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Maple syrup urine disease type 2(MSUD2)

MedGen UID:
343337
Concept ID:
C1855371
Disease or Syndrome
Synonyms: Maple syrup urine disease, type II; MSUD type 2; MSUD2
 
Gene (location): DBT (1p21.2)
 
Monarch Initiative: MONDO:0023693
OMIM®: 620699

Definition

The major clinical features of maple syrup urine disease (MSUD) are mental and physical retardation, feeding problems, and a maple syrup odor to the urine. The keto acids of the branched-chain amino acids (BCAA) are present in the urine, resulting from a block in oxidative decarboxylation. There are 4 clinical subtypes of MSUD2: the classic neonatal severe form, an intermediate form, an intermittent form, and a thiamine-responsive form (Chuang and Shih, 2001). The classic form is manifested within the first 2 weeks of life with poor feeding, lethargy, seizures, coma, and death if untreated. Intermediate MSUD is associated with elevated BCAAs and BCKA, with progressive mental retardation and developmental delay without a history of catastrophic illness. The diagnosis is usually delayed for many months. An intermittent form of MSUD may have normal levels of BCAAs, normal intelligence and development until a stress, e.g., infection, precipitates decompensation with ketoacidosis and neurologic symptoms, which are usually reversed with dietary treatment. Thiamine-responsive MSUD is similar to the intermediate phenotype but responds to pharmacologic doses of thiamine with normalization of BCAAs (Chuang et al., 1995). For general phenotypic information and a discussion of genetic heterogeneity of MSUD, see MSUD1A (248600). [from OMIM]

Clinical features

From HPO
Lethargy
MedGen UID:
7310
Concept ID:
C0023380
Sign or Symptom
A state of fatigue, either physical or mental slowness and sluggishness, with difficulties in initiating or performing simple tasks. Distinguished from apathy which implies indifference and a lack of desire or interest in the task. A person with lethargy may have the desire, but not the energy to engage in personal or socially relevant tasks.
Opisthotonus
MedGen UID:
56246
Concept ID:
C0151818
Sign or Symptom
Ketoacidosis
MedGen UID:
67434
Concept ID:
C0220982
Disease or Syndrome
Acidosis resulting from accumulation of ketone bodies.

Professional guidelines

PubMed

Kilgore MB, Platis D, Lim T, Isenberg S, Pickens CA, Cuthbert C, Petritis K
Anal Chem 2023 Feb 14;95(6):3187-3194. Epub 2023 Feb 1 doi: 10.1021/acs.analchem.2c03098. PMID: 36724346Free PMC Article
Medina MF, Castro G, Falcon F, Cabello JF, Faundes V, Ruffato D, Salazar MF, Arias C, Peñaloza F, De La Parra A, Cornejo V
Am J Med Genet C Semin Med Genet 2021 Sep;187(3):373-380. Epub 2021 Jul 21 doi: 10.1002/ajmg.c.31933. PMID: 34288399
David J, Chrastina P, Pešková K, Kožich V, Friedecký D, Adam T, Hlídková E, Vinohradská H, Novotná D, Hedelová M, Al Taji E, Holubová A, Skalická V, Macek M, Gaillyová R, Votava F
Cent Eur J Public Health 2019 Jun;27(2):153-159. doi: 10.21101/cejph.a5441. PMID: 31241292

Recent clinical studies

Etiology

Hassan A
Tremor Other Hyperkinet Mov (N Y) 2023;13:9. Epub 2023 Mar 28 doi: 10.5334/tohm.747. PMID: 37008993Free PMC Article
Aras A, Avanaz A, Inan Aydemir N, Kayaalp E, Ulgen Tekerek N, Kisaoglu A, Demiryilmaz I, Soyucen E, Dursun O, Yilmaz A, Artan R, Aydinli B
Pediatr Transplant 2023 May;27(3):e14464. Epub 2023 Jan 1 doi: 10.1111/petr.14464. PMID: 36588190
Medina MF, Castro G, Falcon F, Cabello JF, Faundes V, Ruffato D, Salazar MF, Arias C, Peñaloza F, De La Parra A, Cornejo V
Am J Med Genet C Semin Med Genet 2021 Sep;187(3):373-380. Epub 2021 Jul 21 doi: 10.1002/ajmg.c.31933. PMID: 34288399
Jiang HH, Guo Y, Shen X, Wang Y, Dai TT, Rong H, Cheng R, Zhao F
J Pediatr Endocrinol Metab 2021 Sep 27;34(9):1147-1156. Epub 2021 Jun 30 doi: 10.1515/jpem-2020-0746. PMID: 34187135
Prasad N, Gottlich C, Nhan D, Hamosh A, Sponseller PD
J Pediatr Orthop 2021 Jul 1;41(6):e457-e463. doi: 10.1097/BPO.0000000000001812. PMID: 34096551

Diagnosis

Hassan A
Tremor Other Hyperkinet Mov (N Y) 2023;13:9. Epub 2023 Mar 28 doi: 10.5334/tohm.747. PMID: 37008993Free PMC Article
Thistlethwaite LR, Li X, Burrage LC, Riehle K, Hacia JG, Braverman N, Wangler MF, Miller MJ, Elsea SH, Milosavljevic A
Sci Rep 2022 Apr 21;12(1):6556. doi: 10.1038/s41598-022-10415-5. PMID: 35449147Free PMC Article
Medina MF, Castro G, Falcon F, Cabello JF, Faundes V, Ruffato D, Salazar MF, Arias C, Peñaloza F, De La Parra A, Cornejo V
Am J Med Genet C Semin Med Genet 2021 Sep;187(3):373-380. Epub 2021 Jul 21 doi: 10.1002/ajmg.c.31933. PMID: 34288399
Jiang HH, Guo Y, Shen X, Wang Y, Dai TT, Rong H, Cheng R, Zhao F
J Pediatr Endocrinol Metab 2021 Sep 27;34(9):1147-1156. Epub 2021 Jun 30 doi: 10.1515/jpem-2020-0746. PMID: 34187135
Velázquez A, Vela-Amieva M, Cicerón-Arellano I, Ibarra-González I, Pérez-Andrade ME, Olivares-Sandoval Z, Jiménez-Sánchez G
Arch Med Res 2000 Mar-Apr;31(2):145-50. doi: 10.1016/s0188-4409(00)00053-9. PMID: 10880718

Therapy

Adie MA, Martes Gomez M, Yom J, Durand M, Wertheimer F, McGowan R, Yano S, Ramanathan R
J Investig Med High Impact Case Rep 2023 Jan-Dec;11:23247096231168111. doi: 10.1177/23247096231168111. PMID: 37085971Free PMC Article
Hassan A
Tremor Other Hyperkinet Mov (N Y) 2023;13:9. Epub 2023 Mar 28 doi: 10.5334/tohm.747. PMID: 37008993Free PMC Article
Unal S, Bilgin L, Gunduz M, Uncu N, Azili MN, Tiryaki T
J Matern Fetal Neonatal Med 2012 Oct;25(10):2111-4. Epub 2012 Mar 16 doi: 10.3109/14767058.2012.665105. PMID: 22420616
Chuang JL, Cox RP, Chuang DT
J Clin Invest 1997 Aug 1;100(3):736-44. doi: 10.1172/JCI119586. PMID: 9239422Free PMC Article
Chuang DT, Ku LS, Cox RP
Proc Natl Acad Sci U S A 1982 May;79(10):3300-4. doi: 10.1073/pnas.79.10.3300. PMID: 6954481Free PMC Article

Prognosis

Medina MF, Castro G, Falcon F, Cabello JF, Faundes V, Ruffato D, Salazar MF, Arias C, Peñaloza F, De La Parra A, Cornejo V
Am J Med Genet C Semin Med Genet 2021 Sep;187(3):373-380. Epub 2021 Jul 21 doi: 10.1002/ajmg.c.31933. PMID: 34288399
Jiang HH, Guo Y, Shen X, Wang Y, Dai TT, Rong H, Cheng R, Zhao F
J Pediatr Endocrinol Metab 2021 Sep 27;34(9):1147-1156. Epub 2021 Jun 30 doi: 10.1515/jpem-2020-0746. PMID: 34187135
Prasad N, Gottlich C, Nhan D, Hamosh A, Sponseller PD
J Pediatr Orthop 2021 Jul 1;41(6):e457-e463. doi: 10.1097/BPO.0000000000001812. PMID: 34096551
Sun WH, Wu BB, Wang YQ, Wu MY, Dong XR, Zhang YP, Lu W, Zhang P, Yang B, Zhang M, Wu HJ, Zhou WH
World J Pediatr 2020 Aug;16(4):401-410. Epub 2020 Mar 19 doi: 10.1007/s12519-020-00349-1. PMID: 32193832
Chuang DT
J Pediatr 1998 Mar;132(3 Pt 2):S17-23. doi: 10.1016/s0022-3476(98)70523-2. PMID: 9546032

Clinical prediction guides

Lakkhana P, Tim-Aroon T, Khongkraparn A, Noojarern S, Wongkittichote P, Wichajarn K, Kuptanon C, Boonyawat B, Suphapeetiporn K, Wejaphikul K, Seo G, Wattanasirichaigoon D
Orphanet J Rare Dis 2024 Oct 25;19(1):396. doi: 10.1186/s13023-024-03411-7. PMID: 39456016Free PMC Article
Billington CJ Jr, Chapman KA, Leon E, Meltzer BW, Berger SI, Olson M, Figler RA, Hoang SA, Wanxing C, Wamhoff BR, Collado MS, Cusmano-Ozog K
Am J Med Genet A 2022 Sep;188(9):2738-2749. Epub 2022 Jul 7 doi: 10.1002/ajmg.a.62893. PMID: 35799415Free PMC Article
Thistlethwaite LR, Li X, Burrage LC, Riehle K, Hacia JG, Braverman N, Wangler MF, Miller MJ, Elsea SH, Milosavljevic A
Sci Rep 2022 Apr 21;12(1):6556. doi: 10.1038/s41598-022-10415-5. PMID: 35449147Free PMC Article
Sun WH, Wu BB, Wang YQ, Wu MY, Dong XR, Zhang YP, Lu W, Zhang P, Yang B, Zhang M, Wu HJ, Zhou WH
World J Pediatr 2020 Aug;16(4):401-410. Epub 2020 Mar 19 doi: 10.1007/s12519-020-00349-1. PMID: 32193832
Zeynalzadeh M, Tafazoli A, Aarabi A, Moghaddassian M, Ashrafzadeh F, Houshmand M, Taghehchian N, Abbaszadegan MR
J Pediatr Endocrinol Metab 2018 Jan 26;31(2):205-212. doi: 10.1515/jpem-2017-0305. PMID: 29306928

Recent systematic reviews

Hassan A
Tremor Other Hyperkinet Mov (N Y) 2023;13:9. Epub 2023 Mar 28 doi: 10.5334/tohm.747. PMID: 37008993Free PMC Article
Moorthie S, Cameron L, Sagoo GS, Bonham JR, Burton H
J Inherit Metab Dis 2014 Nov;37(6):889-98. Epub 2014 Jul 15 doi: 10.1007/s10545-014-9729-0. PMID: 25022222

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