the effectiveness of a palliative care clinic in improving the quality of life for patients with severe heart failure. Palliative Medicine. 2005;19(5):505–6. PMID: 106239424. Language: English. Entry Date: 20070223. Revision Date: 20150711. Publication Type: Journal Article. -Not a U.S. population [PubMed: 16218166]
- Paiva A, Redding CA, Iannone L, et al. Feasibility of Delivering a Tailored Intervention for Advance Care Planning in Primary Care Practice. J Am Geriatr Soc. 2019 Sep;67(9):1917–21. doi: 10.1111/jgs.16035. PMID: 31271654. -Not relevant to key questions [PMC free article: PMC6732008] [PubMed: 31271654] [CrossRef]
- Paiva CE, de Freitas Seriaco FdLG, de Angelis Nascimento MS, et al. Missed Opportunities of Integration of Palliative Care: Frequency, Causes, and Profile of Missed Visits in an Oncologic Palliative Care Outpatient Unit. Journal of Pain and Symptom Management. 2020. -Not a U.S. population [PubMed: 31988019]
- Paladino J, Kilpatrick L, O’Connor N, et al. Training Clinicians in Serious Illness Communication Using a Structured Guide: Evaluation of a Training Program in Three Health Systems. J Palliat Med. 2020 Mar;23(3):337–45. doi: 10.1089/jpm.2019.0334. PMID: 31503520. -No outcomes of interest [PubMed: 31503520] [CrossRef]
- Palliative Care for Patients With Advanced Heart Disease (NCT02302014). US National Library of Medicine; 2015. https:
//clinicaltrials .gov/ct2/show/NCT02302014?term =Palliative+Care+for+Patients+With+Advanced+Heart+Disease&draw=2&rank=1. Accessed on April 8, 2020. -No original data - Pastor DK, Cunningham RP, White PH, et al. We Have to Talk: Results of an Interprofessional Clinical Simulation for Delivering Bad Health News in Palliative Care. Clinical Simulation in Nursing. 2016;12(8):320–7. doi: 10.1016/j.ecns.2016.03.005. PMID: 117095932.-Other: Trainee education [CrossRef]
- Pattison M, Romer AL. Improving care through the end of life: launching a primary care clinic-based program. Journal of Palliative Medicine. 2001;4(2):249–54. PMID: 107054448. Language: English. Entry Date: 20010928. Revision Date: 20150711. Publication Type: Journal Article. -No original data [PubMed: 11441634]
- Pearlman RA, Starks H, Cain KC, et al. Improvements in advance care planning in the Veterans Affairs System: results of a multifaceted intervention. Arch Intern Med. 2005 Mar 28;165(6):667–74. doi: 10.1001/archinte.165.6.667. PMID: 15795344. -Not relevant to key questions [PubMed: 15795344] [CrossRef]
- Pelayo-Alvarez M, Perez-Hoyos S, Agra-Varela Y. Clinical Effectiveness of Online Training in Palliative Care of Primary Care Physicians. Journal of Palliative Medicine. 2013;16(10):1188–96. doi: 10.1089/jpm.2013.0005. PMID: 104141953. Language: English. Entry Date: 20131009. Revision Date: 20150710. Publication Type: Journal Article. -Not a U.S. population [PMC free article: PMC3791045] [PubMed: 23987657] [CrossRef]
- Pereira-Salgado A, Philpot S, Schlieff J, et al. Advance Care Planning Simulation-Based Learning for Nurses: Mixed Methods Pilot Study. Clinical Simulation in Nursing. 2019;29:1–8. doi: 10.1016/j.ecns.2018.11.006. PMID: 135531786. Language: English. Entry Date: 20190328. Revision Date: 20190328. Publication Type: Article. Journal Subset: Core Nursing. -Not a U.S. population [CrossRef]
- Pettit JM, Ryan AM, Armin J, et al. Medical-Legal Partnerships to Enhance Residency Training in Advance Care Planning. Fam Med. 2019 Apr;51(4):353–7. doi: 10.22454/FamMed.2019.392574. PMID: 30973625. -Other: Trainee education [PubMed: 30973625] [CrossRef]
- Pinto C, Firth AM, Groeneveld EI, et al. Patients’ views on care and their association with outcomes in palliative care. Palliative Medicine. 2019;33(4):467–9. doi: 10.1177/0269216319831383. PMID: 135611237. Language: English. Entry Date: 20190401. Revision Date: 20190708. Publication Type: Article. Journal Subset: Biomedical. -Not a U.S. population [CrossRef]
- Polt G, Weixler D, Bauer N. [A retrospective study about the influence of an emergency information form on the place of death of palliative care patients]. Wien Med Wochenschr. 2019 Feb 6doi: 10.1007/s10354-019-0681-3. PMID: 30725441. -Not in English [PubMed: 30725441] [CrossRef]
- Porter-Williamson K, von Gunten CF, Garman K, et al. Improving knowledge in palliative medicine with a required hospice rotation for third-year medical students. Acad Med. 2004 Aug;79(8):777–82. doi: 10.1097/00001888-200408000-00013. PMID: 15277135. -Other: Medical students, not clinicians [PubMed: 15277135] [CrossRef]
- Quinones-Gonzalez S. Bridging the communication gap in hospice and palliative care for Hispanics and Latinos. Omega (Westport). 2013;671(1–2):193–200. doi: 10.2190/OM.67.1-2.w. PMID: 23977796. -Not relevant to key questions [PubMed: 23977796] [CrossRef]
- Qureshi A, Marshall D, Kaczorowski J, et al. Assessment of a year-long educational initiative to improve physicians’ clinical knowledge of the care of terminally ill patients. Journal of Palliative Care. 2006;22(3):223–4. PMID: 106220116. Language: English. Entry Date: 20070119. Revision Date: 20150711. Publication Type: Journal Article. -No full report (e.g. conference or meeting abstract)
- Rabow MW, Smith AK, Braun JL, et al. Outpatient palliative care practices. Archives of Internal Medicine. 2010;170(7):654–5. doi: 10.1001/archinternmed.2010.56. PMID: 105171435. Language: English. Entry Date: 20100514. Revision Date: 20150711. Publication Type: Journal Article. -No original data [PubMed: 20386012] [CrossRef]
- Rao A, Kim D, Darzi A, et al. Long-term trends of use of health service among heart failure patients. Eur Heart J Qual Care Clin Outcomes. 2018 Jul 1;4(3):220–31. doi: 10.1093/ehjqcco/qcy013. PMID: 29718210. -Not a U.S. population [PubMed: 29718210] [CrossRef]
- Rawlings D, Litster C, Miller-Lewis L, et al. The voices of death doulas about their role in end-of-life care. Health Soc Care Community. 2019 Aug 25doi: 10.1111/hsc.12833. PMID: 31448464. -Not relevant to key questions [PubMed: 31448464] [CrossRef]
- Ray A, Najmi A, Sadasivam B. Integrating palliative care with primary care: A synergistic mix. J Family Med Prim Care. 2019 Sep;8(9):3074–5. doi: 10.4103/jfmpc.jfmpc_519_19. PMID: 31681703. -No original data [PMC free article: PMC6820400] [PubMed: 31681703] [CrossRef]
- Reidy J, Halvorson J, Makowski S, et al. Health System Advance Care Planning Culture Change for High-Risk Patients: The Promise and Challenges of Engaging Providers, Patients, and Families in Systematic Advance Care Planning. J Palliat Med. 2017 Apr;20(4):388–94. doi: 10.1089/jpm.2016.0272. PMID: 27983894. -Not relevant to key questions [PubMed: 27983894] [CrossRef]
- Reinke LF, Vig EK, Tartaglione EV, et al. Symptom Burden and Palliative Care Needs Among High-Risk Veterans With Multimorbidity. Journal of Pain & Symptom Management. 2019;57(5):880–9. doi: 10.1016/j.jpainsymman.2019.02.011. PMID: 135994504. Language: English. Entry Date: In Process. Revision Date: 20190428. Publication Type: journal article. Journal Subset: Biomedical. -Not relevant to key questions [PubMed: 30794938] [CrossRef]
- Richardson J. Health promotion in palliative care: the patients’ perception of therapeutic interaction with the palliative nurse in the primary care setting. J Adv Nurs. 2002 Nov;40(4):432–40. doi: 10.1046/j.1365-2648.2002.02391.x. PMID: 12421402. -Not a U.S. population [PubMed: 12421402] [CrossRef]
- Richardson K, Cert PG, MacLeod R, et al. Ever decreasing circles: terminal illness, empowerment and decision-making. J Prim Health Care. 2010 Jun;2(2):130–5. PMID: 20690303. -Not a U.S. population [PubMed: 20690303]
- Ritchie CS, Houston TK, Richman JS, et al. The E-Coach technology-assisted care transition system: a pragmatic randomized trial. Translational behavioral medicine. 2016;6(3):428–37. doi: 10.1007/s13142-016-0422-8. PMID: CN-01164857. -Not relevant to key questions [PMC free article: PMC4987612] [PubMed: 27339715] [CrossRef]
- Robertson ML, Colburn JL. Grace, Connection, and Hard Conversations: Primary Care Geriatrics in the COVID Era. The American Geriatrics Society. 2020. -No original data [PMC free article: PMC7262061] [PubMed: 32253750]
- Roche-Green A, Bungo C, Nation-Howard B. Assessing The Involvement of Primary Care Physicians in Patient’s Advance Care Planning (S807). Journal of Pain & Symptom Management. 2017;53(2):469–70. doi: 10.1016/j.jpainsymman.2016.12.318. PMID: 120798227. Language: English. Entry Date: 20180328. Revision Date: 20170123. Publication Type: Article. Journal Subset: Biomedical. -No full report (e.g. conference or meeting abstract) [CrossRef]
- Rocque GB, Dionne-Odom JN, Sylvia Huang CH, et al. Implementation and Impact of Patient Lay Navigator-Led Advance Care Planning Conversations. J Pain Symptom Manage. 2017 Apr;53(4):682–92. doi: 10.1016/j.jpainsymman.2016.11.012. PMID: 28062341. -Patient population is cancer-only [PMC free article: PMC6559345] [PubMed: 28062341] [CrossRef]
- Rose BL, Leung S, Gustin J, et al. Initiating Advance Care Planning in Primary Care: A Model for Success. J Palliat Med. 2019 Apr;22(4):427–31. doi: 10.1089/jpm.2018.0380. PMID: 30481086. -Not relevant to key questions [PubMed: 30481086] [CrossRef]
- Rubin SM, Strull WM, Fialkow MF, et al. Increasing the completion of the durable power of attorney for health care. A randomized, controlled trial. Jama. 1994 Jan 19;271(3):209–12. PMID: 8277547. -Article published prior to year 2000 [PubMed: 8277547]
- Ryan D. Improved skills and training could reduce admissions for COPD. Guidelines in Practice. 2013;16(9):50–6. PMID: 107940226. Language: English. Entry Date: 20131206. Revision Date: 20150712. Publication Type: Journal Article. Journal Subset: Biomedical. -Not relevant to key questions
- Schamp R, Tenkku L. Managed death in a PACE: pathways in present and advance directives. J Am Med Dir Assoc. 2006 Jul;7(6):339–44. doi: 10.1016/j.jamda.2006.01.022. PMID: 16843233. -Not relevant to key questions [PubMed: 16843233] [CrossRef]
- Schapiro AB. Integrating contemplative and spiritual care in outpatient palliative care: A pilot study. Journal of Clinical Oncology. 2016;34(29):247-. doi: 10.1200/jco.2016.34.26_suppl.247. PMID: 121152260. Language: English. Entry Date: 20180725. Revision Date: 20170208. Publication Type: journal article. Journal Subset: Biomedical. -Patient population is cancer-only [CrossRef]
- Scheerens C, Chambaere K, Pardon K, et al. Development of a complex intervention for early integration of palliative home care into standard care for end-stage COPD patients: A Phase 0-I study. PLoS One. 2018;13(9):e0203326. doi: 10.1371/journal.pone.0203326. PMID: 30231042. -Not a U.S. population [PMC free article: PMC6145576] [PubMed: 30231042] [CrossRef]
- Scheffey C, Kestenbaum MG, Wachterman MW, et al. Clinic-based outpatient palliative care before hospice is associated with longer hospice length of service. Journal of Pain & Symptom Management. 2014;48(4):532–9. doi: 10.1016/j.jpainsymman.2013.10.017. PMID: 109759522. Language: English. Entry Date: 20150814. Revision Date: 20150923. Publication Type: Journal Article. -No original data [PubMed: 24680626] [CrossRef]
- Schellinger S, Cain CL, Shibrowski K, et al. Building New Teams for Late Life Care: Lessons From LifeCourse. Am J Hosp Palliat Care. 2016 Jul;33(6):561–7. doi: 10.1177/1049909115574692. PMID: 25747670. -No original data [PMC free article: PMC4904348] [PubMed: 25747670] [CrossRef]
- Schellinger S, Sidebottom A, Briggs L. Disease specific advance care planning for heart failure patients: implementation in a large health system. J Palliat Med. 2011 Nov;14(11):1224–30. doi: 10.1089/jpm.2011.0105. PMID: 21870958. -Patients not being seen in ambulatory settings [PubMed: 21870958] [CrossRef]
- Schenker Y, Arnold R. The Next Era of Palliative Care. Jama. 2015 Oct 20;314(15):1565–6. doi: 10.1001/jama.2015.11217. PMID: 26334719. -No original data [PMC free article: PMC4870044] [PubMed: 26334719] [CrossRef]
- Scherer JS, Harwood K, Frydman JL, et al. A Descriptive Analysis of an Ambulatory Kidney Palliative Care Program. J Palliat Med. 2019 Jul 11doi: 10.1089/jpm.2018.0647. PMID: 31295050. -Not relevant to key questions [PMC free article: PMC6987731] [PubMed: 31295050] [CrossRef]
- Schroedl C, Yount S, Szmuilowicz E, et al. Outpatient Palliative Care for Chronic Obstructive Pulmonary Disease: A Case Series. Journal of Palliative Medicine. 2014;17(11):1256–61. doi: 10.1089/jpm.2013.0669. PMID: 103916314. Language: English. Entry Date: 20141114. Revision Date: 20151102. Publication Type: Journal Article. -Case series or case reports [PMC free article: PMC4229715] [PubMed: 24933590] [CrossRef]
- Schwartz CE, Goulet JL, Gorski V, et al. Medical residents’ perceptions of end-of-life care training in a large urban teaching hospital. J Palliat Med. 2003 Feb;6(1):37–44. doi: 10.1089/10966210360510109. PMID: 12710574. -Other: Trainee education [PubMed: 12710574] [CrossRef]
- Shah HH, Monga D, Caperna A, et al. Palliative care experience of US adult nephrology fellows: a national survey. Ren Fail. 2014 Feb;36(1):39–45. doi: 10.3109/0886022x.2013.831718. PMID: 24059838. -Not relevant to key questions [PubMed: 24059838] [CrossRef]
- Shaheen AW, Denton GD, Stratton TD, et al. End-of-life and palliative care curricula in internal medicine clerkships: a report on the presence, value, and design of curricula as rated by clerkship directors. Acad Med. 2014 Aug;89(8):1168–73. doi: 10.1097/acm.0000000000000311. PMID: 24853196. -Not relevant to key questions [PubMed: 24853196] [CrossRef]
- Shega JW, Levin A, Hougham GW, et al. Palliative Excellence in Alzheimer Care Efforts (PEACE): a program description. J Palliat Med. 2003 Apr;6(2):315–20. doi: 10.1089/109662103764978641. PMID: 12854952. -No original data [PubMed: 12854952] [CrossRef]
- Shreve S. Hospice and palliative care by the va, beyond the va. Generations. 2010 Summer2010;34(2):49–56. PMID: 104990754. Language: English. Entry Date: 20110201. Revision Date: 20150711. Publication Type: Journal Article. -Not relevant to key questions
- Silva M, Baca G. Outpatient Palliative Care Services to Latino Patients: A Closer Look into Advance Directives (S785). Journal of Pain & Symptom Management. 2017;53(2):457-. doi: 10.1016/j.jpainsymman.2016.12.296. PMID: 120798183. Language: English. Entry Date: 20180328. Revision Date: 20170123. Publication Type: Article. Journal Subset: Biomedical. -No full report (e.g. conference or meeting abstract) [CrossRef]
- Simon J, Murray A, Raffin S. Facilitated advance care planning: what is the patient experience? J Palliat Care. 2008 Winter;24(4):256–64. PMID: 19227017. -Not a U.S. population [PubMed: 19227017]
- Singer Y, Carmel S. Teaching end-of-life care to family medicine residents - what do they learn? Medical Teacher. 2009;31(2):e47–50. doi: 10.1080/01421590802331420. PMID: 105512934. -Other: Trainee education [PubMed: 19330664] [CrossRef]
- Singh S, Quinn C, Tomskey R, et al. An outpatient quality improvement program increased advance directive discussions that identified a health care proxy or surrogate decision maker. Journal of the american geriatrics society. 2015;63:S122. doi: 10.1111/jgs.13439. PMID: CN-01080943. -No original data [CrossRef]
- Smith AK, Thai JN, Bakitas MA, et al. The diverse landscape of palliative care clinics. J Palliat Med. 2013 Jun;16(6):661–8. doi: 10.1089/jpm.2012.0469. PMID: 23662953. -Not relevant to key questions [PMC free article: PMC3668622] [PubMed: 23662953] [CrossRef]
- Smucker WD, Ditto PH, Moore KA, et al. Elderly outpatients respond favorably to a physician-initiated advance directive discussion. J Am Board Fam Pract. 1993 Sep–Oct;6(5):473–82. PMID: 8213238. -Article published prior to year 2000 [PubMed: 8213238]
- Snaman JM, Kaye EC, Spraker-Perlman H, et al. Incorporating Bereaved Parents as Faculty Facilitators and Educators in Teaching Principles of Palliative and End-of-Life Care. Am J Hosp Palliat Care. 2018 Dec;35(12):1518–25. doi: 10.1177/1049909118786875. PMID: 30012005. -Clinicians caring only for cancer patients [PubMed: 30012005] [CrossRef]
- Snyder S, Hazelett S, Allen K, et al. Physician Knowledge, Attitude, and Experience With Advance Care Planning, Palliative Care, and Hospice: Results of a Primary Care Survey. American Journal of Hospice & Palliative Medicine. 2013;30(5):419–24. doi: 10.1177/1049909112452467. PMID: 104206019. Language: English. Entry Date: 20130815. Revision Date: 20150711. Publication Type: Journal Article. -Not relevant to key questions [PubMed: 22798634] [CrossRef]
- Song MK, Donovan HS, Piraino BM, et al. Effects of an intervention to improve communication about end-of-life care among African Americans with chronic kidney disease. Appl Nurs Res. 2010 May;23(2):65–72. doi: 10.1016/j.apnr.2008.05.002. PMID: 20420992. -Not relevant to key questions [PubMed: 20420992] [CrossRef]
- Song MK, Sereika SM. An evaluation of the Decisional Conflict Scale for measuring the quality of end-of-life decision making. Patient Educ Couns. 2006 Jun;61(3):397–404. doi: 10.1016/j.pec.2005.05.003. PMID: 15970420. -Not relevant to key questions [PubMed: 15970420] [CrossRef]
- Song MK, Unruh ML, Manatunga A, et al. SPIRIT trial: A phase III pragmatic trial of an advance care planning intervention in ESRD. Contemp Clin Trials. 2018 Jan;64:188–94. doi: 10.1016/j.cct.2017.10.005. PMID: 28993286. -No full report (e.g. conference or meeting abstract) [PMC free article: PMC5742022] [PubMed: 28993286] [CrossRef]
- Splendore E, Grant C. A nurse practitioner-led community workshop: Increasing adult participation in advance care planning. J Am Assoc Nurse Pract. 2017 Sep;29(9):535–42. doi: 10.1002/2327-6924.12467. PMID: 28452141. -Not relevant to key questions [PubMed: 28452141] [CrossRef]
- Steinhauser KE, Alexander SC, Byock IR, et al. Do preparation and life completion discussions improve functioning and quality of life in seriously ill patients? Pilot randomized control trial. J Palliat Med. 2008 Nov;11(9):1234–40. doi: 10.1089/jpm.2008.0078. PMID: 19021487. -Patient population is cancer-only [PubMed: 19021487] [CrossRef]
- Stewart TN. Palliative Care Education to Increase Outpatient Provider Knowledge and Palliative Care Referral Intent Within Veterans Healthcare System of the Ozarks. Palliative Care Education to Increase Outpatient Provider Knowledge & Palliative Care Referral Intent Within Veterans Healthcare System of the Ozarks. 2017:1-. PMID: 124664978. -Other: Not a published article [PubMed: 124664978]
- Stroebel R, Moynihan T. Palliative and end of life care. Studies in Health Technology & Informatics. 2010;153:71–86. doi: 10.3233/978-1-60750-533-4-71. PMID: 105059660. Language: English. Entry Date: 20100730. Revision Date: 20150711. Publication Type: Journal Article. -No original data [PubMed: 20543239] [CrossRef]
- Sudore R, Boscardin J, Barnes D. A patient-facing advance care planning (ACP) website called prepare increases ACP documentation and engagement in a randomized trial of diverse older primary care patients at a VA medical center. Journal of pain and symptom management. 2017;53(2):317–8. doi: 10.1016/j.jpainsymman.2016.12.032. PMID: CN-01749007. -No original data [CrossRef]
- Sudore RL, Boscardin J, Feuz MA, et al. Effect of the PREPARE Website vs an Easy-to-Read Advance Directive on Advance Care Planning Documentation and Engagement Among Veterans: A Randomized Clinical Trial. JAMA Intern Med. 2017 Aug 1;177(8):1102–9. doi: 10.1001/jamainternmed.2017.1607. PMID: 28520838. -Not relevant to key questions [PMC free article: PMC5710440] [PubMed: 28520838] [CrossRef]
- Sudore RL, Schillinger D, Katen MT, et al. Engaging Diverse English- and Spanish-Speaking Older Adults in Advance Care Planning: The PREPARE Randomized Clinical Trial. JAMA Intern Med. 2018 Dec 1;178(12):1616–25. doi: 10.1001/jamainternmed.2018.4657. PMID: 30383086. -Not relevant to key questions [PMC free article: PMC6342283] [PubMed: 30383086] [CrossRef]
- Sulmasy DP, Song KY, Marx ES, et al. Strategies to promote the use of advance directives in a residency outpatient practice. J Gen Intern Med. 1996 Nov;11(11):657–63. doi: 10.1007/bf02600156. PMID: 9120651. -Article published prior to year 2000 [PubMed: 9120651] [CrossRef]
- Tabak M, Brusse-Keizer M, Van Ommeren C, et al. A telecare programme for self-management of COPD exacerbations and promotion of an active lifestyle. European respiratory journal. 2013;42 PMID: CN-01099926. -Not relevant to key questions
- Tai-Seale M, Yang Y, Dillon E, et al. Community-Based Palliative Care and Advance Care Planning Documentation: Evidence from a Multispecialty Group. Journal of the American Geriatrics Society. 2018;66(2):327–32. doi: 10.1111/jgs.15145. PMID: 127968307. Language: English. Entry Date: 20180216. Revision Date: 20190201. Publication Type: Article. -Not relevant to key questions [PMC free article: PMC5809288] [PubMed: 29063601] [CrossRef]
- Thomas K. Using prognostic indicator guidance to plan care for final stages of life. Primary Health Care. 2010;20(6):25–8. PMID: 105056948. Language: English. Entry Date: 20100827. Revision Date: 20150820. Publication Type: Journal Article. -No original data
- Thomson RM, Patel CR, Taylor RB. Palliative Care Principles Primary Care Physicians Should Know. Primary Care Reports. 2013;19(8):105–19. PMID: 104199180. Language: English. Entry Date: 20130729. Revision Date: 20150711. Publication Type: Journal Article. -No original data
- Thorsteinsdottir B, Swetz KM, Feely MA, et al. Are there alternatives to hemodialysis for the elderly patient with end-stage renal failure? Mayo Clin Proc. 2012 Jun;87(6):514–6. doi: 10.1016/j.mayocp.2012.02.016. PMID: 22677071. -No original data [PMC free article: PMC3498386] [PubMed: 22677071] [CrossRef]
- Timmons MJ, MacIver J, Alba AC, et al. Using heart failure instruments to determine when to refer heart failure patients to palliative care. J Palliat Care. 2013 Winter;29(4):217–24. PMID: 24601072. -Not a U.S. population [PubMed: 24601072]
- Toraya C. Evaluation of advance directives video education for patients. J Palliat Med. 2014 Aug;17(8):942–6. doi: 10.1089/jpm.2013.0585. PMID: 24773190. -Not relevant to key questions [PubMed: 24773190] [CrossRef]
- Torke AM, Hickman SE, Hammes B, et al. POLST Facilitation in Complex Care Management: A Feasibility Study. Am J Hosp Palliat Care. 2019 Jan;36(1):5–12. doi: 10.1177/1049909118797077. PMID: 30153739. -Other: No comparison group [PubMed: 30153739] [CrossRef]
- Totten AM, Fagnan LJ, Dorr D, et al. Protocol for a Cluster Randomized Trial Comparing Team-Based to Clinician-Focused Implementation of Advance Care Planning in Primary Care. J Palliat Med. 2019 Sep;22(S1):82–9. doi: 10.1089/jpm.2019.0117. PMID: 31486729. -No original data [PMC free article: PMC7366267] [PubMed: 31486729] [CrossRef]
- Tung EE, North F. Advance care planning in the primary care setting: a comparison of attending staff and resident barriers. Am J Hosp Palliat Care. 2009 Dec–2010 Jan;26(6):456–63. doi: 10.1177/1049909109341871. PMID: 19648573. -Not relevant to key questions [PubMed: 19648573] [CrossRef]
- Tung EE, Vickers KS, Lackore K, et al. Clinical decision support technology to increase advance care planning in the primary care setting. Am J Hosp Palliat Care. 2011 Jun;28(4):230–5. doi: 10.1177/1049909110386045. PMID: 21057141. -Patients do not have serious life-threatening chronic illness or conditions [PubMed: 21057141] [CrossRef]
- van der Plas AG, Onwuteaka-Philipsen BD, Francke AL, et al. Palliative care case managers in primary care: a descriptive study of referrals in relation to treatment aims. J Palliat Med. 2015 Apr;18(4):324–31. doi: 10.1089/jpm.2014.0269. PMID: 25495143. -Not a U.S. population [PubMed: 25495143] [CrossRef]
- van der Plas AGM, Deliens L, van de Watering M, et al. Palliative care case management in primary care settings: A nationwide survey. International Journal of Nursing Studies. 2013;50(11):1504–12. doi: 10.1016/j.ijnurstu.2013.03.002. PMID: 104231517. Language: English. Entry Date: 20130924. Revision Date: 20150820. Publication Type: Journal Article. -Not a U.S. population [PubMed: 23545141] [CrossRef]
- van Gurp J, van Selm M, van Leeuwen E, et al. Teleconsultation for integrated palliative care at home: A qualitative study. Palliat Med. 2016 Mar;30(3):257–69. doi: 10.1177/0269216315598068. PMID: 26269323. -Not a U.S. population [PubMed: 26269323] [CrossRef]
- Verma M, Kosinski AS, Volk ML, et al. Introducing Palliative Care within the Treatment of End-Stage Liver Disease: The Study Protocol of a Cluster Randomized Controlled Trial. J Palliat Med. 2019 Sep;22(S1):34–43. doi: 10.1089/jpm.2019.0121. PMID: 31486722. -No original data [PubMed: 31486722] [CrossRef]
- Vig EK, Pearlman RA. Quality of life while dying: a qualitative study of terminally ill older men. Journal of the American Geriatrics Society. 2003;51(11):1595–601. doi: 10.1046/j.1532-5415.2003.51505.x. PMID: 106759756. Language: English. Entry Date: 20050712. Revision Date: 20150711. Publication Type: Journal Article. -Not relevant to key questions [PubMed: 14687389] [CrossRef]
- Volandes A, Paasche-Orlow M, Davis A, et al. Use of Video Decision Aids to Promote Advance Care Planning in Hilo, Hawai’i. JGIM: Journal of General Internal Medicine. 2016;31(9):1035–40. doi: 10.1007/s11606-016-3730-2. PMID: 117320214. Language: English. Entry Date: 20180720. Revision Date: 20181211. Publication Type: journal article. Journal Subset: Biomedical. -Patients do not have serious life-threatening chronic illness or conditions [PMC free article: PMC4978682] [PubMed: 27194151] [CrossRef]
- Volandes AE, Ferguson LA, Davis AD, et al. Assessing End-of-Life Preferences for Advanced Dementia in Rural Patients Using an Educational Video: A Randomized Controlled Trial. Journal of Palliative Medicine. 2011;14(2):169–77. doi: 10.1089/jpm.2010.0299. PMID: 104814213. Language: English. Entry Date: 20110405. Revision Date: 20150711. Publication Type: Journal Article. -Not relevant to key questions [PubMed: 21254815] [CrossRef]
- Von Gunten CF, Mullan PB, Harrity S, et al. Residents from five training programs report improvements in knowledge, attitudes and skills after a rotation with a hospice program. J Cancer Educ. 2003 Summer;18(2):68–72. doi: 10.1207/s15430154jce1802_06. PMID: 12888378. -Patients not being seen in ambulatory settings [PubMed: 12888378] [CrossRef]
- von Gunten CF, Mullan PB, Nelesen R, et al. Primary Care Residents Improve Knowledge, Skills, Attitudes, and Practice After a Clinical Curriculum With a Hospice. Am J Hosp Palliat Care. 2017 Sep;34(8):713–20. doi: 10.1177/1049909116655767. PMID: 27353516. -Other: Trainee education [PubMed: 27353516] [CrossRef]
- von Gunten CF, Twaddle M, Preodor M, et al. Evidence of improved knowledge and skills after an elective rotation in a hospice and palliative care program for internal medicine residents. Am J Hosp Palliat Care. 2005 May–Jun;22(3):195–203. doi: 10.1177/104990910502200309. PMID: 15909782. -Other: Includes residents [PubMed: 15909782] [CrossRef]
- von Plessen C, Aslaksen A. Improving the quality of palliative care for ambulatory patients with lung cancer. BMJ: British Medical Journal (International Edition). 2005;330(7503):1309–13. doi: 10.1136/bmj.330.7503.1309. PMID: 106466450. Language: English. Entry Date: 20060707. Revision Date: 20150711. Publication Type: Journal Article. -Not a U.S. population [PMC free article: PMC558209] [PubMed: 15933354] [CrossRef]
- Wade VA, Taylor AD, Kidd MR, et al. Transitioning a home telehealth project into a sustainable, large-scale service: a qualitative study. BMC Health Serv Res. 2016 May 16;16:183. doi: 10.1186/s12913-016-1436-0. PMID: 27185041. -Not a U.S. population [PMC free article: PMC4869378] [PubMed: 27185041] [CrossRef]
- Walker NM, Mandell KL, Tsevat J. Use of chart reminders for physicians to promote discussion of advance directives in patients with AIDS. AIDS Care. 1999 Jun;11(3):345–53. doi: 10.1080/09540129947965. PMID: 10474632. -Article published prior to year 2000 [PubMed: 10474632] [CrossRef]
- Walling AM, Sudore RL, Bell D, et al. Population-Based Pragmatic Trial of Advance Care Planning in Primary Care in the University of California Health System. J Palliat Med. 2019 Sep;22(S1):72–81. doi: 10.1089/jpm.2019.0142. PMID: 31486723. -No original data [PMC free article: PMC6916115] [PubMed: 31486723] [CrossRef]
- Warraich HJ, Wolf SP, Mentz RJ, et al. Characteristics and Trends Among Patients With Cardiovascular Disease Referred to Palliative Care. JAMA Netw Open. 2019 May 3;2(5):e192375. doi: 10.1001/jamanetworkopen.2019.2375. PMID: 31050773. -Not relevant to key questions [PMC free article: PMC6503632] [PubMed: 31050773] [CrossRef]
- Wells R, Ejem D, Dionne-Odom J, et al. What’s in the “Black Box”? Describing the Focus of Early, Outpatient Palliative Care Consultation Evaluations and Treatment Recommendations for Individuals with Advanced Heart Failure (TH321B). Journal of Pain & Symptom Management. 2017;53(2):327–8. doi: 10.1016/j.jpainsymman.2016.12.051. PMID: 120798093. Language: English. Entry Date: 20180328. Revision Date: 20170705. Publication Type: Article. Journal Subset: Biomedical. -No full report (e.g. conference or meeting abstract) [CrossRef]
- Wells R, Ejem D, Dionne-Odom JN, et al. Protocol driven palliative care consultation: Outcomes of the ENABLE CHF-PC pilot study. Heart Lung. 2018 Nov;47(6):533–8. doi: 10.1016/j.hrtlng.2018.06.012. PMID: 30143363. -No outcomes of interest [PubMed: 30143363] [CrossRef]
- Wells R, Stockdill ML, Dionne-Odom JN, et al. Educate, Nurture, Advise, Before Life Ends Comprehensive Heartcare for Patients and Caregivers (ENABLE CHF-PC): study protocol for a randomized controlled trial. Trials. 2018 Aug 6;19(1):422. doi: 10.1186/s13063-018-2770-9. PMID: 30081933. -No original data [PMC free article: PMC6090835] [PubMed: 30081933] [CrossRef]
- Whitehead PB, Anderson ES, Redican KJ, et al. Studying the effects of the end-of-life nursing education consortium at the institutional level. Journal of Hospice & Palliative Nursing. 2010;12(3):184–93. PMID: 105212057. -Other: Not a published article
- Wissow LS, Belote A, Kramer W, et al. Promoting advance directives among elderly primary care patients. J Gen Intern Med. 2004 Sep;19(9):944–51. doi: 10.1111/j.1525-1497.2004.30117.x. PMID: 15333059. -Patients do not have serious life-threatening chronic illness or conditions [PMC free article: PMC1492518] [PubMed: 15333059] [CrossRef]
- Wu DS, Kern DE, Dy SM, et al. Narrative Approach to Goals of Care Discussions: A Novel Curriculum. J Pain Symptom Manage. 2019 Aug 28doi: 10.1016/j.jpainsymman.2019.08.023. PMID: 31472275. -Other: Trainee education [PubMed: 31472275] [CrossRef]
- Zahradnik E, Majeske M. Poster Number: NR 32 - Implementation of a Screening Tool for Outpatient Palliative Care Referrals from Geriatric Psychiatry: A Quality Improvement Project. American Journal of Geriatric Psychiatry. 2017;25:S144–S. doi: 10.1016/j.jagp.2017.01.166. PMID: 122586889. Language: English. Entry Date: In Process. Revision Date: 20170502. Publication Type: Article. Supplement Title: Mar2017 Supplement. Journal Subset: Biomedical. -No full report (e.g. conference or meeting abstract) [CrossRef]
- Zapata C, Wistar E, Horton C, et al. Using A Video-Based Advance Care Planning (ACP) Website to Facilitate Group Visits for Diverse Older Adults in Primary Care Is Feasible And Improves ACP Engagement (TH307D). Journal of Pain & Symptom Management. 2017;53(2):318–9. doi: 10.1016/j.jpainsymman.2016.12.034. PMID: 120798281. Language: English. Entry Date: 20180328. Revision Date: 20170123. Publication Type: Article. Journal Subset: Biomedical. -No full report (e.g. conference or meeting abstract) [CrossRef]
- Zimmermann CJ, Jhagroo RA, Wakeen M, et al. Opportunities to Improve Shared Decision Making in Dialysis Decisions for Older Adults with Life-Limiting Kidney Disease: A Pilot Study. Journal of Palliative Medicine. 2020. -Other: No control group [PMC free article: PMC7232635] [PubMed: 31930929]
- Zou RH, Nouraie M, Chen X, et al. Assessing Patterns of Palliative Care Referral and Location of Death in Patients with Idiopathic Pulmonary Fibrosis: A Sixteen-Year Single-Center Retrospective Cohort Study. Journal of Palliative Medicine. 2019;22(5):538–44. doi: 10.1089/jpm.2018.0400. PMID: 136278892. Language: English. Entry Date: 20190510. Revision Date: 20191101. Publication Type: Article. Journal Subset: Biomedical. -Not relevant to key questions [PMC free article: PMC7869870] [PubMed: 30615545] [CrossRef]
Excluded Reviews
- Advance care planning in primary care, only for severely ill patients? A structured review. Primary Health Care. 2015;25(2):16-. PMID: 103773838. Language: English. Entry Date: 20150304. Revision Date: 20190926. Publication Type: Journal Article. -No original data
- Barker S, Lynch M, Hopkinson J. Decision making for people living with dementia by their carers at the end of life: a rapid scoping review. Int J Palliat Nurs. 2017 Sep 2;23(9):446–56. doi: 10.12968/ijpn.2017.23.9.446. PMID: 28933994. - Not a U.S. population [PubMed: 28933994] [CrossRef]
- Bharmal A, Morgan T, Kuhn I, et al. Palliative and end-of-life care and junior doctors’: a systematic review and narrative synthesis. BMJ Support Palliat Care. 2019 Nov 13doi: 10.1136/bmjspcare-2019-001954. PMID: 31722983. - Not a U.S. population [PMC free article: PMC9726967] [PubMed: 31722983] [CrossRef]
- Blaber M, Jones J, Willis D. Spiritual care: which is the best assessment tool for palliative settings? International Journal of Palliative Nursing. 2015;21(9):430–8. doi: 10.12968/ijpn.2015.21.9.430. PMID: 110128803. Language: English. Entry Date: 20151008. Revision Date: 20151009. Publication Type: Article. -No original data [PubMed: 26412273] [CrossRef]
- Burridge L, Winch S, Clavarino A. Reluctance to care: a systematic review and development of a conceptual framework. Cancer Nurs. 2007 Mar–Apr;30(2):E9–19. doi: 10.1097/01.NCC.0000265298.17394.e0. PMID: 17413772. -Patient population is cancer-only [PubMed: 17413772] [CrossRef]
- Calvel L, Blondet LV, Chedotal I, et al. Difficulties in providing palliative care in identified palliative care beds: An exploratory survey. Presse Med. 2019 Jul – Aug;48(7–8 Pt 1):e209–e15. doi: 10.1016/j.lpm.2018.10.020. PMID: 31421945. - Other: article not accessible [PubMed: 31421945] [CrossRef]
- Fine E, Reid MC, Shengelia R, et al. Directly observed patient--physician discussions in palliative and end-of-life care: a systematic review of the literature. Journal of Palliative Medicine. 2010;13(5):595–603. doi: 10.1089/jpm.2009.0388. PMID: 105213639. Language: English. Entry Date: 20100702. Revision Date: 20150711. Publication Type: Journal Article. -No original data [PMC free article: PMC2938894] [PubMed: 20491550] [CrossRef]
- Foley G, Hynes G. Decision-making among patients and their family in ALS care: a review. Amyotroph Lateral Scler Frontotemporal Degener. 2018 May;19(3–4):173–93. doi: 10.1080/21678421.2017.1353099. PMID: 28799808. - Not relevant to key questions [PubMed: 28799808] [CrossRef]
- Gardiner C, Gott M, Ingleton C. Factors supporting good partnership working between generalist and specialist palliative care services: a systematic review. Br J Gen Pract. 2012 May;62(598):e353–62. doi: 10.3399/bjgp12X641474. PMID: 22546595. -No original data [PMC free article: PMC3338057] [PubMed: 22546595] [CrossRef]
- Ghosh A, Dzeng E, Cheng MJ. Interaction of palliative care and primary care. Clinics in Geriatric Medicine. 2015;31(2):207–18. doi: 10.1016/j.cger.2015.01.001. PMID: 109584144. Language: English. Entry Date: 20150923. Revision Date: 20160206. Publication Type: journal article. -No original data [PubMed: 25920056] [CrossRef]
- Green E, Knight S, Gott M, et al. Patients’ and carers’ perspectives of palliative care in general practice: A systematic review with narrative synthesis. Palliative Medicine. 2018;32(4):833–50. doi: 10.1177/0269216317748862. PMID: 128758466. Language: English. Entry Date: 20180403. Revision Date: 20180522. Publication Type: Article. -No original data [PubMed: 29343169] [CrossRef]
- Ivany E, While A. Understanding the palliative care needs of heart failure patients. British Journal of Community Nursing. 2013;18(9):441–5. PMID: 104223894. Language: English. Entry Date: 20130910. Revision Date: 20150820. Publication Type: Journal Article. -No original data [PubMed: 24005488]
- Jethwa KD, Onalaja O. Advance care planning and palliative medicine in advanced dementia: a literature review. BJPsych Bull. 2015 Apr;39(2):74–8. doi: 10.1192/pb.bp.114.046896. PMID: 26191437. -No original data [PMC free article: PMC4478901] [PubMed: 26191437] [CrossRef]
- Lakin JR, Block SD, Billings JA, et al. Improving Communication About Serious Illness in Primary Care: A Review. JAMA Intern Med. 2016 Sep 1;176(9):1380–7. doi: 10.1001/jamainternmed.2016.3212. PMID: 27398990. -No original data [PubMed: 27398990] [CrossRef]
- Lakin JR, Block SD, Billings JA, et al. Improving Communication About Serious Illness in Primary Care: A Review. JAMA Internal Medicine. 2016;176(9):1380–7. doi: 10.1001/jamainternmed.2016.3212. PMID: 118055118. Language: English. Entry Date: 20180626. Revision Date: 20180723. Publication Type: journal article. -No original data [PubMed: 27398990] [CrossRef]
- McCaffrey N, Bradley S, Ratcliffe J, et al. What Aspects of Quality of Life Are Important From Palliative Care Patients’ Perspectives? A Systematic Review of Qualitative Research. J Pain Symptom Manage. 2016 Aug;52(2):318–28.e5. doi: 10.1016/j.jpainsymman.2016.02.012. PMID: 27216362. - Not a U.S. population [PubMed: 27216362] [CrossRef]
- Meeker MA, McGinley JM, Jezewski MA. Metasynthesis: Dying adults’ transition process from cure-focused to comfort-focused care. J Adv Nurs. 2019 Oct;75(10):2059–71. doi: 10.1111/jan.13970. PMID: 30734354. -No original data [PubMed: 30734354] [CrossRef]
- Morton RL, Tong A, Howard K, et al. The views of patients and carers in treatment decision making for chronic kidney disease: systematic review and thematic synthesis of qualitative studies. Bmj. 2010 Jan 19;340:c112. doi: 10.1136/bmj.c112. PMID: 20085970. -No original data [PMC free article: PMC2808468] [PubMed: 20085970] [CrossRef]
- Oishi A, Murtagh FEM. The challenges of uncertainty and interprofessional collaboration in palliative care for non-cancer patients in the community: A systematic review of views from patients, carers and health-care professionals. Palliative Medicine. 2014;28(9):1081–98. doi: 10.1177/0269216314531999. PMID: 103891764. Language: English. Entry Date: 20140922. Revision Date: 20150710. Publication Type: Journal Article. -No original data [PMC free article: PMC4232314] [PubMed: 24821710] [CrossRef]
- Ostlund U, Brown H, Johnston B. Dignity conserving care at end-of-life: a narrative review. Eur J Oncol Nurs. 2012 Sep;16(4):353–67. doi: 10.1016/j.ejon.2011.07.010. PMID: 21917517. - Not a U.S. population [PubMed: 21917517] [CrossRef]
- Raymond M, Warner A, Davies N, et al. Palliative and end of life care for people with dementia: lessons for clinical commissioners. Prim Health Care Res Dev. 2014 Oct;15(4):406–17. doi: 10.1017/s146342361300039x. PMID: 24280024. -No original data [PubMed: 24280024] [CrossRef]
- Robinson L, Iliffe S, Brayne C, et al. Primary care and dementia: 2. Long-term care at home: psychosocial interventions, information provision, carer support and case management. International Journal of Geriatric Psychiatry. 2010;25(7):657–64. doi: 10.1002/gps.2405. PMID: 105038552. Corporate Author: DeNDRoN Primary Care Clinical Studies Group. Language: English. Entry Date: 20100820. Revision Date: 20170928. Publication Type: journal article. - Not relevant to key questions [PubMed: 19946862] [CrossRef]
- Rocker G, Downar J, Morrison RS. Palliative care for chronic illness: driving change. Cmaj. 2016 Dec 6;188(17–18):E493–e8. doi: 10.1503/cmaj.151454. PMID: 27551031. -No original data [PMC free article: PMC5135526] [PubMed: 27551031] [CrossRef]
- Roger KS, Roger KS. A literature review of palliative care, end of life, and dementia. Palliative & Supportive Care. 2006;4(3):295–303. PMID: 106189195. Language: English. Entry Date: 20071109. Revision Date: 20191114. Publication Type: journal article. -No original data [PubMed: 17066971]
- Roger KS. A literature review of palliative care, end of life, and dementia. Palliat Support Care. 2006 Sep;4(3):295–303. doi: 10.1017/s1478951506060378. PMID: 17066971. -No original data [PubMed: 17066971] [CrossRef]
- Simonic A, Furlan M, Ravnjak T, et al. Caring for caregivers: a right way to do it? Curr Opin Support Palliat Care. 2012 Sep;6(3):379–85. doi: 10.1097/SPC.0b013e328356ab0c. PMID: 22801466. -No original data [PubMed: 22801466] [CrossRef]
- Valery PC, Powell E, Moses N, et al. Systematic review: unmet supportive care needs in people diagnosed with chronic liver disease. BMJ Open. 2015 Apr 8;5(4):e007451. doi: 10.1136/bmjopen-2014-007451. PMID: 25854973. - Not relevant to key questions [PMC free article: PMC4390721] [PubMed: 25854973] [CrossRef]
- List of Excluded Studies - Integrating Palliative Care in Ambulatory Care of Non...List of Excluded Studies - Integrating Palliative Care in Ambulatory Care of Noncancer Serious Chronic Illness
- Streptococcus agalactiae GB00206 ctg7180000004587, whole genome shotgun sequenceStreptococcus agalactiae GB00206 ctg7180000004587, whole genome shotgun sequencegi|452729321|ref|NZ_ALTB01000004.1| WGS:NZ_ALTB01|ctg7180000004587Nucleotide
- Streptococcus agalactiae GB00206 ctg7180000004595, whole genome shotgun sequenceStreptococcus agalactiae GB00206 ctg7180000004595, whole genome shotgun sequencegi|452729329|ref|NZ_ALTB01000012.1| WGS:NZ_ALTB01|ctg7180000004595Nucleotide
- PREDICTED: Homo sapiens transient receptor potential cation channel subfamily M ...PREDICTED: Homo sapiens transient receptor potential cation channel subfamily M member 1 (TRPM1), transcript variant X4, mRNAgi|2462544132|ref|XM_054377960.1|Nucleotide
Your browsing activity is empty.
Activity recording is turned off.
See more...