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Cerebellar malformation

MedGen UID:
871227
Concept ID:
C4025708
Congenital Abnormality
Synonym: Cerebellar malformations
 
HPO: HP:0002438
Orphanet: ORPHA182061

Conditions with this feature

Muscular dystrophy-dystroglycanopathy (congenital with brain and eye anomalies), type A1
MedGen UID:
924974
Concept ID:
C4284790
Disease or Syndrome
Congenital muscular dystrophy-dystroglycanopathy with brain and eye anomalies (type A), which includes both the more severe Walker-Warburg syndrome (WWS) and the slightly less severe muscle-eye-brain disease (MEB), is a genetically heterogeneous autosomal recessive disorder with characteristic brain and eye malformations, profound mental retardation, congenital muscular dystrophy, and early death. The phenotype commonly includes cobblestone (type II) lissencephaly, cerebellar malformations, and retinal malformations. More variable features include macrocephaly or microcephaly, hypoplasia of midline brain structures, ventricular dilatation, microphthalmia, cleft lip/palate, and congenital contractures (Dobyns et al., 1989). Those with a more severe phenotype characterized as Walker-Warburg syndrome often die within the first year of life, whereas those characterized as having muscle-eye-brain disease may rarely acquire the ability to walk and to speak a few words. These are part of a group of disorders resulting from defective glycosylation of DAG1 (128239), collectively known as 'dystroglycanopathies' (Godfrey et al., 2007). Genetic Heterogeneity of Congenital Muscular Dystrophy-Dystroglycanopathy with Brain and Eye Anomalies (Type A) Muscular dystrophy-dystroglycanopathy with brain and eye anomalies (type A) is genetically heterogeneous and can be caused by mutation in other genes involved in DAG1 glycosylation: see MDDGA2 (613150), caused by mutation in the POMT2 gene (607439); MDDGA3 (253280), caused by mutation in the POMGNT1 gene (606822); MDDGA4 (253800), caused by mutation in the FKTN gene (607440); MDDGA5 (613153), caused by mutation in the FKRP gene (606596); MDDGA6 (613154), caused by mutation in the LARGE gene (603590); MDDGA7 (614643), caused by mutation in the ISPD gene (CRPPA; 614631); MDDGA8 (614830) caused by mutation in the GTDC2 gene (POMGNT2; 614828); MDDGA9 (616538), caused by mutation in the DAG1 gene (128239); MDDGA10 (615041), caused by mutation in the TMEM5 gene (RXYLT1; 605862); MDDGA11 (615181), caused by mutation in the B3GALNT2 gene (610194); MDDGA12 (615249), caused by mutation in the SGK196 gene (POMK; 615247); MDDGA13 (615287), caused by mutation in the B3GNT1 gene (B4GAT1; 605517); and MDDGA14 (615350), caused by mutation in the GMPPB gene (615320).

Professional guidelines

PubMed

Zhao Q, Xu B, Xiang Q, Tan Y, Xie H, Gao Q, Wen L, Wang H, Yang M, Liu S
Mol Genet Genomic Med 2023 Mar;11(3):e2124. Epub 2022 Dec 20 doi: 10.1002/mgg3.2124. PMID: 36538006Free PMC Article

Recent clinical studies

Etiology

Srour M, Hamdan FF, McKnight D, Davis E, Mandel H, Schwartzentruber J, Martin B, Patry L, Nassif C, Dionne-Laporte A, Ospina LH, Lemyre E, Massicotte C, Laframboise R, Maranda B, Labuda D, Décarie JC, Rypens F, Goldsher D, Fallet-Bianco C, Soucy JF, Laberge AM, Maftei C; Care4Rare Canada Consortium, Boycott K, Brais B, Boucher RM, Rouleau GA, Katsanis N, Majewski J, Elpeleg O, Kukolich MK, Shalev S, Michaud JL
Am J Hum Genet 2015 Nov 5;97(5):744-53. Epub 2015 Oct 17 doi: 10.1016/j.ajhg.2015.09.009. PMID: 26477546Free PMC Article
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Am J Med Genet A 2012 Oct;158A(10):2393-406. Epub 2012 Sep 10 doi: 10.1002/ajmg.a.35561. PMID: 22965664Free PMC Article
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Diagnosis

Strong A, Qu HQ, Cullina S, McManus ML, Zackai EH, Glessner J, Kenny EE, Hakonarson H
Am J Med Genet A 2023 Aug;191(8):2156-2163. Epub 2023 May 25 doi: 10.1002/ajmg.a.63303. PMID: 37227088Free PMC Article
Alvarez C, Grimmel M, Ebrahimi-Fakhari D, Paul VG, Deininger N, Riess A, Haack T, Gardella E, Møller RS, Bayat A
Clin Genet 2023 May;103(5):566-573. Epub 2023 Jan 11 doi: 10.1111/cge.14275. PMID: 36453471
Williams AJ, Wang Z, Taylor SF
Neurocase 2016 Oct;22(5):472-475. Epub 2016 Sep 23 doi: 10.1080/13554794.2016.1237657. PMID: 27662527
Kose EA, Bakar B, Ates G, Aliefendioglu D, Apan A
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Therapy

Luo TF, Wang YB, Wang DH, Zhan S, Deng SL
Medicine (Baltimore) 2022 Sep 9;101(36):e30492. doi: 10.1097/MD.0000000000030492. PMID: 36086683Free PMC Article
Williams AJ, Wang Z, Taylor SF
Neurocase 2016 Oct;22(5):472-475. Epub 2016 Sep 23 doi: 10.1080/13554794.2016.1237657. PMID: 27662527
Pasquier L, Marcorelles P, Loget P, Pelluard F, Carles D, Perez MJ, Bendavid C, de La Rochebrochard C, Ferry M, David V, Odent S, Laquerrière A
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van Dellen JR, Ford MA
S Afr Med J 1978 Jun 17;53(25):1034-6. PMID: 358428

Prognosis

Zhao Q, Xu B, Xiang Q, Tan Y, Xie H, Gao Q, Wen L, Wang H, Yang M, Liu S
Mol Genet Genomic Med 2023 Mar;11(3):e2124. Epub 2022 Dec 20 doi: 10.1002/mgg3.2124. PMID: 36538006Free PMC Article
Pinchefsky EF, Accogli A, Shevell MI, Saint-Martin C, Srour M
Dev Med Child Neurol 2019 Mar;61(3):350-358. Epub 2018 Oct 15 doi: 10.1111/dmcn.14059. PMID: 30320441
Williams AJ, Wang Z, Taylor SF
Neurocase 2016 Oct;22(5):472-475. Epub 2016 Sep 23 doi: 10.1080/13554794.2016.1237657. PMID: 27662527
Srour M, Hamdan FF, McKnight D, Davis E, Mandel H, Schwartzentruber J, Martin B, Patry L, Nassif C, Dionne-Laporte A, Ospina LH, Lemyre E, Massicotte C, Laframboise R, Maranda B, Labuda D, Décarie JC, Rypens F, Goldsher D, Fallet-Bianco C, Soucy JF, Laberge AM, Maftei C; Care4Rare Canada Consortium, Boycott K, Brais B, Boucher RM, Rouleau GA, Katsanis N, Majewski J, Elpeleg O, Kukolich MK, Shalev S, Michaud JL
Am J Hum Genet 2015 Nov 5;97(5):744-53. Epub 2015 Oct 17 doi: 10.1016/j.ajhg.2015.09.009. PMID: 26477546Free PMC Article
Alkan O, Kizilkilic O, Yildirim T
Cerebellum 2009 Sep;8(3):355-65. Epub 2009 Apr 1 doi: 10.1007/s12311-009-0104-x. PMID: 19337779

Clinical prediction guides

Gillnäs S, Gallini R, He L, Betsholtz C, Andrae J
Biol Open 2022 Aug 15;11(8) Epub 2022 Aug 9 doi: 10.1242/bio.059431. PMID: 35876806Free PMC Article
Galli J, Pinelli L, Micheletti S, Palumbo G, Notarangelo LD, Lougaris V, Dotta L, Fazzi E, Badolato R
Orphanet J Rare Dis 2019 Feb 28;14(1):61. doi: 10.1186/s13023-019-1030-8. PMID: 30819232Free PMC Article
Pinchefsky EF, Accogli A, Shevell MI, Saint-Martin C, Srour M
Dev Med Child Neurol 2019 Mar;61(3):350-358. Epub 2018 Oct 15 doi: 10.1111/dmcn.14059. PMID: 30320441
Srour M, Hamdan FF, McKnight D, Davis E, Mandel H, Schwartzentruber J, Martin B, Patry L, Nassif C, Dionne-Laporte A, Ospina LH, Lemyre E, Massicotte C, Laframboise R, Maranda B, Labuda D, Décarie JC, Rypens F, Goldsher D, Fallet-Bianco C, Soucy JF, Laberge AM, Maftei C; Care4Rare Canada Consortium, Boycott K, Brais B, Boucher RM, Rouleau GA, Katsanis N, Majewski J, Elpeleg O, Kukolich MK, Shalev S, Michaud JL
Am J Hum Genet 2015 Nov 5;97(5):744-53. Epub 2015 Oct 17 doi: 10.1016/j.ajhg.2015.09.009. PMID: 26477546Free PMC Article
Abdel-Salam GM, Abdel-Hadi S, Thomas MM, Eid OM, Ali MM, Afifi HH
Am J Med Genet A 2014 Feb;164A(2):480-3. Epub 2013 Dec 5 doi: 10.1002/ajmg.a.36276. PMID: 24311025

Recent systematic reviews

Zakaria RBM, Malta M, Pelletier F, Addour-Boudrahem N, Pinchefsky E, Martin CS, Srour M
Cerebellum 2024 Apr;23(2):418-430. Epub 2023 Mar 27 doi: 10.1007/s12311-023-01544-2. PMID: 36971923

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