Appendix BList of Excluded Studies

Excluded Websites

Table B-1

Excluded Web pages.

Excluded Articles

1. Baylor Health System Supportive and Palliative Care Services. H&HN: Hospitals & Health Networks. 2014;88(8):41–2. PMID: 107874000. Language: English. Entry Date: 20140821. Revision Date: 20150712. Publication Type: Journal Article. -No original data
2. Integrating CAM research and practice: a focus on outcome measures -- abstracts from the 3rd annual IN-CAM Symposium November 4th & 5th, 2006, Calgary, Canada. Journal of Complementary & Integrative Medicine. 2006;3(1):1–46. PMID: 106245519. Language: English. Entry Date: 20070302. Revision Date: 20150711. Publication Type: Journal Article. -Not relevant to key questions
3. Relias Media. Integrating palliative care in case management can work. Case Management Advisor. 2016;27(4):3–5. PMID: 114159764. Language: English. Entry Date: 20170518. Revision Date: 20170518. Publication Type: Article. Journal Subset: Nursing. -No original data
4. SUPPORTIVE AND PALLIATIVE CARE IN PRIMARY CARE. GM: Midlife & Beyond. 2015;45(7):37-. PMID: 109619371. Language: English. Entry Date: 20150923. Revision Date: 20150923. Publication Type: Journal Article. Journal Subset: Biomedical. -No original data
5. The SUMMIT ambulatory-ICU primary care model for medically and socially complex patients in an urban federally qualified health center: study design and rationale. Addiction science & clinical practice. 2018;13(1):27-. doi: 10.1186/s13722-018-0128-y. PMID: CN-01925167. -Not relevant to key questions [PMC free article: PMC6295087] [PubMed: 30547847] [CrossRef]
6. Abernethy AP, McDonald CF, Frith PA, et al. Effect of palliative oxygen versus room air in relief of breathlessness in patients with refractory dyspnoea: a double-blind, randomised controlled trial. Lancet. 2010;376 North American Edition(9743):784–93. doi: 10.1016/S0140-6736(10)61115-4. PMID: 105091250. Language: English. Entry Date: 20101008. Revision Date: 20161125. Publication Type: journal article. -Not relevant to key questions [PMC free article: PMC2962424] [PubMed: 20816546] [CrossRef]
7. Abu Al Hamayel N, Isenberg SR, Hannum SM, et al. Older Patients’ Perspectives on Quality of Serious Illness Care in Primary Care. Am J Hosp Palliat Care. 2018 Oct;35(10):1330–6. doi: 10.1177/1049909118771675. PMID: 29682975. -Patients do not have serious life-threatening chronic illness or conditions [PMC free article: PMC9700198] [PubMed: 29682975] [CrossRef]
8. Scuffham PA, Mihala G, Ward L, McMurray A, Connor M. Evaluation of the Gold Coast Integrated Care for patients with chronic disease or high risk of hospitalisation through a non-randomised controlled clinical trial: a pilot study protocol. BMJ Open. 2017;7(6):e016776. Published 2017 Jul 2. doi:10.1136/bmjopen-2017-016776. -No original data [PMC free article: PMC5734577] [PubMed: 28674147] [CrossRef]
9. Kavarthapol Jayaraman, Vinothkumar. Outcomes of stage 4 & 5 chronic kidney disease patients attending 2 different models of outpatient care. http://www​.who.int/trialsearch/Trial2​.aspx?TrialID​=ACTRN12611001117909. 2011 PMID: CN-01846776. -Not relevant to key questions
10. Agarwal R, Shuk E, Romano D, et al. A mixed methods analysis of patients’ advance care planning values in outpatient oncology: Person-Centered Oncologic Care and Choices (P-COCC). Support Care Cancer. 2020 Mar;28(3):1109–19. doi: 10.1007/s00520-019-04910-1. PMID: 31197540. -Not relevant to key questions [PMC free article: PMC6908761] [PubMed: 31197540] [CrossRef]
11. Aggarwal SK, Ghosh A, Cheng MJ, et al. Initiating pain and palliative care outpatient services for the suburban underserved in Montgomery County, Maryland: Lessons learned at the NIH Clinical Center and MobileMed. Palliative & Supportive Care. 2016;14(4):381–6. doi: 10.1017/S1478951515001030. PMID: 116921770. Language: English. Entry Date: 20170113. Revision Date: 20170316. Publication Type: journal article. Journal Subset: Biomedical. -Fewer than 10 participants [PubMed: 26373835] [CrossRef]
12. Ahluwalia SC, Bekelman DB, Huynh AK, et al. Barriers and Strategies to an Iterative Model of Advance Care Planning Communication. American Journal of Hospice & Palliative Medicine. 2015;32(8):817–23. doi: 10.1177/1049909114541513. PMID: 110716484. Language: English. Entry Date: 20160123. Revision Date: 20170203. Publication Type: Article. -No full report (e.g. conference or meeting abstract) [PubMed: 24988894] [CrossRef]
13. Ahluwalia SC, Chen C, Raaen L, et al. A Systematic Review in Support of the National Consensus Project Clinical Practice Guidelines for Quality Palliative Care, Fourth Edition. J Pain Symptom Manage. 2018 Dec;56(6):831–70. doi: 10.1016/j.jpainsymman.2018.09.008. PMID: 30391049. -No original data [PubMed: 30391049] [CrossRef]
14. Ahluwalia SC, Fried TR. Physician factors associated with outpatient palliative care referral. Palliat Med. 2009 Oct;23(7):608–15. doi: 10.1177/0269216309106315. PMID: 19460830. -Not relevant to key questions [PMC free article: PMC2916731] [PubMed: 19460830] [CrossRef]
15. Ahluwalia SC, Levin JR, Lorenz KA, et al. Missed opportunities for advance care planning communication during outpatient clinic visits. J Gen Intern Med. 2012 Apr;27(4):445–51. doi: 10.1007/s11606-011-1917-0. PMID: 22038469. -Not relevant to key questions [PMC free article: PMC3304032] [PubMed: 22038469] [CrossRef]
16. Ahluwalia SC, Levin JR, Lorenz KA, et al. ‘There’s no cure for this condition’: How physicians discuss advance care planning in heart failure. Patient Education & Counseling. 2013;91(2):200–5. doi: 10.1016/j.pec.2012.12.016. PMID: 104070357. Language: English. Entry Date: 20140627. Revision Date: 20150710. Publication Type: Journal Article. -Patients not being seen in ambulatory settings [PubMed: 23369373] [CrossRef]
17. Ahmed N, Hughes P, Winslow M, et al. A randomised controlled trial of an holistic needs assessment questionnaire in a supportive and palliative care service using the sheffield profile for assessment and referral for care (SPARC): a mixed methods study. Palliative medicine. 2014;28(6):567-. doi: 10.1177/0269216314532748. PMID: CN-01010267. -Not a U.S. population [CrossRef]
18. Ahmed N, Hughes P, Winslow M, et al. Feasibility study of the sheffield profile for assessment and referral for care (SPARC): a holistic needs questionnaire. Palliative medicine. 2012;26(4):542-. doi: 10.1177/0269216312446391. PMID: CN-01006857. -Not a U.S. population [CrossRef]
19. Ahmed NN, Farnie M, Dyer CB. The effect of geriatric and palliative medicine education on the knowledge and attitudes of internal medicine residents. J Am Geriatr Soc. 2011 Jan;59(1):143–7. doi: 10.1111/j.1532-5415.2010.03235.x. PMID: 21226684. -Other: Trainee education [PubMed: 21226684] [CrossRef]
20. Ahmed NN, Farnie M, Dyer CB. The effect of geriatric and palliative medicine education on the knowledge and attitudes of internal medicine residents. Journal of the American Geriatrics Society. 2011;59(1):143–7. doi: 10.1111/j.1532-5415.2010.03235.x. PMID: 104989650. -Other: Trainee education [PubMed: 21226684] [CrossRef]
21. Alderman JS, Nair B, Fox MD. Residency training in advance care planning: can it be done in the outpatient clinic? Am J Hosp Palliat Care. 2008 Jun–Jul;25(3):190–4. doi: 10.1177/1049909108315301. PMID: 18573995. -Other: Trainee education [PubMed: 18573995] [CrossRef]
22. Alexander Cole C, Wilson E, Nguyen PL, et al. Scaling Implementation of the Serious Illness Care Program Through Coaching. J Pain Symptom Manage. 2020 Mar 20doi: 10.1016/j.jpainsymman.2020.03.008. PMID: 32201309. -Other: No control group [PubMed: 32201309] [CrossRef]
23. Allen SL, Davis KS, Rousseau PC, et al. Advanced Care Directives: Overcoming the Obstacles. J Grad Med Educ. 2015 Mar;7(1):91–4. doi: 10.4300/jgme-d-14-00145.1. PMID: 26217430. -Other: Trainee education [PMC free article: PMC4507937] [PubMed: 26217430] [CrossRef]
24. Andreoni VM, Obrecht JA, Bowden VR. Palliative care resources for the health professional. MCN Am J Matern Child Nurs. 2007 Sep–Oct;32(5):305–10. doi: 10.1097/01.NMC.0000288002.72382.9f. PMID: 17728593. -No original data [PubMed: 17728593] [CrossRef]
25. Arnett K, Sudore RL, Nowels D, et al. Advance Care Planning: Understanding Clinical Routines and Experiences of Interprofessional Team Members in Diverse Health Care Settings. Am J Hosp Palliat Care. 2017 Dec;34(10):946–53. doi: 10.1177/1049909116666358. PMID: 27599724. -No full report (e.g. conference or meeting abstract) [PMC free article: PMC5851789] [PubMed: 27599724] [CrossRef]
26. Aslakson RA, Schuster ALR, Lynch TJ, et al. Developing the Storyline for an Advance Care Planning Video for Surgery Patients: Patient-Centered Outcomes Research Engagement from Stakeholder Summit to State Fair. J Palliat Med. 2018 Jan;21(1):89–94. doi: 10.1089/jpm.2017.0106. PMID: 28817359. -Patients not being seen in ambulatory settings [PubMed: 28817359] [CrossRef]
27. Bakitas M, Dionne-Odom JN, Pamboukian SV, et al. Engaging patients and families to create a feasible clinical trial integrating palliative and heart failure care: results of the ENABLE CHF-PC pilot clinical trial. BMC Palliative Care. 2017;16:1–13. doi: 10.1186/s12904-017-0226-8. PMID: 125016596. Language: English. Entry Date: 20170908. Revision Date: 20170913. Publication Type: Article. -Not relevant to key questions [PMC free article: PMC5580310] [PubMed: 28859648] [CrossRef]
28. Bamford C, Lee R, McLellan E, et al. What enables good end of life care for people with dementia? A multi-method qualitative study with key stakeholders. BMC Geriatrics. 2018;18(1):1–15. doi: 10.1186/s12877-018-0983-0. PMID: 133388842. Language: English. Entry Date: In Process. Revision Date: 20191011. Publication Type: journal article. Journal Subset: Biomedical. -Not a U.S. population [PMC free article: PMC6280541] [PubMed: 30514221] [CrossRef]
29. Barnato AE, Moore R, Moore CG, et al. Financial Incentives to Increase Advance Care Planning Among Medicaid Beneficiaries: Lessons Learned From Two Pragmatic Randomized Trials. J Pain Symptom Manage. 2017 Jul;54(1):85–95.e1. doi: 10.1016/j.jpainsymman.2017.02.016. PMID: 28450218. -Not relevant to key questions [PubMed: 28450218] [CrossRef]
30. Barnett M. Providing palliative care in end-stage COPD within primary care. Journal of Community Nursing. 2006;20(3):30–4. PMID: 106441896. Language: English. Entry Date: 20060519. Revision Date: 20150820. Publication Type: Journal Article. -No original data
31. Barratt SL, Morales M, Spiers T, et al. Specialist palliative care, psychology, interstitial lung disease (ILD) multidisciplinary team meeting: a novel model to address palliative care needs. BMJ Open Respir Res. 2018;5(1):e000360. doi: 10.1136/bmjresp-2018-000360. PMID: 30622718. -Not a U.S. population [PMC free article: PMC6307575] [PubMed: 30622718] [CrossRef]
32. Barrio-Cantalejo IM, Molina-Ruiz A, Simón-Lorda P, et al. Advance directives and proxies’ predictions about patients’ treatment preferences. Nursing Ethics. 2009;16(1):93–109. doi: 10.1177/0969733008097995. PMID: 105630329. Language: English. Entry Date: 20090327. Revision Date: 20150818. Publication Type: Journal Article. -Not a U.S. population [PubMed: 19103694] [CrossRef]
33. Baumann AJ, Wheeler DS, James M, et al. Benefit of Early Palliative Care Intervention in End-Stage Liver Disease Patients Awaiting Liver Transplantation. J Pain Symptom Manage. 2015 Dec;50(6):882–6.e2. doi: 10.1016/j.jpainsymman.2015.07.014. PMID: 26303186. -No outcomes of interest [PubMed: 26303186] [CrossRef]
34. Beernaert K, Deliens L, De Vleminck A, et al. Is There a Need for Early Palliative Care in Patients With Life-Limiting Illnesses? Interview Study With Patients About Experienced Care Needs From Diagnosis Onward. Am J Hosp Palliat Care. 2016 Jun;33(5):489–97. doi: 10.1177/1049909115577352. PMID: 25852203. -Not relevant to key questions [PubMed: 25852203] [CrossRef]
35. Beernaert K, Van den Block L, Van Thienen K, et al. Family physicians’ role in palliative care throughout the care continuum: stakeholder perspectives. Fam Pract. 2015 Dec;32(6):694–700. doi: 10.1093/fampra/cmv072. PMID: 26373666. -Not a U.S. population [PubMed: 26373666] [CrossRef]
36. Benzar E, Hansen L, Kneitel AW, et al. Discharge planning for palliative care patients: a qualitative analysis. J Palliat Med. 2011 Jan;14(1):65–9. doi: 10.1089/jpm.2010.0335. PMID: 21244256. -Patients not being seen in ambulatory settings [PMC free article: PMC3021325] [PubMed: 21244256] [CrossRef]
37. Berger GN, O’Riordan DL, Kerr K, et al. Prevalence and characteristics of outpatient palliative care services in california. Archives of Internal Medicine. 2011;171(22):2057–9. PMID: 108213238. Language: English. Entry Date: 20120323. Revision Date: 20150712. Publication Type: Journal Article. -Patients not being seen in ambulatory settings [PubMed: 21986345]
38. Berns SH, Camargo M, Meier DE, et al. Goals of Care Ambulatory Resident Education: Training Residents in Advance Care Planning Conversations in the Outpatient Setting. J Palliat Med. 2017 Dec;20(12):1345–51. doi: 10.1089/jpm.2016.0273. PMID: 28661787. -Other: Trainee education [PubMed: 28661787] [CrossRef]
39. Berzoff J, Swantkowski J, Cohen LM. Developing a renal supportive care team from the voices of patients, families, and palliative care staff. Palliat Support Care. 2008 Jun;6(2):133–9. doi: 10.1017/s1478951508000217. PMID: 18501048. -Not relevant to key questions [PubMed: 18501048] [CrossRef]
40. Beyea A, Fischer J, Schenck A, et al. Integrating palliative care information and hospice referral in medicaid primary care. J Palliat Med. 2013 Apr;16(4):376–82. doi: 10.1089/jpm.2012.0483. PMID: 23461299. -Other: No control group [PubMed: 23461299] [CrossRef]
41. Bloch N, Krantz AC, Iqbal A, et al. Group discussions about future care planning. Journal of general internal medicine. 2015;30:S534. PMID: CN-01099394. -No full report (e.g. conference or meeting abstract)
42. Boersma I, Jones J, Carter J, et al. Parkinson disease patients’ perspectives on palliative care needs: What are they telling us? Neurol Clin Pract. 2016 Jun;6(3):209–19. doi: 10.1212/cpj.0000000000000233. PMID: 27347438. -Not relevant to key questions [PMC free article: PMC4909525] [PubMed: 27347438] [CrossRef]
43. Bonsignore L, Bloom N, Steinhauser K, et al. Evaluating the Feasibility and Acceptability of a Telehealth Program in a Rural Palliative Care Population: TapCloud for Palliative Care. J Pain Symptom Manage. 2018 Jul;56(1):7–14. doi: 10.1016/j.jpainsymman.2018.03.013. PMID: 29551433. -Patients not being seen in ambulatory settings [PubMed: 29551433] [CrossRef]
44. Bose-Brill S, Kretovics M, Ballenger T, et al. Development of a tethered personal health record framework for early end-of-life discussions. Am J Manag Care. 2016 Jun;22(6):412–8. PMID: 27355808. -Not relevant to key questions [PMC free article: PMC5219928] [PubMed: 27355808]
45. Bottorff JL, Steele R, Davies B, et al. Striving for balance: palliative care patients’ experiences of making everyday choices. J Palliat Care. 1998 Spring;14(1):7–17. PMID: 9575708. -Article published prior to year 2000 [PubMed: 9575708]
46. Bourke SJ, Booth Z, Doe S, et al. A service evaluation of an integrated model of palliative care of cystic fibrosis. Palliat Med. 2016 Jul;30(7):698–702. doi: 10.1177/0269216315626658. PMID: 26814212. -Not a U.S. population [PubMed: 26814212] [CrossRef]
47. Bourke SJ, Doe SJ, Gascoigne AD, et al. An integrated model of provision of palliative care to patients with cystic fibrosis. Palliat Med. 2009 Sep;23(6):512–7. doi: 10.1177/0269216309106312. PMID: 19460834. -Not a U.S. population [PubMed: 19460834] [CrossRef]
48. Bove DG, Jellington MO, Lavesen M, et al. Assigned nurses and a professional relationship: a qualitative study of COPD patients’ perspective on a new palliative outpatient structure named CAPTAIN. BMC Palliative Care. 2019;18(1):N.PAG-N.PAG. doi: 10.1186/s12904-019-0410-0. PMID: 135036845. Language: English. Entry Date: 20190306. Revision Date: 20190308. Publication Type: Article. Journal Subset: Biomedical. -Not a U.S. population [PMC free article: PMC6397743] [PubMed: 30825878] [CrossRef]
49. Boyd CO, Vernon GM. Primary care of the older adult with end-stage Alzheimer’s disease. Nurse Practitioner. 1998;23(4):63–76. PMID: 107263243. Language: English. Entry Date: 19980601. Revision Date: 20150819. Publication Type: Journal Article. -Other: No control group
50. Brännström M, Forssell A, Pettersson B. Physicians’ experiences of palliative care for heart failure patients. European Journal of Cardiovascular Nursing. 2011;10(1):64–9. doi: 10.1016/j.ejcnurse.2010.04.005. PMID: 104814963. Language: English. Entry Date: 20110406. Revision Date: 20150711. Publication Type: Journal Article. -Not a U.S. population [PubMed: 20471321] [CrossRef]
51. Brazil K. Building primary care capacity in palliative care: proceedings of an interprofessional workshop…Hospice Palliative Care: at a crossroads. November 4–7, 2007, Westin Harbour Castle Hotel, Toronto, Ontario, Canada. Journal of Palliative Care. 2007;23(3):235-. PMID: 105841640. Language: English. Entry Date: 20080314. Revision Date: 20150711. Publication Type: Journal Article. -Not a U.S. population
52. Briggs LA, Kirchhoff KT, Hammes BJ, et al. Patient-centered advance care planning in special patient populations: a pilot study. J Prof Nurs. 2004 Jan–Feb;20(1):47–58. doi: 10.1016/j.profnurs.2003.12.001. PMID: 15011193. -Not relevant to key questions [PubMed: 15011193] [CrossRef]
53. Brizzi K, Paganoni S, Zehm A, et al. Integration of a palliative care specialist in an amyotrophic lateral sclerosis clinic: Observations from one center. Muscle Nerve. 2019 Aug;60(2):137–40. doi: 10.1002/mus.26607. PMID: 31172537. -No outcomes of interest [PubMed: 31172537] [CrossRef]
54. Brody H. Shared decision making and determining decision-making capacity. Prim Care. 2005 Sep;32(3):645–58, vi. doi: 10.1016/j.pop.2005.06.004. PMID: 16140120. -No original data [PubMed: 16140120] [CrossRef]
55. Brummel-Smith K, Halperin AS. Patient-Centered Care for People with Cognitive Impairment Is Possible in Primary Care. Generations. 2013 Fall2013;37(3):87–91. PMID: 104168596. Language: English. Entry Date: 20131205. Revision Date: 20150711. Publication Type: Journal Article. Journal Subset: Biomedical. -No original data
56. Bull J, Kamal AH, Harker M, et al. Standardization and Scaling of a Community-Based Palliative Care Model. J Palliat Med. 2017 Nov;20(11):1237–43. doi: 10.1089/jpm.2017.0027. PMID: 28813635. -No outcomes of interest [PubMed: 28813635] [CrossRef]
57. Bull J, Zafar SY, Wheeler JL, et al. Establishing a Regional, Multisite Database for Quality Improvement and Service Planning in Community-Based Palliative Care and Hospice. Journal of Palliative Medicine. 2010;13(8):1013–20. doi: 10.1089/jpm.2010.0017. PMID: 105089008. Language: English. Entry Date: 20100927. Revision Date: 20150711. Publication Type: Journal Article. -Not relevant to key questions [PubMed: 20649439] [CrossRef]
58. Bull JH, Whitten E, Morris J, et al. Demonstration of a sustainable community-based model of care across the palliative care continuum. J Pain Symptom Manage. 2012 Dec;44(6):797–809. doi: 10.1016/j.jpainsymman.2011.12.278. PMID: 22771124. -No original data [PubMed: 22771124] [CrossRef]
59. Bush RA, Perez A, Baum T, et al. A systematic review of the use of the electronic health record for patient identification, communication, and clinical support in palliative care. JAMIA Open. 2018 Oct 1;1(2):294–303. doi: 10.1093/jamiaopen/ooy028. PMID: 30842998. -No original data [PMC free article: PMC6398614] [PubMed: 30842998] [CrossRef]
60. Byock I, Twohig JS, Merriman M, et al. Promoting excellence in end-of-life care: a report on innovative models of palliative care. J Palliat Med. 2006 Feb;9(1):137–51. doi: 10.1089/jpm.2006.9.137. PMID: 16430353. -No original data [PubMed: 16430353] [CrossRef]
61. Cabanero-Martinez MJ, Ramos-Pichardo JD, Velasco-Alvarez ML, et al. Availability and perceived usefulness of guidelines and protocols for subcutaneous hydration in palliative care settings. J Clin Nurs. 2019 Aug 14doi: 10.1111/jocn.15036. PMID: 31410903. -Not relevant to key questions [PubMed: 31410903] [CrossRef]
62. Calvin AO, Engebretson JC, Sardual SA. Understanding of advance care planning by family members of persons undergoing hemodialysis. West J Nurs Res. 2014 Nov;36(10):1357–73. doi: 10.1177/0193945913514637. PMID: 24326309. -Not relevant to key questions [PubMed: 24326309] [CrossRef]
63. Calvin AO. Haemodialysis patients and end-of-life decisions: a theory of personal preservation. J Adv Nurs. 2004 Jun;46(5):558–66. doi: 10.1111/j.1365-2648.2004.03030.x. PMID: 15139945. -Not relevant to key questions [PubMed: 15139945] [CrossRef]
64. Campion-Smith C, Austin H, Criswick S, et al. Can sharing stories change practice? A qualitative study of an interprofessional narrative-based palliative care course. J Interprof Care. 2011 Mar;25(2):105–11. doi: 10.3109/13561820.2010.515427. PMID: 21043556. -Not a U.S. population [PubMed: 21043556] [CrossRef]
65. Carroll D, Lawton S. Teaching exchange. A primary care-based palliative care education project in Aberdeen: the first year. Education for Primary Care. 2006;17(5):501–5. PMID: 105910209. Language: English. Entry Date: 20080509. Revision Date: 20150711. Publication Type: Journal Article. -Not a U.S. population
66. Carroll T, Weisbrod N, O’Connor A, et al. Primary Palliative Care Education: A Pilot Survey. American Journal of Hospice & Palliative Medicine. 2018;35(4):565–9. doi: 10.1177/1049909117723618. PMID: 128132162. Language: English. Entry Date: 20180312. Revision Date: 20190422. Publication Type: Article. -Not relevant to key questions [PubMed: 28782375] [CrossRef]
67. Carter A, Harrison M, Kryworuchko J, et al. Essential Elements to Implmenting the Paramedics Providing Palliative Care at Home Program: An Application of the Consolidated Framework for Implmentation Research (CFIR). Scientific Abstracts. 2020. -No full report (e.g. conference or meeting abstract)
68. Cave SK. PEACE: Providing End of Life Advance Care Planning for Patients Through Education and Evaluation of Preferences in the Primary Care Setting. PEACE: Providing End of Life Advance Care Planning for Patients Through Education & Evaluation of Preferences in the Primary Care Setting. 2018:1-.-No original data
69. Cawley D, Waterman D, Roberts D, et al. A qualitative study exploring perceptions and experiences of patients and clinicians of palliative medicine outpatient clinics in different settings. Palliative Medicine. 2011;25(1):52–61. doi: 10.1177/0269216310375998. PMID: 104991345. Language: English. Entry Date: 20110318. Revision Date: 20150711. Publication Type: Journal Article. -Not a U.S. population [PubMed: 20719815] [CrossRef]
70. Cawley D, Waterman D, Roberts D, et al. Palliative Medicine Outpatient Clinics (PMOC): do different care settings influence the patients’ experience. Palliative Medicine. 2010;24(2):208–9. PMID: 105150522. Language: English. Entry Date: 20100507. Revision Date: 20150711. Publication Type: Journal Article. -Not a U.S. population
71. Celeste MSI. Knowledge and Barriers to Palliative Care Screening and Referral for Patients with Advanced Heart Failure. Knowledge & Barriers To Palliative Care Screening & Referral For Patients With Advanced Heart Failure. 2018:1-.-Other: Not a published article
72. Chan D, Ward E, Lapin B, et al. Outpatient Advance Care Planning Internal Medicine Resident Curriculum: Valuing Our Patients’ Wishes. J Palliat Med. 2016 Jul;19(7):734–45. doi: 10.1089/jpm.2015.0313. PMID: 27244093. -Other: Trainee education [PubMed: 27244093] [CrossRef]
73. Chan KY, Yap DYH, Yip T, et al. Palliative Care Consultation in Advanced Chronic Kidney Disease with Pain. Journal of Palliative Medicine. 2018;21(6):809–14. doi: 10.1089/jpm.2017.0505. PMID: 130072220. Language: English. Entry Date: 20180613. Revision Date: 20190603. Publication Type: Article. -Not a U.S. population [PubMed: 29596025] [CrossRef]
74. Chen H, Habermann B. Ready or not: planning for health declines in couples with advanced multiple sclerosis. J Neurosci Nurs. 2013 Feb;45(1):38–43. doi: 10.1097/JNN.0b013e318275b1f9. PMID: 23291870. -Not relevant to key questions [PMC free article: PMC3539151] [PubMed: 23291870] [CrossRef]
75. Chen JC, Thorsteinsdottir B, Vaughan LE, et al. End of Life, Withdrawal, and Palliative Care Utilization among Patients Receiving Maintenance Hemodialysis Therapy. Clin J Am Soc Nephrol. 2018 Aug 7;13(8):1172–9. doi: 10.2215/cjn.00590118. PMID: 30026285. -Not relevant to key questions [PMC free article: PMC6086702] [PubMed: 30026285] [CrossRef]
76. Cleary AS. Integrating palliative care into primary care for patients with chronic, life-limiting conditions. Nurse Practitioner. 2016;41(3):42–9. doi: 10.1097/01.NPR.0000480588.01667.58. PMID: 113555913. Language: English. Entry Date: 20170414. Revision Date: 20170414. Publication Type: Article. -No original data [PubMed: 26886272] [CrossRef]
77. Clevenger CK, Cellar J, Kovaleva M, et al. Integrated Memory Care Clinic: Design, Implementation, and Initial Results. J Am Geriatr Soc. 2018 Dec;66(12):2401–7. doi: 10.1111/jgs.15528. PMID: 30136290. -Other: No comparison group [PubMed: 30136290] [CrossRef]
78. Clinical Practice Guidelines for Quality Palliative Care, 4th edition. National Coalition for Hospice and Palliative Care. https:​//nationalcoalitionhpc​.us16.list-manage​.com/subscribe?u​=707e5c14e3dd0d0f687f12164&id​=eaedc60374. Accessed on March 2020. -No original data
79. Community-Based Models of Care Delivery for People with Serious Illness. National Academy of Medicine; 2017. https://nam​.edu/community-based-models-of-care-delivery-for-people-with-serious-illness/. Accessed on May 2020. -No original data
80. Conelius J, Shea J. A Primary Palliative Care Project: The Need to Educate Primary Care Providers in Under-served Communities. Applied Nursing Research. 2019. -Not relevant to key questions [PubMed: 31706705]
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186. Koss C. Encounters With Health-Care Providers and Advance Directive Completion by Older Adults. Journal of Palliative Care. 2018;33(3):178–81. doi: 10.1177/0825859718769099. PMID: 130213581. Language: English. Entry Date: 20181128. Revision Date: 20181128. Publication Type: journal article. Journal Subset: Biomedical. -Not relevant to key questions [PubMed: 29651900] [CrossRef]
187. Kurella Tamura M, Goldstein MK, Perez-Stable EJ. Preferences for dialysis withdrawal and engagement in advance care planning within a diverse sample of dialysis patients. Nephrol Dial Transplant. 2010 Jan;25(1):237–42. doi: 10.1093/ndt/gfp430. PMID: 19734137. -Not relevant to key questions [PMC free article: PMC2910327] [PubMed: 19734137] [CrossRef]
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189. Lally KM, Ducharme CM, Roach RL, et al. Interprofessional training: Geriatrics and palliative care principles for primary care teams in an ACO. Gerontol Geriatr Educ. 2019 Jan–Mar;40(1):121–31. doi: 10.1080/02701960.2018.1459595. PMID: 29630470. -No outcomes of interest [PubMed: 29630470] [CrossRef]
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196. Leung KM, Blatt C, Ravid S, et al. A PILOT STUDY OF ADVANCE CARE PLANNING IN THE OUTPATIENT CARDIOLOGY SETTING: PRELIMINARY FEASIBILITY AND STUDY DESIGN. Journal of the American College of Cardiology (JACC). 2019;73(9):3011-. doi: 10.1016/S0735-1097(19)33617-4. PMID: 135347126. Language: English. Entry Date: In Process. Revision Date: 20190326. Publication Type: Article. Supplement Title: 2019 Supplement 1. Journal Subset: Biomedical. -No full report (e.g. conference or meeting abstract) [CrossRef]
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200. Lowe J, Fischer J, Dolor R, et al. Creation and Utilization of Electronic Health Record Algorithm and Practice Alert to Identify Patients Eligible for Advance Care Planning Discussion with Primary Care Clinics for the Meta-LARC ACP Study (S789). -No full report (e.g. conference or meeting abstract)
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219. Nct. An Effectiveness-Implementation Trial of SPIRIT in ESRD. -No original data
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225. Nct. FANMI: community Cohort Care for HIV-Infected Adolescent Girls in Haiti. https:​//clinicaltrials​.gov/show/NCT03286504. 2017 PMID: CN-01564167. -Not a U.S. population
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234. Nct. Sharing and Talking About my Preferences. https:​//clinicaltrials​.gov/show/NCT03103828. 2017 PMID: CN-01563179. -No original data
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236. Nct. UC Health Planning Study. https:​//clinicaltrials​.gov/show/NCT04012749. 2019 PMID: CN-01953144. -No original data
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326. Volandes A, Paasche-Orlow M, Davis A, et al. Use of Video Decision Aids to Promote Advance Care Planning in Hilo, Hawai’i. JGIM: Journal of General Internal Medicine. 2016;31(9):1035–40. doi: 10.1007/s11606-016-3730-2. PMID: 117320214. Language: English. Entry Date: 20180720. Revision Date: 20181211. Publication Type: journal article. Journal Subset: Biomedical. -Patients do not have serious life-threatening chronic illness or conditions [PMC free article: PMC4978682] [PubMed: 27194151] [CrossRef]
327. Volandes AE, Ferguson LA, Davis AD, et al. Assessing End-of-Life Preferences for Advanced Dementia in Rural Patients Using an Educational Video: A Randomized Controlled Trial. Journal of Palliative Medicine. 2011;14(2):169–77. doi: 10.1089/jpm.2010.0299. PMID: 104814213. Language: English. Entry Date: 20110405. Revision Date: 20150711. Publication Type: Journal Article. -Not relevant to key questions [PubMed: 21254815] [CrossRef]
328. Von Gunten CF, Mullan PB, Harrity S, et al. Residents from five training programs report improvements in knowledge, attitudes and skills after a rotation with a hospice program. J Cancer Educ. 2003 Summer;18(2):68–72. doi: 10.1207/s15430154jce1802_06. PMID: 12888378. -Patients not being seen in ambulatory settings [PubMed: 12888378] [CrossRef]
329. von Gunten CF, Mullan PB, Nelesen R, et al. Primary Care Residents Improve Knowledge, Skills, Attitudes, and Practice After a Clinical Curriculum With a Hospice. Am J Hosp Palliat Care. 2017 Sep;34(8):713–20. doi: 10.1177/1049909116655767. PMID: 27353516. -Other: Trainee education [PubMed: 27353516] [CrossRef]
330. von Gunten CF, Twaddle M, Preodor M, et al. Evidence of improved knowledge and skills after an elective rotation in a hospice and palliative care program for internal medicine residents. Am J Hosp Palliat Care. 2005 May–Jun;22(3):195–203. doi: 10.1177/104990910502200309. PMID: 15909782. -Other: Includes residents [PubMed: 15909782] [CrossRef]
331. von Plessen C, Aslaksen A. Improving the quality of palliative care for ambulatory patients with lung cancer. BMJ: British Medical Journal (International Edition). 2005;330(7503):1309–13. doi: 10.1136/bmj.330.7503.1309. PMID: 106466450. Language: English. Entry Date: 20060707. Revision Date: 20150711. Publication Type: Journal Article. -Not a U.S. population [PMC free article: PMC558209] [PubMed: 15933354] [CrossRef]
332. Wade VA, Taylor AD, Kidd MR, et al. Transitioning a home telehealth project into a sustainable, large-scale service: a qualitative study. BMC Health Serv Res. 2016 May 16;16:183. doi: 10.1186/s12913-016-1436-0. PMID: 27185041. -Not a U.S. population [PMC free article: PMC4869378] [PubMed: 27185041] [CrossRef]
333. Walker NM, Mandell KL, Tsevat J. Use of chart reminders for physicians to promote discussion of advance directives in patients with AIDS. AIDS Care. 1999 Jun;11(3):345–53. doi: 10.1080/09540129947965. PMID: 10474632. -Article published prior to year 2000 [PubMed: 10474632] [CrossRef]
334. Walling AM, Sudore RL, Bell D, et al. Population-Based Pragmatic Trial of Advance Care Planning in Primary Care in the University of California Health System. J Palliat Med. 2019 Sep;22(S1):72–81. doi: 10.1089/jpm.2019.0142. PMID: 31486723. -No original data [PMC free article: PMC6916115] [PubMed: 31486723] [CrossRef]
335. Warraich HJ, Wolf SP, Mentz RJ, et al. Characteristics and Trends Among Patients With Cardiovascular Disease Referred to Palliative Care. JAMA Netw Open. 2019 May 3;2(5):e192375. doi: 10.1001/jamanetworkopen.2019.2375. PMID: 31050773. -Not relevant to key questions [PMC free article: PMC6503632] [PubMed: 31050773] [CrossRef]
336. Wells R, Ejem D, Dionne-Odom J, et al. What’s in the “Black Box”? Describing the Focus of Early, Outpatient Palliative Care Consultation Evaluations and Treatment Recommendations for Individuals with Advanced Heart Failure (TH321B). Journal of Pain & Symptom Management. 2017;53(2):327–8. doi: 10.1016/j.jpainsymman.2016.12.051. PMID: 120798093. Language: English. Entry Date: 20180328. Revision Date: 20170705. Publication Type: Article. Journal Subset: Biomedical. -No full report (e.g. conference or meeting abstract) [CrossRef]
337. Wells R, Ejem D, Dionne-Odom JN, et al. Protocol driven palliative care consultation: Outcomes of the ENABLE CHF-PC pilot study. Heart Lung. 2018 Nov;47(6):533–8. doi: 10.1016/j.hrtlng.2018.06.012. PMID: 30143363. -No outcomes of interest [PubMed: 30143363] [CrossRef]
338. Wells R, Stockdill ML, Dionne-Odom JN, et al. Educate, Nurture, Advise, Before Life Ends Comprehensive Heartcare for Patients and Caregivers (ENABLE CHF-PC): study protocol for a randomized controlled trial. Trials. 2018 Aug 6;19(1):422. doi: 10.1186/s13063-018-2770-9. PMID: 30081933. -No original data [PMC free article: PMC6090835] [PubMed: 30081933] [CrossRef]
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340. Wissow LS, Belote A, Kramer W, et al. Promoting advance directives among elderly primary care patients. J Gen Intern Med. 2004 Sep;19(9):944–51. doi: 10.1111/j.1525-1497.2004.30117.x. PMID: 15333059. -Patients do not have serious life-threatening chronic illness or conditions [PMC free article: PMC1492518] [PubMed: 15333059] [CrossRef]
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342. Zahradnik E, Majeske M. Poster Number: NR 32 - Implementation of a Screening Tool for Outpatient Palliative Care Referrals from Geriatric Psychiatry: A Quality Improvement Project. American Journal of Geriatric Psychiatry. 2017;25:S144–S. doi: 10.1016/j.jagp.2017.01.166. PMID: 122586889. Language: English. Entry Date: In Process. Revision Date: 20170502. Publication Type: Article. Supplement Title: Mar2017 Supplement. Journal Subset: Biomedical. -No full report (e.g. conference or meeting abstract) [CrossRef]
343. Zapata C, Wistar E, Horton C, et al. Using A Video-Based Advance Care Planning (ACP) Website to Facilitate Group Visits for Diverse Older Adults in Primary Care Is Feasible And Improves ACP Engagement (TH307D). Journal of Pain & Symptom Management. 2017;53(2):318–9. doi: 10.1016/j.jpainsymman.2016.12.034. PMID: 120798281. Language: English. Entry Date: 20180328. Revision Date: 20170123. Publication Type: Article. Journal Subset: Biomedical. -No full report (e.g. conference or meeting abstract) [CrossRef]
344. Zimmermann CJ, Jhagroo RA, Wakeen M, et al. Opportunities to Improve Shared Decision Making in Dialysis Decisions for Older Adults with Life-Limiting Kidney Disease: A Pilot Study. Journal of Palliative Medicine. 2020. -Other: No control group [PMC free article: PMC7232635] [PubMed: 31930929]
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Excluded Reviews

1. Advance care planning in primary care, only for severely ill patients? A structured review. Primary Health Care. 2015;25(2):16-. PMID: 103773838. Language: English. Entry Date: 20150304. Revision Date: 20190926. Publication Type: Journal Article. -No original data
2. Barker S, Lynch M, Hopkinson J. Decision making for people living with dementia by their carers at the end of life: a rapid scoping review. Int J Palliat Nurs. 2017 Sep 2;23(9):446–56. doi: 10.12968/ijpn.2017.23.9.446. PMID: 28933994. - Not a U.S. population [PubMed: 28933994] [CrossRef]
3. Bharmal A, Morgan T, Kuhn I, et al. Palliative and end-of-life care and junior doctors’: a systematic review and narrative synthesis. BMJ Support Palliat Care. 2019 Nov 13doi: 10.1136/bmjspcare-2019-001954. PMID: 31722983. - Not a U.S. population [PMC free article: PMC9726967] [PubMed: 31722983] [CrossRef]
4. Blaber M, Jones J, Willis D. Spiritual care: which is the best assessment tool for palliative settings? International Journal of Palliative Nursing. 2015;21(9):430–8. doi: 10.12968/ijpn.2015.21.9.430. PMID: 110128803. Language: English. Entry Date: 20151008. Revision Date: 20151009. Publication Type: Article. -No original data [PubMed: 26412273] [CrossRef]
5. Burridge L, Winch S, Clavarino A. Reluctance to care: a systematic review and development of a conceptual framework. Cancer Nurs. 2007 Mar–Apr;30(2):E9–19. doi: 10.1097/01.NCC.0000265298.17394.e0. PMID: 17413772. -Patient population is cancer-only [PubMed: 17413772] [CrossRef]
6. Calvel L, Blondet LV, Chedotal I, et al. Difficulties in providing palliative care in identified palliative care beds: An exploratory survey. Presse Med. 2019 Jul – Aug;48(7–8 Pt 1):e209–e15. doi: 10.1016/j.lpm.2018.10.020. PMID: 31421945. - Other: article not accessible [PubMed: 31421945] [CrossRef]
7. Fine E, Reid MC, Shengelia R, et al. Directly observed patient--physician discussions in palliative and end-of-life care: a systematic review of the literature. Journal of Palliative Medicine. 2010;13(5):595–603. doi: 10.1089/jpm.2009.0388. PMID: 105213639. Language: English. Entry Date: 20100702. Revision Date: 20150711. Publication Type: Journal Article. -No original data [PMC free article: PMC2938894] [PubMed: 20491550] [CrossRef]
8. Foley G, Hynes G. Decision-making among patients and their family in ALS care: a review. Amyotroph Lateral Scler Frontotemporal Degener. 2018 May;19(3–4):173–93. doi: 10.1080/21678421.2017.1353099. PMID: 28799808. - Not relevant to key questions [PubMed: 28799808] [CrossRef]
9. Gardiner C, Gott M, Ingleton C. Factors supporting good partnership working between generalist and specialist palliative care services: a systematic review. Br J Gen Pract. 2012 May;62(598):e353–62. doi: 10.3399/bjgp12X641474. PMID: 22546595. -No original data [PMC free article: PMC3338057] [PubMed: 22546595] [CrossRef]
10. Ghosh A, Dzeng E, Cheng MJ. Interaction of palliative care and primary care. Clinics in Geriatric Medicine. 2015;31(2):207–18. doi: 10.1016/j.cger.2015.01.001. PMID: 109584144. Language: English. Entry Date: 20150923. Revision Date: 20160206. Publication Type: journal article. -No original data [PubMed: 25920056] [CrossRef]
11. Green E, Knight S, Gott M, et al. Patients’ and carers’ perspectives of palliative care in general practice: A systematic review with narrative synthesis. Palliative Medicine. 2018;32(4):833–50. doi: 10.1177/0269216317748862. PMID: 128758466. Language: English. Entry Date: 20180403. Revision Date: 20180522. Publication Type: Article. -No original data [PubMed: 29343169] [CrossRef]
12. Ivany E, While A. Understanding the palliative care needs of heart failure patients. British Journal of Community Nursing. 2013;18(9):441–5. PMID: 104223894. Language: English. Entry Date: 20130910. Revision Date: 20150820. Publication Type: Journal Article. -No original data [PubMed: 24005488]
13. Jethwa KD, Onalaja O. Advance care planning and palliative medicine in advanced dementia: a literature review. BJPsych Bull. 2015 Apr;39(2):74–8. doi: 10.1192/pb.bp.114.046896. PMID: 26191437. -No original data [PMC free article: PMC4478901] [PubMed: 26191437] [CrossRef]
14. Lakin JR, Block SD, Billings JA, et al. Improving Communication About Serious Illness in Primary Care: A Review. JAMA Intern Med. 2016 Sep 1;176(9):1380–7. doi: 10.1001/jamainternmed.2016.3212. PMID: 27398990. -No original data [PubMed: 27398990] [CrossRef]
15. Lakin JR, Block SD, Billings JA, et al. Improving Communication About Serious Illness in Primary Care: A Review. JAMA Internal Medicine. 2016;176(9):1380–7. doi: 10.1001/jamainternmed.2016.3212. PMID: 118055118. Language: English. Entry Date: 20180626. Revision Date: 20180723. Publication Type: journal article. -No original data [PubMed: 27398990] [CrossRef]
16. McCaffrey N, Bradley S, Ratcliffe J, et al. What Aspects of Quality of Life Are Important From Palliative Care Patients’ Perspectives? A Systematic Review of Qualitative Research. J Pain Symptom Manage. 2016 Aug;52(2):318–28.e5. doi: 10.1016/j.jpainsymman.2016.02.012. PMID: 27216362. - Not a U.S. population [PubMed: 27216362] [CrossRef]
17. Meeker MA, McGinley JM, Jezewski MA. Metasynthesis: Dying adults’ transition process from cure-focused to comfort-focused care. J Adv Nurs. 2019 Oct;75(10):2059–71. doi: 10.1111/jan.13970. PMID: 30734354. -No original data [PubMed: 30734354] [CrossRef]
18. Morton RL, Tong A, Howard K, et al. The views of patients and carers in treatment decision making for chronic kidney disease: systematic review and thematic synthesis of qualitative studies. Bmj. 2010 Jan 19;340:c112. doi: 10.1136/bmj.c112. PMID: 20085970. -No original data [PMC free article: PMC2808468] [PubMed: 20085970] [CrossRef]
19. Oishi A, Murtagh FEM. The challenges of uncertainty and interprofessional collaboration in palliative care for non-cancer patients in the community: A systematic review of views from patients, carers and health-care professionals. Palliative Medicine. 2014;28(9):1081–98. doi: 10.1177/0269216314531999. PMID: 103891764. Language: English. Entry Date: 20140922. Revision Date: 20150710. Publication Type: Journal Article. -No original data [PMC free article: PMC4232314] [PubMed: 24821710] [CrossRef]
20. Ostlund U, Brown H, Johnston B. Dignity conserving care at end-of-life: a narrative review. Eur J Oncol Nurs. 2012 Sep;16(4):353–67. doi: 10.1016/j.ejon.2011.07.010. PMID: 21917517. - Not a U.S. population [PubMed: 21917517] [CrossRef]
21. Raymond M, Warner A, Davies N, et al. Palliative and end of life care for people with dementia: lessons for clinical commissioners. Prim Health Care Res Dev. 2014 Oct;15(4):406–17. doi: 10.1017/s146342361300039x. PMID: 24280024. -No original data [PubMed: 24280024] [CrossRef]
22. Robinson L, Iliffe S, Brayne C, et al. Primary care and dementia: 2. Long-term care at home: psychosocial interventions, information provision, carer support and case management. International Journal of Geriatric Psychiatry. 2010;25(7):657–64. doi: 10.1002/gps.2405. PMID: 105038552. Corporate Author: DeNDRoN Primary Care Clinical Studies Group. Language: English. Entry Date: 20100820. Revision Date: 20170928. Publication Type: journal article. - Not relevant to key questions [PubMed: 19946862] [CrossRef]
23. Rocker G, Downar J, Morrison RS. Palliative care for chronic illness: driving change. Cmaj. 2016 Dec 6;188(17–18):E493–e8. doi: 10.1503/cmaj.151454. PMID: 27551031. -No original data [PMC free article: PMC5135526] [PubMed: 27551031] [CrossRef]
24. Roger KS, Roger KS. A literature review of palliative care, end of life, and dementia. Palliative & Supportive Care. 2006;4(3):295–303. PMID: 106189195. Language: English. Entry Date: 20071109. Revision Date: 20191114. Publication Type: journal article. -No original data [PubMed: 17066971]
25. Roger KS. A literature review of palliative care, end of life, and dementia. Palliat Support Care. 2006 Sep;4(3):295–303. doi: 10.1017/s1478951506060378. PMID: 17066971. -No original data [PubMed: 17066971] [CrossRef]
26. Simonic A, Furlan M, Ravnjak T, et al. Caring for caregivers: a right way to do it? Curr Opin Support Palliat Care. 2012 Sep;6(3):379–85. doi: 10.1097/SPC.0b013e328356ab0c. PMID: 22801466. -No original data [PubMed: 22801466] [CrossRef]
27. Valery PC, Powell E, Moses N, et al. Systematic review: unmet supportive care needs in people diagnosed with chronic liver disease. BMJ Open. 2015 Apr 8;5(4):e007451. doi: 10.1136/bmjopen-2014-007451. PMID: 25854973. - Not relevant to key questions [PMC free article: PMC4390721] [PubMed: 25854973] [CrossRef]