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Classic lissencephaly(LIS1; ILS)

MedGen UID:
98463
Concept ID:
C0431375
Disease or Syndrome
Synonym: Type I lissencephaly
SNOMED CT: Classic lissencephaly (253147000); Type 1 lissencephaly (253147000)
 
HPO: HP:0006818
Monarch Initiative: MONDO:0015146
OMIM®: 601545; 607432
Orphanet: ORPHA102009

Definition

Lissencephaly (LIS), literally meaning smooth brain, is characterized by smooth or nearly smooth cerebral surface and a paucity of gyral and sulcal development, encompassing a spectrum of brain surface malformations ranging from complete agyria to subcortical band heterotopia (SBH). Classic lissencephaly is associated with an abnormally thick cortex, reduced or abnormal lamination, and diffuse neuronal heterotopia. SBH consists of circumferential bands of heterotopic neurons located just beneath the cortex and separated from it by a thin band of white matter. SBH represents the less severe end of the lissencephaly spectrum of malformations (Pilz et al., 1999, summary by Kato and Dobyns, 2003). Agyria, i.e., brain without convolutions or gyri, was considered a rare malformation until recent progress in neuroradiology (Bordarier et al., 1986). With this technical advantage, a number of lissencephaly syndromes have been distinguished. Classic lissencephaly (formerly type I) is a brain malformation caused by abnormal neuronal migration at 9 to 13 weeks' gestation, resulting in a spectrum of agyria, mixed agyria/pachygyria, and pachygyria. It is characterized by an abnormally thick and poorly organized cortex with 4 primitive layers, diffuse neuronal heterotopia, enlarged and dysmorphic ventricles, and often hypoplasia of the corpus callosum (Lo Nigro et al., 1997). Kato and Dobyns (2003) presented a classification system for neuronal migration disorders based on brain imaging findings and molecular analysis. The authors also reviewed the contributions and interactions of the 5 genes then known to cause human lissencephaly: LIS1 (PAFAH1B1), 14-3-3-epsilon (YWHAE), DCX, RELN, and ARX. Genetic Heterogeneity of Lissencephaly Lissencephaly is a genetically heterogeneous disorder. See also LIS2 (257320), caused by mutation in the RELN gene (600514) on chromosome 7q22; LIS3 (611603), caused by mutation in the TUBA1A gene (602529) on chromosome 12q13; LIS4 (614019), caused by mutation in the NDE1 gene (609449) on chromosome 16p13; LIS5 (615191), caused by mutation in the LAMB1 gene (150240) on chromosome 7q31; LIS6 (616212), caused by mutation in the KATNB1 gene (602703) on chromosome 16q21; LIS7 (616342), caused by mutation in the CDK5 gene (123831) on chromosome 7q36; LIS8 (617255), caused by mutation in the TMTC3 gene (617218) on chromosome 12q21; LIS9 (618325), caused by mutation in the MACF1 gene (608271) on chromosome 1p34; and LIS10 (618873), caused by mutation in the CEP85L gene (618865) on chromosome 6q22. X-linked forms include LISX1 (300067), caused by mutation in the DCX gene (300121) on chromosome Xq23, and LISX2 (300215), caused by mutation in the ARX gene (300382) on chromosome Xp21. See also Miller-Dieker lissencephaly syndrome (MDLS; 247200), a contiguous gene microdeletion syndrome involving chromosome 17p13 and including the PAFAH1B1 and YWHAE (605066) genes. Lissencephaly caused by mutations in the PAFAH1B1 gene is also called 'isolated' lissencephaly to distinguish it from the accompanying features of MDLS. [from OMIM]

Additional description

From MedlinePlus Genetics
Isolated lissencephaly sequence (ILS) is a condition that affects brain development before birth. Normally, the cells that make up the exterior of the brain (cerebral cortex) are well-organized, multi-layered, and arranged into many folds and grooves (gyri). In people with ILS, the cells of the cerebral cortex are disorganized, and the brain surface is abnormally smooth with an absence (agyria) or reduction (pachygyria) of folds and grooves. In most cases, these abnormalities impair brain growth, causing the brain to be smaller than normal (microcephaly). This underdevelopment of the brain causes severe intellectual disability, delayed development, and recurrent seizures (epilepsy) in individuals with ILS.

Infants with ILS may have poor muscle tone (hypotonia) and difficulty feeding, which leads to poor growth overall. Hypotonia also affects the muscles used for breathing, which often causes breathing problems that can lead to a life-threatening bacterial lung infection known as aspiration pneumonia. Children with ILS often develop muscle stiffness (spasticity) in their arms and legs and an abnormal side-to-side curvature of the spine (scoliosis). Rarely, the muscle stiffness will progress to paralysis (spastic paraplegia). Individuals with ILS cannot walk and rarely crawl. Most children with ILS do not develop communication skills.

More than 90 percent of individuals with ILS develop epilepsy, often within the first year of life. Up to 80 percent of infants with ILS have a type of seizure called infantile spasms, these seizures can be severe enough to cause brain dysfunction (epileptic encephalopathy). After the first months of life, most children with ILS develop a variety of seizure types, including persisting infantile spasms, short periods of loss of consciousness (absence seizures); sudden episodes of weak muscle tone (drop attacks); rapid, uncontrolled muscle jerks (myoclonic seizures); and episodes of muscle rigidity, convulsions, and loss of consciousness (tonic-clonic seizures).  https://medlineplus.gov/genetics/condition/isolated-lissencephaly-sequence

Conditions with this feature

Norman-Roberts syndrome
MedGen UID:
163213
Concept ID:
C0796089
Disease or Syndrome
Lissencephaly ('smooth brain') is a severe disorder of brain development in which neuronal migration is impaired, leading to a thickened cerebral cortex in which the normally folded contour is simplified and smooth. Lissencephaly-2 (LIS2) is associated with severe abnormalities of the cerebellum and hippocampus (summary by Hong et al., 2000). For a general phenotypic description and a discussion of genetic heterogeneity of lissencephaly, see LIS1 (607432).

Professional guidelines

PubMed

Leventer RJ
J Child Neurol 2005 Apr;20(4):307-12. doi: 10.1177/08830738050200040701. PMID: 15921231

Recent clinical studies

Etiology

Khalaf-Nazzal R, Fasham J, Inskeep KA, Blizzard LE, Leslie JS, Wakeling MN, Ubeyratna N, Mitani T, Griffith JL, Baker W, Al-Hijawi F, Keough KC, Gezdirici A, Pena L, Spaeth CG, Turnpenny PD, Walsh JR, Ray R, Neilson A, Kouranova E, Cui X, Curiel DT, Pehlivan D, Akdemir ZC, Posey JE, Lupski JR, Dobyns WB, Stottmann RW, Crosby AH, Baple EL
Am J Hum Genet 2022 Nov 3;109(11):2068-2079. Epub 2022 Oct 24 doi: 10.1016/j.ajhg.2022.09.012. PMID: 36283405Free PMC Article
Herbst SM, Proepper CR, Geis T, Borggraefe I, Hahn A, Debus O, Haeussler M, von Gersdorff G, Kurlemann G, Ensslen M, Beaud N, Budde J, Gilbert M, Heiming R, Morgner R, Philippi H, Ross S, Strobl-Wildemann G, Muelleder K, Vosschulte P, Morris-Rosendahl DJ, Schuierer G, Hehr U
Brain Dev 2016 Apr;38(4):399-406. Epub 2015 Oct 19 doi: 10.1016/j.braindev.2015.10.001. PMID: 26494205
Pavone L, Corsello G, Pavone P, Iannetti P
Front Biosci (Schol Ed) 2010 Jan 1;2(1):85-95. doi: 10.2741/s47. PMID: 20036930
Torres FR, Montenegro MA, Marques-De-Faria AP, Guerreiro MM, Cendes F, Lopes-Cendes I
Neurology 2004 Mar 9;62(5):799-802. doi: 10.1212/01.wnl.0000113725.46254.fd. PMID: 15007136

Diagnosis

Michels S, Foss K, Park K, Golden-Grant K, Saneto R, Lopez J, Mirzaa GM
Am J Med Genet A 2017 Dec;173(12):3127-3131. Epub 2017 Oct 19 doi: 10.1002/ajmg.a.38496. PMID: 29048727Free PMC Article
Yilmaz Y, Ozmen M, Adalet I, Calişkan M, Unal S, Aydinli N, Minareci O
Pediatr Neurol 2000 Apr;22(4):292-7. doi: 10.1016/s0887-8994(00)00121-1. PMID: 10788746

Therapy

Herbst SM, Proepper CR, Geis T, Borggraefe I, Hahn A, Debus O, Haeussler M, von Gersdorff G, Kurlemann G, Ensslen M, Beaud N, Budde J, Gilbert M, Heiming R, Morgner R, Philippi H, Ross S, Strobl-Wildemann G, Muelleder K, Vosschulte P, Morris-Rosendahl DJ, Schuierer G, Hehr U
Brain Dev 2016 Apr;38(4):399-406. Epub 2015 Oct 19 doi: 10.1016/j.braindev.2015.10.001. PMID: 26494205

Prognosis

Leventer RJ
J Child Neurol 2005 Apr;20(4):307-12. doi: 10.1177/08830738050200040701. PMID: 15921231

Clinical prediction guides

Rolland M, Martin H, Bergamelli M, Sellier Y, Bessières B, Aziza J, Benchoua A, Leruez-Ville M, Gonzalez-Dunia D, Chavanas S
J Pathol 2021 May;254(1):92-102. Epub 2021 Mar 24 doi: 10.1002/path.5640. PMID: 33565082
Leventer RJ
J Child Neurol 2005 Apr;20(4):307-12. doi: 10.1177/08830738050200040701. PMID: 15921231
Yilmaz Y, Ozmen M, Adalet I, Calişkan M, Unal S, Aydinli N, Minareci O
Pediatr Neurol 2000 Apr;22(4):292-7. doi: 10.1016/s0887-8994(00)00121-1. PMID: 10788746

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